Erbitux Stage 4

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tallorder5793
tallorder5793 Member Posts: 67
in Head and Neck Cancer #1

Hello - I usaully post to forum for anal cancer, which is disease I'm coping with. Recently I was put on Erbitux and another chemo drug by my oncologist. Research has shown Erbitux effective in other HPV cancers, not just Head and Neck Cancer. I've done two treatments. I broke out in horrible rash after first treatment. Using creams, I've since kept rash in check. 

I would be interested to hear from any longtime users, particularly those diagnosed stage 3 or 4.

Today is my second "anniversary" living with stage 4.

Thank you!

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  • MrsBD
    MrsBD Member Posts: 615 Member
    #2
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    Erbitux

    The rash from Erbitux can get pretty ugly. My cancer was SCC, Stage 4a, HPV negative, base of tongue with spread to a lymph node on each side of my neck. During treatment I looked like a teenager with acne and a bad sunburn. It was managed with an antibiotic and I also found making a wash out of oatmeal and cool water calmed the itching. The rash did clear up shortly after treatment stopped, but my eyelashes continued to grow for a few more weeks. I had no lasting effects except that there is now no evidence of cancer, which made it all worthwhile! I hope your experience is the same.

  • tallorder5793
    tallorder5793 Member Posts: 67
    #3
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    MrsBD said:

    Erbitux

    The rash from Erbitux can get pretty ugly. My cancer was SCC, Stage 4a, HPV negative, base of tongue with spread to a lymph node on each side of my neck. During treatment I looked like a teenager with acne and a bad sunburn. It was managed with an antibiotic and I also found making a wash out of oatmeal and cool water calmed the itching. The rash did clear up shortly after treatment stopped, but my eyelashes continued to grow for a few more weeks. I had no lasting effects except that there is now no evidence of cancer, which made it all worthwhile! I hope your experience is the same.

    Thanks for responding

    Good to hear. Wishing you all the best!

  • Hondo
    Hondo Member Posts: 6,636 Member
    #4
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    Hi tallorder

     

    When I got a rash in or out of treatment I used Desitin Rapid Relief Cream, I find it works just as good for when my PEG tube Stoma gets red and blister from leaking.

     

     

     

    The way I see it anything that works use it, just make sure it is safe first.

     

    Welcome to the H&N side

     

    Tim

     

  • tallorder5793
    tallorder5793 Member Posts: 67
    #5
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    Hondo said:

    Hi tallorder

     

    When I got a rash in or out of treatment I used Desitin Rapid Relief Cream, I find it works just as good for when my PEG tube Stoma gets red and blister from leaking.

     

     

     

    The way I see it anything that works use it, just make sure it is safe first.

     

    Welcome to the H&N side

     

    Tim

     

    Will destin to list

    Thank you!

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