Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for June 2011

Chef Daddy Mikes Son up-date
Hi everyone I talked to Mike last night and the pore man just can’t get a break. His Son was told the bad news yesterday by his doctors that more than likely his Liver will not allow him to do more Chemo again for his Leukemia. Mike and his Son was all day running from one doctor to another and was pretty exhausted by the…
Another good check up
I have been reading these posts for close to 2 years. They have been helpful. I saw my Doc yesterday and he suggested I come back on a yearly basis. I'm 22 months post treatment (tonsil, lymphnodes, stage 3). I feel very greatful. I like reading the success stories and so far I'm one of those. I do miss seeing DelNative's…
Vocal cord nodule or lesion
My mother is 91 years old. The dr just did a biopsy on her Monday as she is having horseness while talking. He said there is a 50-50 chance it may be cancer. If it is he is suggesting radiation. She is 91. What can he be thinking? She is in good health otherwise and he dsadi he took it all out. My husband passed away in…
residual tumor
What is residual tumor? I aksed this dctor here at emory and he looked at me like i was crazy! I've heard it discussed on here before...or do I not know what i'm talking about???
"Pass the Salt" Hyponatremia
Just an FYI about a possible condition we may be prone to because of our eating issues. CURE-Cancer Updates, Research, Education, Vol. 10 No.2/2011 summer issue page 22. Author- Teresa Mcusic "Hyponatremia is a condition that results in an imbalance of the ratio of water to salt in body fluids...In my patients going…
Anniversary
Hi all: Basketcase here. Just thought I'd report that it has been rough; this being our first wedding anniversary since Charlie passed away. It was a pretty good day; but very rough. I did see Mr.Popper's Penguins. It is a cute movie and I enjoyed it. Good thing I had a gift card though. It was $9 for the ticket and 12.25…
checking in
Well I havent been on here that much latley, anyway have not had a pet scan latley but have been feeling ok. Around 3 months post neck disection over 3 months post radiation and chemo. I had a tumor grow on my left ear, big nasty thing that was SCC, had a moess procedure done at the dermetologiest office to remove it, any…
5 weeks out
Well we are 5 weeks out. Husband seems to be healing up nicely. He went to his onco appt yesterday and he seems to be doing fine. Still sitting at 146 pounds. She said he needs to gain weight. But, he still can't eat. The left side of his mouth/tongue is still pretty fried. We will keep trying. I told him try to eat every…
Port removal
How long did you have your port in?
breaking the gloom
How do you guys handle these situations? You know when an aquaintance comes to you and asks in a timid fashion ...How are you? Almost like they are scared of the response that your gonna give them. I keep trying to come up with a humorous way to respond to these nice folks who are genuinely concerned about you but dont…
Positive Post-I've finally kicked my Roxicet
After surgery, radiation treatment, and recovery, ohhh about 7 months worth of total time on Roxicet, I can say I've finally kicked it. On my 3rd day w/o it. :)
back in the glass shop!
Hi Everyone, I feel compelled to tell you all that I FINALLY went back into my little workshop, after almost 6 months of not even stepping foot in there..and finished a piece of glass that I started last September. It is FINISHED!!! It was intended for my hubby's Christmas present 2010, then became the March birthday gift…
Please help with advice..........am worried about throat symptoms and diagnosis!!
Hello Everyone, Firstly can I say you are all amazing people and having read a lot of threads I admire your strength and pray for you all xx I am a 35yr old smoker who has had a really sore throat (on the left side) and hoarse voice for over 5 weeks. I started by seeing my GP who diagnosed tonsillitis on the left side and…
ONE YEAR AGO THIS WEEK
Wow,how time flies by. One year ago this week I was told by my doctor I had cancer. My wife was on a weeks vacation with here girlfriends when I got the news. Ironically this very week, she is on vacation with her girlfriends. She was in a shoe store at an outlet mall in line to buy a pair of red high heeel shoes when I…
6 months post chemo chills
Along with the array of anticipated complications and changes, my husband is still experiencing severe chills (especially during/after eating (even warm foods)- but at least he can eat now!). He is 6 months post last chemo treatment for NPC IVB. He did radiation and cisplatin then followed with cisplatin and 5fu. Just…
New pic
Hi all: Hope this does right this time. When I went to preview my post; it gave me some weird message about post splitting and had the date as December 31, 1969! Weird! Anyway since tomorrow (the 28th) is our 36th wedding anniversary I thought I'd put a new pix in. Obviously it's when we got married so it's 36 years old!…
Finished week two of treatment
Just looking for some insight from you all: My affected lymphnodes are not shrinking. I realized that I am just wrapping up week two of treatment (chemo/rads) but I guess I was hoping to see them shrinking. My ENT Dr. said that it will shrink and the neck dissection won't be very invasive, post treatment. I suppose I am…
2 Questions
I have 2 questions frist I had my feeding tube removed 5 weeks ago now around where the tube went in it's swallen like fluid around it it's not sore or red like it might be infected I dont know if it may need to be drained or not has anyone had this problem. Next question 2 weeks ago I started taking Salagen to help with…
swallowing
Any of you that lost your swallow because of radiation treatments, how did you get it back and what foods did you start with the get it back?
Input regarding Peg Tube
I completed my radiation treatment back on 5/18/11 and hear I am over a month later still not able to really eat. I have been going to speech/swallow specialist once per week for three weeks now. She just released me to start being able to eat what I want. The problem I am having is that I find alot of things still burn on…
Juice Recipes Anyone
Hi everyone, I know at times we have all done the juice or let’s say the juicing thing. Just wondering if anyone is willing to share their recipes for making something good to drink? My wife makes me Carrots with a green apple in the evening, but the same thing everyday gets old so I need something new to add. I promise…
TUMOR BACK
I had stage IV-a head and neck cancer with a tumor under my tongue and a 6.5 cm tumor in my left lymph node. I had 35 rads, 7 concurrent chemos and a selective neck dissection in Nov 2010. Now, my Radiologist has found a tumor in my Larynx. He has scheduled a PET Scan for this Wednesday, and referred me to Chapel Hill for…
Pathologic Fracture
Just found out my husband has a pathologic fracture of his lower jaw bone on the left side. He is a almost 3 yr cancer survivor from oral cancer in this same jaw area and also in lymph nodes. He has had teeth pulled in that area over a year ago and did 30 hyperbaric treatments. Jaw was swelling and painful. During a…
Squamus cell carcinoma
do most of yall on here have squamous cell carcinoma? Is it similar to the SCC that the people with skin cancer have, do you know? i just happend to go on their site and it scared the jibbies out of me because so many of them had it come back over and over. Mine is SCC and it has recurred in ethmoid sinus into orbital area…
gell pad for skin burns?
anyone ever use radiapres gel pads for skin? moms skin is starting to burn, just red like a bad sun burn no blisters or open sores. the nurse gave her radiapres gel bads today to try. we'll see how it goes! they were refrigerator so the coolness also alleviated symptoms. if anyone HAS used them did you also use your…
update
Hello everyone, just a brief update on my husband. We went to a meeting this morning had a appt. at 7 am. About four of the docters came in and felt my husband neck, and they all went over his med records. Then his ENT doctor came back in and said " Well, it looks like the cancer is still there the 33 rad treatments and 12…
Help...Need Advice.
Hello, Two years ago my dad was diagnosed with Stage III NPC. He went through chemo and radiation and they told us it was one of the easier cancers to treat and that he should be fine. In December of last year my dad was complaining of back problems so he went into the hospital for a CT scan and that's when they informed…
mixed visit
well I and my mom and sister are at md anderson and i have learned that the original surgeon at MUSC IN charleston probably didn't get the whole tumor out last year from the sinus from mom. now she's 83 and the surgery this doctor is talking abbout maybe doing is 9 hours to totally remove eye, muscles socket, nerves and…
Disability - Dysphagia
Several months ago I was at my doctor's office at the Kirkland Clinic and he told me that basically there was nothing else he could do (long term after effects)and now we would simply treat symptoms. My comment to him was "what you're saying is I'm in the Sh@# pile". He smiled and said "yes but you are on top of the pile…
Stage 4 Mouth SCC- Chemo last hope
So my dad stared his chemo today, finally saw doctor. Doctor said it is stage 4 and the chemo should help swelling. Said nothing positive, is it possible to beat stage 4 oral cancer with just chemo? Amanda

Head and Neck Cancer

Discussion List