Its been a tough month already

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janderson1964
janderson1964 Member Posts: 2,215 Member
in Colorectal Cancer #1

I have been fighting with the insurance company for almost a month now to get SBRT done on the chestwall spots. Then I went for treatment last Friday and all of my blood counts crashed so they delayed it until this Friday. I never had problems with my blood counts before. Then I just got a call from my wife that her mother in Korea died this morning from you guessed it CANCER!!!!!!!!! We new it was coming but it is still hard and ironically on my 50th birthday.

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  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #2
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    So sorry, Jeff

    That is a long list of heartbreak. 

    I pray that your bloods will return to a decent level, so that treatment can continue. 

    I pray that you and your wife will be comforted at this time of loss. Will your wife be able to travel back to Korea? 

    And as for your 50th, well, that needs a seperate thread, so that we can celerate, because 50 is a wonderful thing and needs recognition beyond your sad news. 

    Sue - Trubrit

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #3
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    Trubrit said:

    So sorry, Jeff

    That is a long list of heartbreak. 

    I pray that your bloods will return to a decent level, so that treatment can continue. 

    I pray that you and your wife will be comforted at this time of loss. Will your wife be able to travel back to Korea? 

    And as for your 50th, well, that needs a seperate thread, so that we can celerate, because 50 is a wonderful thing and needs recognition beyond your sad news. 

    Sue - Trubrit

    Oh Jeff I'm so sorry.  Too

    Oh Jeff I'm so sorry.  Too much to deal with.  Hugs to you and your wife.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #4
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    jen2012 said:

    Oh Jeff I'm so sorry.  Too

    Oh Jeff I'm so sorry.  Too much to deal with.  Hugs to you and your wife.

    Sorry to hear the bad news.

    Sorry to hear the bad news.  Please give your wife our condolences. Bug hug to you both. 

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #5
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    Nana b said:

    Sorry to hear the bad news.

    Sorry to hear the bad news.  Please give your wife our condolences. Bug hug to you both. 

    Thnk you Nana. We are both

    Thnk you Nana. We are both tough and will come out on top but the hugs sure do help.

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #6
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    Dear Jeff,
    My condolences

     

    Dear Jeff,

    My condolences to you and your wife on her Mom's passing.  May your dear wife take comfort in that her Mmo is no longer in pain or discomfort from this horrible disease.

    With sympathy,

    Cynthia

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #7
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    LivinginNH said:

     
    Dear Jeff,
    My condolences

     

    Dear Jeff,

    My condolences to you and your wife on her Mom's passing.  May your dear wife take comfort in that her Mmo is no longer in pain or discomfort from this horrible disease.

    With sympathy,

    Cynthia

    Oh, Jeff, too much.  Please

    Oh, Jeff, too much.  Please give your wife my condolences. Know that you are in my heart and prayer.

    Although you may not feel like celebrating today, celebrating 50 is a must.  We will remind you. You've earned it!

    hugs,

    CM

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #8
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    I'm so sorry

    That is so sad and I'm sure that it going to be so difficult with MIL being so far away to deal with everything you have going on yourself.  Counts always seems to go down when you don't want them to so I'm hoping that yours come up soon.  I'm sorry for the passing of your MIL and hope that you get to honor her memory even though she is so far away.  May God's Blessings abound you and wife with much comfort and help you deal with all that is going on in your life.

    Kim

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #9
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    I am so sorry to hear of your

    I am so sorry to hear of your loss, please send condolences to your wife as well. I do agree however that celebration of 50 Is a must, even if at a later date when things settle! 

    I send a big happy birthday to you! 

     

  • sdp
    sdp Member Posts: 181
    #10
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    I am sure u will weather this

    I am sure u will weather this storm much like the ones undid earlier !

    wish u all the best ! Happy 50th !

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #11
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    sdp said:

    I am sure u will weather this

    I am sure u will weather this storm much like the ones undid earlier !

    wish u all the best ! Happy 50th !

     

    I will definately weather the

    I will definately weather the storm. I just finished appealing my case for SBRT to the insurance company. I hope that pushes them towards approval.

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #12
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    Oh ugh, Jeff...

    that's way too much for one month.

    I hope things start to look up from here on out, and pls tell your wife how sorry I am about her mom.

    But on a brighter note, HAPPY BIRTHDAY!!

    Did you ever imagine pre-cancer that hitting 50 would be so satisfying?  One of the few perks we cancer folk have.

  • TheLadySkye
    TheLadySkye Member Posts: 203 Member
    #13
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    Deepest Sympathies

    I am so sorry for your loss.  My condolences to you and your family.

    *tight hugs*

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #14
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    annalexandria said:

    Oh ugh, Jeff...

    that's way too much for one month.

    I hope things start to look up from here on out, and pls tell your wife how sorry I am about her mom.

    But on a brighter note, HAPPY BIRTHDAY!!

    Did you ever imagine pre-cancer that hitting 50 would be so satisfying?  One of the few perks we cancer folk have.

    I didnt imagine pre-cancer

    I didnt imagine pre-cancer that 50 would be so great but it is. I still feel like I am in my thirties on my good days.

  • Phil64
    Phil64 Member Posts: 838 Member
    #15
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    When it rains it pours?  But

    When it rains it pours?  But the sun will shine one again. Prayers to you and your wife. So sorry you have this additional storm to endur. Prayers for better blood counts as well. 

     

    Phil

  • JanetRotundo
    JanetRotundo Member Posts: 13
    #16
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    I'm so sorry for your

    I'm so sorry for your loss...please know that prayers are flying to enfold you and your wife. Hopefully the insurance company will finally get it right and approve the SBRT. We do need to celebrate your 50th trip around the sun!

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #17
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    JanetRotundo said:

    I'm so sorry for your

    I'm so sorry for your loss...please know that prayers are flying to enfold you and your wife. Hopefully the insurance company will finally get it right and approve the SBRT. We do need to celebrate your 50th trip around the sun!

    Thank you. I am still

    Thank you. I am still fighting the insurance company and feel positive that I will finally get an approval. I have celebrated my 50th in my heart all week. I am thankful to make it to 50 and many more.

  • Brenda Bricco
    Brenda Bricco Member Posts: 579 Member
    #18
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    Dennis is gearing up for SBRT

    Dennis is gearing up for SBRT too... just had scans and molds made yesterday. I pray that your blood work stabilizes and you are able to start your treatment soon. He is getting very scared because the radiologist oncologist mention liver failure, which was mentioned with all treatments but he latched on to that statement this time and is very worried. I am trying to stay postive for him but am getting nervous too. I wish you the best of everything.

    GOD's blessings.

    Brenda

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #19
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    Brenda Bricco said:

    Dennis is gearing up for SBRT

    Dennis is gearing up for SBRT too... just had scans and molds made yesterday. I pray that your blood work stabilizes and you are able to start your treatment soon. He is getting very scared because the radiologist oncologist mention liver failure, which was mentioned with all treatments but he latched on to that statement this time and is very worried. I am trying to stay postive for him but am getting nervous too. I wish you the best of everything.

    GOD's blessings.

    Brenda

    Thanks Brenda. Tell Dennis he

    Thanks Brenda. Tell Dennis he will be fine. You are right there seems to be a chance of liver failure with everything i do. My doctors appeal with my insurance for SBRT was denied again. So i just appealed it with the state health dept. Its funny in 9 years of fighting cancer this is the first time my insurance turned me down for coverage. I might pursue Nanoknife as well. They approved y90 which so far so good.

    Didnt Dennis do y90 radioembolization (SIRT).  Where are the lesions that he is getting SBRT done.

  • Brenda Bricco
    Brenda Bricco Member Posts: 579 Member
    #20
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    janderson1964 said:

    Thanks Brenda. Tell Dennis he

    Thanks Brenda. Tell Dennis he will be fine. You are right there seems to be a chance of liver failure with everything i do. My doctors appeal with my insurance for SBRT was denied again. So i just appealed it with the state health dept. Its funny in 9 years of fighting cancer this is the first time my insurance turned me down for coverage. I might pursue Nanoknife as well. They approved y90 which so far so good.

    Didnt Dennis do y90 radioembolization (SIRT).  Where are the lesions that he is getting SBRT done.

    Yes, he did Y90 in Feb only

    Yes, he did Y90 in Feb only to have the tumor show back up in a scan in Aug. The tumor is one that we have been whipping on since diagnoses, it's next to hepatic artery so not resectable. He has been taking cimetadine since diagnoses and I believe that is why he hasn't had any new ones. I asked his doctor if he thought it has something to do with Dennis not having any new tumors and his response was that he doesn't know why Dennis has done so much better than the 18-22 months they gave him in Feb 2011 but that he would like him to particiapate in a new trial. I don't know a lot about it other than they are looking for cancer cells in the blood. Dennis signed the papers and gave blood, I guess if they find anything intersting with him they will let us know.

    I'm sorry they are denying your treatments. it's criminal if you ask me. It's treatments that has kept us together for an extra two, and still counting, years.

    He has a scan to do this coming Monday and then SBRT the following week. I will let you know how it all goes.

    I will keep you in my thoughts and prayers.

    God's blessings

    Brenda

     

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #21
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    Brenda Bricco said:

    Yes, he did Y90 in Feb only

    Yes, he did Y90 in Feb only to have the tumor show back up in a scan in Aug. The tumor is one that we have been whipping on since diagnoses, it's next to hepatic artery so not resectable. He has been taking cimetadine since diagnoses and I believe that is why he hasn't had any new ones. I asked his doctor if he thought it has something to do with Dennis not having any new tumors and his response was that he doesn't know why Dennis has done so much better than the 18-22 months they gave him in Feb 2011 but that he would like him to particiapate in a new trial. I don't know a lot about it other than they are looking for cancer cells in the blood. Dennis signed the papers and gave blood, I guess if they find anything intersting with him they will let us know.

    I'm sorry they are denying your treatments. it's criminal if you ask me. It's treatments that has kept us together for an extra two, and still counting, years.

    He has a scan to do this coming Monday and then SBRT the following week. I will let you know how it all goes.

    I will keep you in my thoughts and prayers.

    God's blessings

    Brenda

     

     

    Thanks Brenda. I am also

    Thanks Brenda. I am also going to contact Maryland University about getting Nanoknife done. I am sure i will have to fight with inzsurance but am considering paying out of pocket.

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