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Head and Neck Cancer

Archives for December 2021

How to wean off feeding tube - or when can I eat real food?
I’m really tired of my feeding tube but I can’t seem to find enough food that I’m able to eat. Basically, (and I realize many of you have been here), if it’s not wet it’s not going down my throat! Today marks four months (17weeks, 3days)since my last radiation treatment for BOT Cancer. My mouth was on fire with swelling…
Base of tongue cancer
Learned of cancer August 2017, began radiation, chemotherapy and completed treatment October 23, 2017. A feeding tube was placed and was removed 18 months later. I had no appetite nor was food pleasurable to me. Ive existed on fruit and vegetable smoothies and Boost since. Recently I have developed an appetite and have…
A Blessed And Happy New Year-Leave Your New Year Wishes Here
Hello everyone here on the H & N section of CSN. First of all, I encourage you to post your New Years' greetings and wishes here, and if there is an individual who has been a special supporter, or multiple people, your medical team, a special doctor or nurse helping and supporting you in your cancer journey feel free to…
My Anniversary
Today, 12/30/2021 marks my 13th year as a stage-3 NPC Survivor! Another Poster let me know about an article he read and showed me where the day you are told the Biopsy came back Positive is the day that starts Survivorship, and for me it was 12/30/2008, of course. No reoccurrence, because the Local Locos C & R Drs.…
Nasopharyngeal Cancer Recurrence
Hi. I’m a resident of the kidney cancer board, but I’m here for my brother-in-law. He was diagnosed and treated for stage 4A nasopharyngeal cancer in 2009-10. His treatment was targeted radiation five times a week and chemo (not sure of the drug) once a month. Both lasted three months and he has been cancer free since. He…
Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
Question regarding Nasopharyngeal cancer
Hi. I’m from the kidney cancer board, class of 2016 (for removal of one cubic inch of my right kidney). I’m here today about my wife’s brother. He was diagnosed in September, 2009 with nasopharyngeal cancer, Stage 4A. He underwent radiation, M-F for three months along with a monthly dose of chemo (I forget the drug used)…
My Treatment Plan
Carboplatin IV; Fluoracil (5-fu) IV; Keytruda IV every three weeks x 6 cycles. Time for some light reading.
HPV16+ resolved with radiation 2 years ago, but now
When I got the Proton radiation, I asked my Oncologist what the chances were of it being curative, he said 98% in my case (soft palate). Now I have a 6mm spot in my lung that could be recurrence. He never mentioned that and I am livid. Was this a play on words? The more I read about HPV 16, the worse it gets, sounds like…
Easy way to get more protein!
I don't know if it's been mentioned on here. It probably has, but my search yielded no results. I would like to bring it up in the event it has not, or as a reminder. WE need protein and many people need to gain weight! (I'll just use Orgain powder as an example here, there are many with more calories) 10 oz of FAGE yogurt…
Roll Call Reminder-Post Your Update Status
Hello all. Just a quick reminder if you haven't posted your update in the new roll call now is the time to do it. Matt has been working long and hard to adapt it to the new format and it is now available. To all of our H&N members feel free to post to the roll call which lets people know the basic stats that you want to…
Christmas Wishes-Leave Yours Too
Hello everybody. We are about a week away from Christmas. Soooooo................. To all the CSN H&N folks on here who are stopping by and are reading this and to our background lurkers, which I am urging to join and be a part of the family here I am sending Christmas Greetings and Well Wishes to you and your families. In…
Lymphedema (?) after radiation..
After suffering thru all the typical side effects of radiation, I had my post treatment PET Scan on December 1 (two weeks ago, today). Yesterday I had the follow up with my radiation oncologist. The good news, the cancer is GONE! However, during the visit with my doctor, she did the normal exam: vitals, listened to my…
New CSN Website-Post/Edit Picture and Images.
I have recently found there are a few things you can do with pictures you post on CSN. I recently added a post on tips on the new site and how much easier it is for everybody to add pictures or images. Well now once you post a picture in your post or comment there are a few things you can do such as shift the picture to…
New CSN Site-Posted Pictures-Images
I have run into another option on the new CSN website pertaining to pictures. I had posted earlier that I had reduced a picture and posted it but it still came out as a huge picture when posted covering the page from edge to edge. Well, I have now found once a picture is posted you can perform several options with it…
The New CSN Tips-Ideas
Someone has told me that they don't like the feature of the new site where our pictures are much smaller. I agree but if you click on the person's picture on the left side of the forum a box then pops up which shows not only an enlarged picture, I would say as large as before, but also a space to click on to view their…
3 years today
It has been 3 yrs. today since my last treatment. I am doing pretty good I have 85 to 90 % taste back and went back to work after the 7 months that I was out for treatment which included TORS, radical neck dissection, and 33 rad tx. You can go to my bio for the full take if you would like. I still have dry mouth and some…
A remarkable article. All should read.
I cannot recall where I read this, if it was here, please ask admin to remove this post. I found it quite fascinating. I haven't been getting much sleep. I would love to research with this man. By: Stewart Lyman, Ph.D., HPV-related Tonsil Cancer Survivor You don’t have to be an oncologist to know that fighting cancer is…
3 days in Radiation
I already feel like I have a cold. Is this normal so early on? Only 3 days so far of radiation? I chose not to sleep with my husband as his sleep apnea machine tend to keep me up, woke up and have been sneezing and blowing my nose. I can't stop. I still have saliva. But honestly feel like I have a head cold. This sucks.
Biopsy results
Finally got biopsy result for my neck and lungs. They are positive for cancer. They are going to put me on immunotherapy but this cancer is very aggressive and any measures taken will be palliative. I assume just knock it back enough so it doesn't quadruple in size one day which will be very painful considering the…
ROLL CALL 2021 - First Post (Section 1 of 9) <<<<CLOSED>>>>
IMPORTANT TO EVERYONE READING THIS, Due to the file size limitations for uploading files to the CSN website, in particular (to us) the H&N forum. My uploading of the Roll Call had to take one more detour this week and to fall in line with the present day CSN standards. I had all ready fallen way behind on this project.…
finished chemo & rad - a copy of questions
completed 5 / 6 chemo (taxol & carbostatin) on 11/16/21 & 33 rads on 12/2/21. the last day i dd 2 sessions, i was having trouble getting in due to floods; one hospital stay which found blood clots in my lungs, very low WBC (which has resolved) & some sort of infection. i'm on a fentanyl patch & oxy pills. ?: i'm having…
Roll Call upload problems
Well H&N members . I am trying to get the Roll Call to you with limited success. It looks like a conversation with our will CSN Support (IT) Team is in order. I will return. CivilMatt
Questions About the New Web Site Answered
Hi, all you H&N folks hope you are doing well. I asked some questions today about the new website. Some things I couldn't find or understand and things I wasn't sure of etc. The part at the bottom where you could preview your post or comment before you post it is not there anymore now you have to save it as a draft see a…
Newly diagnosed and new to CSN
Greetings all, I had what was thought to be a granuloma on my right vocal cord. A biopsy had now labelled it "Invasive keratinizing squamous cell carcinoma" . The lab report also says, " The tumor is positive for p63 confirming squamous cell. P16 is negative." Being diagnosed just yesterday, I don't know what any of that…
New Video from Beagledad: Affordable Things to Get For Your HNC Patient Friend
https://youtu.be/nokr9oAoOdQ This video lists several inexpensive items that could make your patient's experience a little bit better. Please feel free to comment under the video if you have other suggestions or ideas for the same, or if you have benefitted from any of the ones mentioned. As always, thanks to PIPLILLY for…
Neuropathy - B Vitamins
I've been struggling with Neuropathy (numbness in my arms, hands and feet) ever since finishing 5 FU Chemo treatment, a couple years ago. Recently, a couple people on here recommended B Complex vitamins for it. I started taking them - and at first, I was disappointed, that I saw no results. However, this week - after two…
new format
I think I liked the old format / layout better. Time will tell.

Head and Neck Cancer

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