Lou Ann updating

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Lou Ann M
Lou Ann M Member Posts: 996 Member
in Uterine/Endometrial Cancer #1

I don't feel like I have been doing a very good job here lately.  Some times I have been so tired that I have had trouble reading everyone's posts.  Everything kind of blends together Chemo brain at its best.  I know there are new members of this selective group that I haven't welcomed and many posts that I haven't answered.  I have tried to read all of your posts and you are always in my mind, thoughts and prayers

The last week has been eventful. Last week I had hydration and another blood transfusion plus a CTscan.  This week Monday I was supposed to begin my next round of Topotecan.  The CTscan results showed growth on all the old tumors and several new ones, so my Dr. Didn't want to continue with that.  He did some extensive research into Avastin and decided that even though some of th rare side effects were nasty the good outweighed the bad.  He and the hospitals financial department petitioned Medicare to allow me to have it and today they got word that it would be allowed.  His office called at 10 and I was in my infusion chair by 1.  I am feeling pretty encouraged by this.  My oncologist Evn stopped by to tell me that he had called my Gyn-Onc and the he agreed with the Avastin treatment.  Avastin is also the treatment that was a genomic testing match for my specific cancer.

Hugs and prayers to all of you, Lou Ann

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    #2
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    Lou Ann,
    You ALWAYS do an

    Lou Ann,

    You ALWAYS do an awesome job supporting everyone here. And, right now it is time for you to concentrate on getting yourself better.

    So happy to hear about the Avastin being approved for you. I hope and pray that it is the magic formula that works for you.  I also hope you have minimal side effects from the treatment today.

    Don't forget to rest and please know that we are all thinking about you every day!  Please keep in touch so that we know you are OK.

    Love and Hugs,

    Cindi

  • Kvdyson
    Kvdyson Member Posts: 789
    #3
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    Good doctor and good plan

    Lou Ann, it sounds like you have a good doctor and a good plan. Wishing you good luck with the Avastin treatment. Keeping you in my thoughts and prayers. Kim

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    #4
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    (((LouAnn))), I agree, you do

    (((LouAnn))), I agree, you do a wonderful job of supporting everyone here.  I am so glad you got the go ahead for a new medication and hopefully you will have some positive results from it.  Keep us updated if you're not too tired.  Otherwise, just rest and get your strength.

    Love,

    Eldri

  • Editgrl
    Editgrl Member Posts: 903 Member
    #5
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    LouAnn, this sounds

    LouAnn, this sounds promising.  Good that your doctor did not continue with something that wasn't working and it's great that Avastin was a match for your cancer.  This is very hopeful.

    Chris

  • ncg007
    ncg007 Member Posts: 138 Member
    #6
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    TeddyandBears_Mom said:

    Lou Ann,
    You ALWAYS do an

    Lou Ann,

    You ALWAYS do an awesome job supporting everyone here. And, right now it is time for you to concentrate on getting yourself better.

    So happy to hear about the Avastin being approved for you. I hope and pray that it is the magic formula that works for you.  I also hope you have minimal side effects from the treatment today.

    Don't forget to rest and please know that we are all thinking about you every day!  Please keep in touch so that we know you are OK.

    Love and Hugs,

    Cindi

    Lou Ann

    I too do agree you always provide great support.  It's ok to take time off from responding to tend to yourself.  Good news on the Avastin approval, i pray that it works out well for you.

    Nancy

  • molimoli
    molimoli Member Posts: 514
    #7
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    Oh Lou Ann we all understand the hills and gullies

    of this crud. You have done a lot to educate, encourage and impress us with your strong will to  keep fighting and gracefully to boot. I couldn't find enough patience not to mention grace to do your journey like you do,after every failed, made me very sick treatment, all of my thoughts would be profanity laced, I am not good with voicing them but I'd be thinking them all right. To us you are amazingly wonderful,to maintain grace under such constant fires, you need to know that.

    Good news about the Avastin and you, I hope nothing stands in it's way of mapping up the mess.

    Plenty comforting hugs coming from us to you my sister. We will wait for you till whenever you feel .

    Moli--Whispering Hope my sister.Nuff Love

     

  • Soup52
    Soup52 Member Posts: 908 Member
    #8
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    So happy the dr has found a

    So happy the dr has found a treatment to match your cancer and it was approved! Of course it's understandable not to comment or even read all these posts when you are suffering! You are a great supporter! Best of luck with the new treatment! Prayers for success!

  • Tichondria
    Tichondria Member Posts: 39
    #9
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    I truly hope this treatment

    I truly hope this treatment works for you. I'm happy medicare approved this treatment for you, being on disability and medicare as well I know how hard it is to get them to approve anything different. My well wishes and prayers go to you in hopes that this treatment shows great results.

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #10
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    Lou Ann we are all in your corner

    and rooting for you to do well with the Avastin.  I agree with the other ladies here who talked about how supportive you are to everyone else, in spite of your own ups and downs.  You are a strong, loving woman and your compassionate nature shines through with your responses to the posts here.

    I hope you do fantastically well with your treatment.

    Hugs to you, Cathy 

  • joyce6611
    joyce6611 Member Posts: 51 Member
    #11
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    Glad to hear you will be

    Glad to hear you will be getting a new chemo.  We will all be praying that it is the magic formula and will get rid of your tumors.  I love reading your posts and feel encouraged by them.  Please rest as much as possible and we wish the best for you!

    Hugs!

    Joyce

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