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SORCE TRIAL PARTICIPANT WISHING TO SHARE EXPERIENCES

Alimac's picture
Alimac
Posts: 10
Joined: Dec 2013

Hi all,

I am currently on the SORCE trial at Addenbrookes in Cambridge. I was diagnosed with kidney cancer on 5th August 2012 as a 46 year old man and had the affected kidney removed approx 3 weeks later. It was checked and found to be stage 1 and grade 4. Due to the aggressive nature of it I was offered a place on the sorce trial, which I started on 5th November 2012. I am still on it and now on year  2 of 3. Loads of side effects and only a quarter dose as a result. Before I write any more it would be good to communicate with someone going through the same trial. I would be really pleased If someone could respond ?

Many thanks

Ali

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

Hi Ali

i particpated in this trial from September 2011. I was on drug for 12 months and had several side effects - hair loss, painful feet, diarahea, fatigue. If you read my bio it will tell more of my story.

good luck.

Sue

 

Alimac's picture
Alimac
Posts: 10
Joined: Dec 2013

Hi Sue,

Many thanks for replying. I will have a look at your bio as you suggest. 

Rehards

Ali

Alimac's picture
Alimac
Posts: 10
Joined: Dec 2013

Hi Sue, have just read your bio and really sorry to hear that there have been further problems. I sincerely hope you discover that the trial you are on works for you.

regards

Ali

parul
Posts: 24
Joined: Dec 2013

Hi ali sorry to hear abt your story .. wht is the cancer tht youbare dealing wih and the medication you are been using

Alimac's picture
Alimac
Posts: 10
Joined: Dec 2013

Hi Parul, 

Kidney cancer and on the sorafenib drug as part of the SORCE trial in the uk.

Regards

Ali