Jul 08, 2014 - 12:59 pm
So, yesterday my husband had a visit with the doctor. This doctor is incredible; he addressed all sorts of issues we had. But first let me tell you that we were waiting in the waiting room and there were a man and lady there before us, the man went in and i said to the lady is the doctor on time today? She said no, my appt was at 4:30 and i got here at 4, when i asked her it was 5:10pm. The man came out at 5:30 and they called the lady in, she said - i will be fast so you don't have to wait to long. I said, please you take as long as you need, it's your appointment. She went in, and a minute later she came out - and said to us, you go ahead of me, i can wait. I said you don't need to do that, we are ok. She said i insist, please go. I am completely overwhelmed with the kindness and generosity of people! Thank you mystery lady, you make me believe in the good of people again!
Ok so back to our visit, as i said this doctor is incredible. Our onc told my husband, that you are dying so go home and have quality time with your family and friends. i don't know about you, but sleeping and being in pain and not able to go to the bathroom by yourself or clean yourself is NOT quality time. And frankly, i'm exhausted trying to do it all. Yesterday, my husband apologized to me, saying i shouldn't have to do this. I said, would you do this for me if i was sick? He said yes, because i am the husband and that's what im supposed to do, look after and protect you. I said that is nonsence, i can look after you and it's my privledge to take care of you, you deserve it. Anyway, he told the doctor that I (me) is tired and i am killing myself looking after him, he said to the doctor, can we get some help in for her? Again, my husband who is terminally ill, is still taking care of me. No wonder i love this man. So, the doctor said, if thats what you want to my husband, we will do whatever you want. So he will arrange for in home hospice care while i am at work, and he explained that this does not mean end of life care, this is to give your wife a break and make sure you have everything you need to be comfortable. So, onto the next issue - pain. I told the doctor that the Oxycodone is giving my husband terrible dreams and hallucinations, he said ok, lets try a fentyl pain patch and see if that helps. We put one on last night and so far seems to have helped with the pain - he was sleeping very soundly this morning when i got up, my mother in law is staying with us right now and she said you go to work, i will wake him up around 10. she did, but he went back to sleep, then about 1/2 hour ago, i got a text from my husband saying that he is up, he had his lunch, and cleaned himself up (sponge bath) all by himself, changed his clothes and is now resting comfortably. I'd say the pain patch worked. I was a little worried when he was still sleeping when i left, but i'm better now. Now the next issue - i was a little scared to bring it up to the doctor, and when i did mention Cannabis Oil, he didn't even blink and said, you know i have never tried prescribing that before, but lets go for it. He said he would research it for us and speak to the Governor if he had to to get it for my husband. I explained all the things i have read about it, and that we can't NOT try it, i mean what if it works then we have a miracle on our hands, if it doesn't work then, at least he will be comfortable for his remaining days. My mother in law was so impressed with this doctor she started crying. The doctor said, we are going to get you all fixed up so you are feeling better. Now hows that for a doctor? I am feeling much more confident now, and now that the Cannabis oil will be regulated by the doctor, i don't have to worry about giving him too much or not enough.
i will tell you one thing, during the progress of this disease i have learned to never underestimate my husband! He has beaten all the odds and made it this far, i'm confident that he will not go without a damn good fight.
thank you for all your prayers, keep them coming!