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Back from Seeing my Surgeon!

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Apparently my local Hospitals review of last weeks scan was both correct and incorrect. I do have three new growths but they are not on the kidney. They are above the kidney and below the liver, they have a blood supply and in total are just over 2cm. They are not cysts! and they have grown since September! My Surgeon tells me this is rare, he has no previous experience of this. I just love it when Doctors say that to you!

I have an appointment for Boxing Day, 26th to see the Radiologist in Vannes. I am going to have yet another scan in preparation for three biopsies, these will be done on the 6th January, deep joy!

So I am going to have to be patient, not one of my better virtues! I will probably have no conclusive news until mid January.

Anyway! I am taking a day off from this tomorrow, I am just going to enjoy my Christmas:)

Merry Christmas to you all:)

Djinnie xx

Eims's picture
Eims
Posts: 409
Joined: Feb 2013

djinnie we are here for you xxx

izzycohen
Posts: 64
Joined: Aug 2013

Enjoy the holiday and your family.  We'll deal with these issues Thursday.  Thinking of you, Djinnie.  Merry Christmas.

 

 

Izzy

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

Wishing you a very Merry Christmas, Djinnie!  Kudos to you for not letting this steal your Christmas joy.  You are a strong woman and I admire you so much.  Will keep you in my prayers.

 

xoxo

Sindy

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

Well, poo!  I was hoping that the visit would result in " what the &/@# were they talking about?!  There's nothing there!"  Hang in there and as said above...we'll take care of it after Christmas.  In the meantime, have a wonderful holiday and know that you will be fine! Love and hugs.

I am alive
Posts: 218
Joined: Jul 2012

Jeesh. If it'snot one thing, it's another. Our lot in life. I really  admire your guts and determination not to let this cloud ruin your holidays. Until you know exactly what's going on try not to think about it much. (Piece of cake, right?) You'll put it out of your head tomorrow and then try again the next day and the next day, as much as you can. I know, that's a gargantuan feat. But we're here pulling for you! Merry Christmas & Happy, Healthy New Year!

Jojo61's picture
Jojo61
Posts: 353
Joined: Oct 2013

Enjoy your Christmas. I know that waiting is hard. Thinking about you!

Hugs

Jojo

foxhd's picture
foxhd
Posts: 1876
Joined: Oct 2011

those growths seem pretty small to biopsy. I'd tell them to just take the growths out. Tout suite. I've got some spare tupper ware containers so that you can keep all of your parts neatly stored away. If you are like me, you are not half the person you were years ago. ..Take a piece from here, another piece from there, a chunk from over here, a slab from down yonder...it gets to the point when people ask you where you are going the first response is " To pathology."  Janis Joplin recorded our theme song years ago with, "Take another piece of my heart now baby.." I understand that Djinnie in french means swiss cheese. Am I wrong? It's just more crap to go through. Right? Unless you also are planning a trip to Hawaii, january just plain sucks. Now you've got something to keep you occupied. Who says cancer isn't fun?

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

I agree with the Heavy Duty guy.. use one of the less invasive techniques or just cut them out and move forward.  If they are growing then they need to be annexed.. one way or another... they can do all the look see crap after they are removed..!

Ron

Limelife50's picture
Limelife50
Posts: 409
Joined: Nov 2011

Take em out then the pathologists can biopsy them to their hearts content

brea588's picture
brea588
Posts: 114
Joined: Jul 2012

Hope you had a wonderful Christmas day and enjoyed all of the festivities.  Now on the journey again with more scans , biopsies and as Fox said  something to do in January during the winter month.  Wishing you all the best and the best outcomes.  Thinking of you.

Jan4you's picture
Jan4you
Posts: 183
Joined: Oct 2013

sorry for all you are going through. I hope you were able to enjoy your Christmas somehow. Know that I will be thinking of you. Agree with the rest, get those critters out of there.

Let us know how you're doing, ok?

Hugs, Jan

mrs_blkjak's picture
mrs_blkjak
Posts: 87
Joined: Apr 2013

I hate having to be patient with medical stuff. I'm sorry you are going through this. 

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

I enjoyed my Christmas Day thanks! Hope you all did too! Boxing Day was not such a treat though! We had a long chat with the Radiologist who is scheduled to do the biopsy. He had been asked to study my previous scans by my Surgeon. It seems there are two growths, at a certain angle it looked like three. The larger growth is 2.4 cm, they are wedged between the kidney scar and the liver. Also I am now told that I  have problems with the lymph nodes in my chest, no one past that bit of info on before!

We discussed my concerns over having a biopsy, obviously my body has created a protective barrier around these growths for good reason. Perforating the capsule can cause spillage, why would I want to risk that!! They tell me they have to do this to find out what they are dealing with. Well! How many things could it be?  I am sure with a bit of logic we can narrow this down!.... The Doctor says that spillage is unlikely so there is no risk, well not to him maybe! so they will not budge on this procedure!

After burying my head in a bottle of red and a tin of Quality Street yesterday, it was decided that I was left with little choice. However! Since having a good old chat with myself in the bathroom mirror this morning, i've had a change of heart, of course I have a bloody choice! I am not sure exactly what the full extent of it is yet but I will have to find out!

As a side note, I had been trying to focus on anything but this over Christmas. We went last minute grocery shopping on Christmas Eve. I was dithering at the cheese counter so my husband grabbed the list and went off to get the veg. He soon returned saying " I have everything bar one, they are all out of these " pointing to the list I had written 1lb of small tumours, lol! Fortunately he had bought tomatoes instead! Can't fool the subconcious!

 

Djinnie xx

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Ah Dj... sounds like you are taking control...  but, where is the Oncoligist..?  If the nodes are involved, doesn;t that tell the tale..?  Glad you could put it all on the "shelf" for a bit and enjoy life...

Cheers..!!

Ron

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi Ron, That's the point we keep making, over here the Oncologist sits looking over the Surgeons shoulder! so the Surgeon runs everything by him and the team. I prefer to get the information from the horses mouth even if it is in French!

We are sorting out a game plan today, I intend to get another MRI and once I have the results circumnavigate this process to get to an Oncologist.

Djinnie x

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Oh I get it now... so the Oncologist gets to hide behind the Surgeon's knife..... booo...

Ron Cool

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

Djinnie, this just makes me sick to think how scary this must be for you. 

I think the advice you gave yourself in the mirror was excellent advice and I'm glad you are listening to your instincts.  You're right, how many things can this be?  If there were even the remote chance a biopsy could result in spillage, I personnally would opt out.  Postitively identifying it probably doesn't change the course of treatment so why risk it?  My oncologist recently told me of a case of spillage when a tumor ruptured during a neph.  He said the OR report indicated the patient had been flushed 15 times with saline prior to being closed up.  Sadly, she had wide spread in a short period of time and lost her battle.  Onc said they would never know if the burst tumor spread the cancer everywhere or if her cancer had just been that agressive.  Too risky in my opinion.

I hope your doctor's come up with a different game plan.  Having said that, we both know our doctors do these procedures over and over and most are very good at what they do.  They know the risk of spillage and the dangers of spillage.  Nothing comes without certain risk.  If you do have to have biopsy, chances are, you'll do beautifully.   Besides, the doctor did tell me spillage almost never happens. 

I'm sorry but, I had to laugh out loud at your 1lb of small tumors on your shopping list!  That's when you know you've got too much on your mind!  Try to relax...maybe a glass of red will help.  Unless ofcourse, you're having a procedure soon. 

Will be praying for you my friend! 

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hey Twinnie, thanks for the message! I have to say the whole thing has turned out to be a right pain in the proverbial!! I have completed the rounds talking to each of my Doctors and Surgeon but they tell me there is no other route. They won't operate without a biopsy as they need to be sure, they have agreed to do an MRI but it will be after the procedure. I am having the biopsy under a scanner, this will be my fifth scan in under a year.  We will be able to save on light bulbs at this rate! 

The biopsy is scheduled for next Monday, i thought I would be asleep but no such luck. They have described the procedure to me in great detail, so of course as you would expect, I feel so much better about it all now, NOT!!:(.....I have told my husband I am going away next week and to give me a call when it's over!

 

Djinnie xx

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

Tell me where and I'll meet you.  We'll run away for a few days and soak up some rays and vodka.  Wouldn't that be a hoot!!

Seriously though, I know the stress of all this has got to be taking it's toll on both you and the mister.  I suppose if the doctor's say you gotta have the biopsy then, you gotta have the biopsy.  What's a patient to do but what they're told by trusted professionals.  Key word being professionals.  I'm sure it'll go smoothly.  As for being awake, ARE THEY CRAZY?  Please tell me it's a needle biopsy.  

Sounds like you're in a 'hurry up and wait' state of mind.  Ready to be done with it, I'm sure.  I think sometimes the waiting is the hardest part.  If only we could pass the time on some beach somewhere...sigh Cool

Will be keeping you in my prayers, girl!  hugs

 

Sindy 

Eims's picture
Eims
Posts: 409
Joined: Feb 2013

Djinnie is it like a boob biopsy with ultrasound?

Eims x

 

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

Been there, done that.  Mine was a needle aspiration.  Granted, it turned in to an open biopsy (lumpectomy).  All of them are scary but none more so than those that are performed while wide awake.  Djinnie is strong tho, she'll do OK.

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Ah Ladies...  I am the best boob inspector there is..!!  Next time, just call me... no charge..!!  Tongue Out

Have a Happy Healthy New Year everyone..!!

Ron

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Said with feeling I'm sure! lol!....Ronnie what are you like!! I will definately make sure I have your number on speed dial??

Happy New Year to you too:)

 

Djinnie x

Eims's picture
Eims
Posts: 409
Joined: Feb 2013

Yeah me too twinnie!!! I reckon we should employ Ron for full time work lol x

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

I can't seem to get Conway Twitty out of my head...You Want A Man With A Slow Hand.  Thanks, Ron! 

tonib's picture
tonib
Posts: 33
Joined: Nov 2013

Hope all goes well Djinnie!

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Thank you ladies...!!  I sit here looking at all of your smiling faces and think.Ah... these gals are true fighters.. of Cancer that is..!!  Hope 2014 brings everyone clear scans and lots of smiles..!!!!

Cheers..!!

Ron Laughing

a_oaklee
Posts: 156
Joined: Nov 2013

Djinnie.  You said that basically the surgeon has control and the oncologist is secondary (basically).  In our case the frustrating aspect was that the oncologist had control and had to okay surgery for removal of the primary tumor.  We wanted that sucker out and went to a different medical center and ran into the same dynamics.  The oncologist and the oncology team had to give the OK that surgery could be done.  It's just so hard to get what you want.  If you went somewhere else, would they just yank the little suckers out? 

I'm thinking of you.  I'm impressed with your strength.  I'm going to go have a glass of wine in your honor.  Wish you were here!

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi a_oaklee,

Thanks for your comments. The system here in France is that your case goes before a board of specialists which include Oncologists. No treatment can be performed without being sanctioned by the board. While the Surgeons are able to contain your health issue you are under their care. If you get to the point that surgery is no longer helping you are transferred to an Oncologist. At the moment that's a comforting thought!

The French are very rigid, you can't override their systems. One good thing is you are treated very quickly here, unlike the UK, and my health care is covered at 100%. I am very fortunate to have this sort of health care, so even though it has it's frustrations I shouldn't complain. If I were to go to another Surgeon it would be the same outcome, biopsy first.

Djinnie x

danbren2's picture
danbren2
Posts: 174
Joined: May 2013

Dear Djinnie,

     I have often wonder why take the time to do the biopsy, if you can do a biopsy why not just remove the whole thing and get it out of the body! It seems to me that doing the biospy and then surgery is double the time and effort.  I am wishing you the very best news that it can be and that things go very smoothly and easy for you!  I wish we could skip all the anxiety and go directly to the reports, it would be so much easier on all of us! You have always been a rock to me Djinnie, with the best advice you could give.  I am now your rock, and wishing and praying for a great speedy report of "ALL IS OK"!

                                      Love and prayers for good health!

                                       Brenda

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Oh Brenda! your words just choked me up! That is so kind of you thankyou! I wish they would just remove and study the growths, it makes no sense to me either. There are dangers with this sort of biopsy that I am not comfortable with. I am doing my best to remain determined that all will be well, the determination ebbs and flows a bit! My husband always calls me a tough old biddie, so for once in our married life maybe I should listen to him! lol!

Take care:)

 

Djinnie xx

 

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

I am pretty sure that we all feed off of each other.. hearing good news gives us all strength.. and even when the news is not so good we all rally each other and thus again we all gain more strength...   We are our own family of sorts.. Smile

Ron - Been called a boob berfore, but never a boob inspector..!  Tongue Out

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

Ummmm, Ron......before we hire you in a full time position, we need to know if you have warm hands.

foxhd's picture
foxhd
Posts: 1876
Joined: Oct 2011

Ron had gone out xmas shopping. As he shopped, the sales girl came over and asked if she could help him. He explained that he wanted to buy some biker gloves for his girlfriend but didn't know her size. So the sales girl slipped her hands into his and asked,"Do her hands feel like these?" He said they did and as he was ready to buy them the salesgirl said, "And is there anything else that I can do for you?" He thought a moment and said, "Well, I was thinking about getting her a bra........

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hahaha! Good one Fox! I hope he had his Official Boob Inspectors ID with him!

 

Djinnie x

Frank302's picture
Frank302
Posts: 71
Joined: Feb 2013

I read the joke hoping for a good laugh and I can't think of anything that starts with bra except Brazil . So what was it Ron wanted ? Brazil nuts ? Brazilion vacation ? Brazilion hot wax ?

twinthings's picture
twinthings
Posts: 391
Joined: Jun 2013

bahahaha, fox, that's awesome! 

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

The Foxster comes through again.. thanks for the laugh..!

 

Ron Cool

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Bump..!!

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