Adenoid Cystic Carcinoma

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Kaydub
Kaydub Member Posts: 14 Member
in Head and Neck Cancer #1

It it is hard to believe that it has been 3 years since I finished my rads, and so far am cancer free.  I thank the Lord for his goodness.  My energy has returned mostly.  My tastebuds are 90%,  things tend to not be as flavorful, and I don't eat many crackers, chips, since they are so dry  - sort of like eating sawdust.  And I still have a very dry mouth especially when I wake up in the morning.  you do get used to it, and it seems somewhat normal. 

I will have a CT scan next month, and see my oncologist, and ENT every 3-4 months, with @ 3 ct scans per year. 

 

I am writing this to give others hope about this type of cancer.  I rarely get on this site, but was on it a lot when I was going through the rads, and was always looking for anything positive to give me hope and encouragement.  HOpefully this will help and encourage someone else.

Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    #2
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    Hi Kaydub

    Thanks for your input and helping others, I hope and pray for you that your CT will continue to be good and you continue to be a blessing to many others in your walk as a survivor.

     

    God Bless

    Hondo

  • katenorwood
    katenorwood Member Posts: 1,912
    #3
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    Hello !

    Thank you for your encouraging post !  I too was dx'd with adenoid cystic carcinoma.  There are a few others that have posted and been through surgery and rads and doing well also !  It is so important to pass on the good news that this type of dx isn't all doom and gloom !  Wishing you all the best, and please continue to post so others know this is doable !  Katie

    Also very important to pass along about the rechecks (scans) for our dx.  A bit different then for other dx's.  I'm sure you know about this site, but when I get a chance I like to pass the information along for others.  www.accrf.org and www.accoi.org fabulous information on what this dx is and doctor lists and tx's ect.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #4
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    nice report

    Kaydub,

    Congratulations on the 3 years.  Your new normal sounds very normal.

    Matt

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