Tamoxifen affect

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carkris
carkris Member Posts: 4,553 Member
in Breast Cancer #1

I always find this site so informative.

I have had a stressful month and was quite cranky almost well very PMS like. I am on tamoxifen for 4 years and havent had a cycle since chemopause 4.5 years. then one day started bleeding and have continues. Called my gyn, had an Ultrasound. lining was 0.9 mm supposed to be 0.4 mm. and a fibroid. we decided to do a hysteroscopy d and c procedure in may. biopsies. At first i was pretty bummed, but now after an initial freak out I am calmer. I just wish i wasnt so affected by these ups and downs. Really what did I think would happen? anyway ....

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  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #2
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    Breathe

    Doesn't mean anything yet.  I know, easier said than done.  Sending you lots of hugs.  When is the D & C?  I'd see if it could be done sooner just because of the freak out that might happen again.  So sorry you have to worry about this and hope it is all clear and maybe even the D & C will take care of it.

    Suzanne

  • RozHopkins
    RozHopkins Member Posts: 578 Member
    #3
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    Similar here three and half

    Similar here three and half years on tamoxifen then two injections to stop ovary from working.  No periods for All that time.  Then a bleed for a few days, stopped, then another.  Turns out uterus lining thickened and a large polyps to be removed, benign.  Now off everything.  Personally I would like a hysterectomy as my ovaries kicked back in when I stopped everything, estrogen positive.  

  • New Flower
    New Flower Member Posts: 4,294
    #4
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    RozHopkins said:

    Similar here three and half

    Similar here three and half years on tamoxifen then two injections to stop ovary from working.  No periods for All that time.  Then a bleed for a few days, stopped, then another.  Turns out uterus lining thickened and a large polyps to be removed, benign.  Now off everything.  Personally I would like a hysterectomy as my ovaries kicked back in when I stopped everything, estrogen positive.  

    uterus lining thickened

    Penny,

     I am sorry. Unfortunately, many of us who were on Tamoxifen and had similar problems. I did not have bleedings , however uterus lining thickening and two biocies 1 &1/2 years a part.

    I hope you will fell better after procedure and everything will be back to normal. You are in very good hands.

    Hugs 

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #5
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    I was 52 at the time of my

    I was 52 at the time of my hyterectomy-I told the Dr to remove everything and anything since he wouldn't get me back in again. So he did removed everything at the same time.

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #6
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    I was pre-menopuase prior to

    I was pre-meno prior to cancer-after 2 1/2 yrs on tamoxifen i started bleeding pretty heavy. I went to my gyno the next day. (prior i had internal ultrasound ,  not sure of the name of procedure, followed by a D & C every 3-4 mths to check for thickening of my uterus. BINGO mine was very thick-3 yr ago next week I had my total hysterctomy and all is well now.

     

    Denise

  • Different Ballgame
    Different Ballgame Member Posts: 868
    #7
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    That's a Side Effect to Tamoxifin

    That is/can be a side effect to Tamoxifin.  Why in the heck don't the doctors tell you that when you first go on Tamoxifin.  Prior to start taking Tamoxifin you should have an ultra sound done on your uterus so that you have a guideline as to the condition of your uterus.  Have you been going to your gyne for an annual pap smear and did your gyne know that you were on Tamoxifin?

    Hugs,

    Janelle

  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #8
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    I Can Relate

    I am on tamoxifen, 4 years.  This happened to me about two years ago.  I started to bleed, was referred to my gyno, biopsy was done due to thickness, followed by d&c.  Since then, I have been okay.  I continue with tamoxifen.  It happens. 

    You are doing right by you and are taking care of business, Penny.  Your doctor is also keeping an eye on the situation.  Take a deep breathe and remember to breath.

    Let us know how you are doing.  (((Hugs)))

    Ines

     

  • carkris
    carkris Member Posts: 4,553 Member
    #9
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    Bella Luna said:

    I Can Relate

    I am on tamoxifen, 4 years.  This happened to me about two years ago.  I started to bleed, was referred to my gyno, biopsy was done due to thickness, followed by d&c.  Since then, I have been okay.  I continue with tamoxifen.  It happens. 

    You are doing right by you and are taking care of business, Penny.  Your doctor is also keeping an eye on the situation.  Take a deep breathe and remember to breath.

    Let us know how you are doing.  (((Hugs)))

    Ines

     

    I had a few ultrasounds but

    I had a few ultrasounds but docs here in Boston do not do the ultrasounds regularly. I am a very emotional person but have been dealing with cancer for 20 years. This particular one just for 5. I know how to 'talk" to myself to handle the stress bu I find this time of year is tough. I also had a really rough go of chemo, and then I had a serious    accident at work last July, so i am seriously traumatized. and so this spring was just yucky. Then i sprung a leak and was just  not thrilled.

    I understand tamoxifen can lead to thickened uterine lining. i also think I fall on that line where I was not in menipause when i got diagnosed and went into chemopause. Docs said I could get my period again. and i was skeptical at  my age. Not that I think this was a period, but it was interesting how PMS like I was. It may have just been the stress. I think as the time gets closer I may be more stressed. It is May12 that is when my docs next OR date is.

    Does anyone know about how long it takes to recover? I forgot to ask.

  • New Flower
    New Flower Member Posts: 4,294
    #10
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    carkris said:

    I had a few ultrasounds but

    I had a few ultrasounds but docs here in Boston do not do the ultrasounds regularly. I am a very emotional person but have been dealing with cancer for 20 years. This particular one just for 5. I know how to 'talk" to myself to handle the stress bu I find this time of year is tough. I also had a really rough go of chemo, and then I had a serious    accident at work last July, so i am seriously traumatized. and so this spring was just yucky. Then i sprung a leak and was just  not thrilled.

    I understand tamoxifen can lead to thickened uterine lining. i also think I fall on that line where I was not in menipause when i got diagnosed and went into chemopause. Docs said I could get my period again. and i was skeptical at  my age. Not that I think this was a period, but it was interesting how PMS like I was. It may have just been the stress. I think as the time gets closer I may be more stressed. It is May12 that is when my docs next OR date is.

    Does anyone know about how long it takes to recover? I forgot to ask.

    Hugs to you

    Penny,

     I ma very sorry. Nothing is easy with cancer, even a "just a pill" which suppose to protect you.

    Everybody is different, Recovery takes about 2 days.

    Still hope to see you and hug in person.

    Good luck

     

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #11
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    New Flower said:

    Hugs to you

    Penny,

     I ma very sorry. Nothing is easy with cancer, even a "just a pill" which suppose to protect you.

    Everybody is different, Recovery takes about 2 days.

    Still hope to see you and hug in person.

    Good luck

     

    sending good thoughts

    Sounds like no fun. Sending good thoughts and a big hug.

    xo

    Victoria

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