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Good to be home
You each continue to WOW me :-) Thank you Saundra for posting an update, how thoughtful. It just shows how each one here is ready to go into battle for each other ~ and we all know how much prayer battle works. ♥ I am so grateful to be home. All of the tests aren't in but they really believe it is probably tumor fevers,…
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Radio show on new OV CA study
Hi everyone! I haven't posted here in a long time, but when I came across this I thought you might be interested. It's a radio show on a new Ovarian Cancer study. You can ask questions, or just listen (in real time or after the fact). The show is tomorrow afternoon. You can get the details at:…
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Bonnie R
Bonnie is in the hospital and asks for prayer to bring down this fever like we did before. Come on you Teal Prayer Warriors, join me in a weekend fest of prayer for Bonnie.. Saundra
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UPDATE ON Lower back pain, then kidney stone attack no stone found, now lesion on ovary - anyone exp
I'm just taking a shot on this here cause the docs seem confused. I was diagnosed with a kidney stone they THOUGHT they saw stuck in my bladder but after surgery yesterday to remove it THERE WAS NO STONE THERE. They are seeming 'something' on the CT's and one surgeon said they missed this 'lesion on my right ovary' last…
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Info That May Help You / Trial Drug Pill
Hi Ladies, I will let you know whats happening and how this trial works that may benefit someone else out there. I have been draining cancer fluid off causing low sodium and low blood pressure so I am taking sodium cholride tabs. When I get it up hopefully this week I will go to IU for the trial. My Liver and kidneys are…
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LUNG NODULE
Hello, Ladies: Just want to get some feedback from all of you, although I know nothing is 100%. Just got my CT scan report. It mentions a 3mm nodule in the lower lobe of the left lung. And it says 'to repeat CT scan in 6 months'. It also says it's 'changed' since my 10/28/07 CT scan. I just pulled my report from then and…
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Molecular Profiling
Hi ladies, just got results of a molecular profiling done on my tumors. Please check out the Clearity Foundation for details if you are interested. What your insurance doesn't cover, they will make up for you. It might be a worth while venture. I'm still trying to understand all the results but it should help with knowing…
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CA 125
Good day to all! My sister had a test of CA 125 the first result is 128 then went another test it came up to 200. Per her Gynecologist whe will have to undergo DNC then test will be made again. Do we have to worry about the test of Ca 125? I have no idea at all about these tests please bear with me.....according to her…
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Short remission
Hi to all. Just wanted to let you know - after less than 6 months in remission, I'm back to CT scans and figuring out what to do next. Just before my last regular Dr.'s appointment, I began having symptoms, and well, you know that we're very good at knowing when "it" is back. My CA125 went from 40 to 70. I just had the CT…
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High CA125
This week's CA125 was 166 after the false report of less than one. I have appointments with doctors and new tests in July and we'll wait and see what the tests show then. Could still be the imflammed bowel that is causing the higher numbers. Hopefully, with the new probiotics and no wheat or dairy products that will calm…
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CA 125 Levels for Stage IV Ovarian Cancer
I'm new to this board as my wife was recently diagnosed with stage IV ovarian cancer. She is 32 years old and had de-bulking surgery (complete hysterectomy and re-sectioned colon) 6 weeks ago. She had undergone her first treatment of Taxol/Carbo and is doing a stage III trial of Avastin (double blind study but has a 75%…
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Karen and Linn
Hi Ladies, I thought I'd start a new thread, it will be easier than zipping all the way down my no remission thread. Linn, I'm so sorry about your news regarding the lymph node, as you know I'm also staged 4 with lymph node involvement. Has your oncologist mentioned topotecan? I was on it for 10 months. Is he considering…
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Spread to lung?
Hi, I can't stop crying. The doctor finally called, and they are going to do a procedure to determine if the fluid on my lung could indicate the cancer has spread there. I can't even have the procedure until next Wednesday. We're supposed to go to my daughter's for supper tonight, but I'm not sure I can face my…
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ionized calcium
Good Afternoon Girls! My onc/gyn just called me with the results of several blood work tests. All was fairly normal (have not had CA125 yet, next month) except she said my ionized calcium is elevated and wanted to know if my bones ache. Well, yes! They have ached ever since chemo. She had ordered me a bone scan last…
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New Diagnosis....fear is Overwhelming
I am looking for some help with how to overcome my gigantic fear of all of this. I was diagnosed May 2008 with endometerial cancer. My oncologist told me that a hysterectomy would be all that was necessary. So, though the diagnosis scared me, it was a relief that that would be the end of it. I have been having alot of…
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New doctor report
I saw a female gyn/onc from Texas Oncology today and did I ever like her because we talked a lot about nutrition and vitamins....odd for a doctor in my experience. Because I was on gut antibiotics for over a month for the diverticulitis she gave me a web site that I could order the good bacteria replacements from and…
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Gemzar Not Working
Well, my ca 125 has jumped from 50 in March to 241 last week. I had four treatments of Gemzar and my counts kept going up. That was my 3rd line treatment so far. My Onc said that we will stop the Gemzar and do a PET scan. I never had one before only the ct scans. He said if there is a tumor that he is considering doing…
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Need surgery - no health insurance
I work part-time and my husband is on permanent disability receiving SSI. All his medical care is covered by the VA. I have no health insurance. I'm a post-menopausal woman who has just received a diagnosis of ovarian cysts, 30 to 50 percent chance of cancer. MRI at local hospital showed 5cm ovarian cyst on left side,…
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How to use this board
Does anybody know how to arrange all the posting topics in chronolical order starting from the most recent to the oldest? Thanks.
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New to this board and terrified
Hello! My family doctor had me take both a pelvic ultrasound and that led to a CT and Xray after that. She referred me to my gynecologist/oncologist who was my surgeon as well. I was told that I had a huge cyst that was pressing against all of my organs and my ribs. He told me that it was an 80% chance that is was not…
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confused about makeup
Hi. Let me start with my story, trying to be brief. I'm 47 and was diagnosed in Oct. with OvCa stage III C. I went to urgent care with somewhat bad pains in left side, thinking possibly appendicitis. I've never been in the hospital and never even had a blood test. Had been thinking that should start going to have me blood…
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On to something else
God's morning to all! I haven't posted for a bit and thought I should maybe update you all. Although I have posted replies to others ☺ I know a few of you read my caringbridge page so you already know my doc is working on getting a different drug approved. With medicare as primary it is more difficult to get treatments…
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SCARIED OF SURGURY
PLEASE LET ME KNOW WHAT TO EXPERT FROM SURGERY IS IT VERY PAINFULL RECOVERY TIME SCARIED TO DEATH
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Profile page
After trying for a month, me and my chemo diminished brain finally figured out how to find, and fill out my profile page. That's my accomplishment for today! Jane
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Fluid on lungs
Hello, I believe I read a post sometime ago about fluid on the lungs. Is this something that can happen with ovarian cancer? I just had a chest x-ray to try and find why I have a recurring pain on my right side and a hazy area showed up. I have to have a CT scan of the chest now, and one of the possibilities the…
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Doubts on Ovarian cancer relapse test
Hi Ladies, This is an interesting article...regarding CA125 testing every 3 months or sooner. http://www.nytimes.com/2009/06/01/health/research/01cancer.html?_r=1&scp=2&sq=ovarian cancer&st=cse ((HUGS)) Joan
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Reporting in
I am feeling much better and have this to report: The loose bowels and huge amount of gas I had was due to lactose intolerance. I was craving milk products and it just occurred to me one day that maybe I had developed that during this many antibiotics....so having some lactase enzyme on hand, I tried it and had IMMEDIATE…
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Please see posting On no remission after all
Sorry ladies should of put a new post for what I said please read it though and I will stay in touch Love hugs and many Prayers to all Sandy
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No remission after all
Hi ladies, I saw my oncologist this morning, and although he was pleased with the CT scan report, he said I'm not in remission, and the cancer is still active. He based this on my CA125 going up for the past three months. Obviously it was not what I wanted, or expected to hear and I was very disappointed. He gave 3…
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new member
I just joined this network today, hoping I could connect with others who are going through similar treatment and concerns. I am a 7 year breast cancer survivor, and was diagnosed with stage 3c ovarian cancer this April. I just had the first round of 2 day chemo in Middletown NY. I was wondering if anyone in this network…