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Jan, thinking of you

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

Have not heard from you in a while.  How are you doing?  I hope you are tolerating your treatment without too many problems.  Sendings you a BIG cyber hug.  Please drop us a note when you can.  In peace and caring.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 658
Joined: Mar 2013

Thinking of you Jan and sending you good thoughts.

ConnieSW's picture
ConnieSW
Posts: 686
Joined: Jun 2012

Me too.  Write when you can

ConnieSW's picture
ConnieSW
Posts: 686
Joined: Jun 2012

stuttering finger

tattooedtxgirl's picture
tattooedtxgirl
Posts: 61
Joined: Sep 2013

Thinking of you!

 

best wishes and hugs <3

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Hi ladies,

I've been so busy with my treatments and just living life, don't have much else left in me.  Completed #3 treatment with carboplatin/doxil (#1 was carbo/taxotere but assay suggested change to doxil) and have then every 4 weeks.  It does lay me low with nausia symptoms and fatigue, but after 2 weeks I'm back to normal.  Doxil supposedly do NOT loose hair, but taxoere was already hit so hair gone.  But...my hair is starting to grow back...crazy!  Doc is recommending a PET in 2 weeks to see how the drugs are working, but the big supraclavicular node on neck is almost gone to the touch at least.  Working there, now hoping for node in stomach and 1 in chest.  He'll most likely at that juncture decide if 6 sessions is enough or add on a few more...argh!  I'm just over this and want my life back, but do know this journey must go forward and allow Western treatments do their thing.

Started my new natruopathic oncologist a few weeks ago, and loaded up with new diet -- gluten-free, no sugar, etc -- and many supplements.  This is the start and have hopes of one day relying on diet alone and very little need for all the supplements.  I love this way of thinking with treating the terrain and not just the spots with cancer.  Strong terrain means a good immune system to keep the disease away!!!!!!  I'm very optimiistic~

Hope everyone is doing well and has a wonderful Thanksgiving Day with friends and family!  

Thanks for checking in with me...I'll really try to post more often.

Jan

 

 

 

cheerful
Posts: 136
Joined: Apr 2011

Hi Jan:

 

  I also was wondering how you are doing.  I am glad to hear that you are about halfway done with your treatments. Hope you are doing as well as can be expected.

 

  Do keep us posted and let us know.

 

  I hope you have a wonderful Thanksgiving.  I will be celebrating with my husband and son and my close girlfriend and her family.  

  

  I hope everyone on the uterine board has a Wonderful Thanksgiving as well.

 

Warm Regards,

Cheerful a/k/a Jane

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

Glad you are able to continue living life.  Glad you are tolerating the Doxil pretty good.  I hope you are half way through this round of Chemo.  

I hope all your work to improve your terrain, really does the trick for you and you never have to go on chemo again.  May you have a very long life with NED.  Praying for good results on your next PET scan.

Is your daughters hair growing the same as yours?  Hope you were feeling good enough to enjoy a thanksgiving dinner.  In peace and caring.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 658
Joined: Mar 2013

Obviously, you have been in our hearts, and as you pointed out you have been a little busy.  Thanks for updating us and let us know how the new direction in your diet goes. 

DrienneB
Posts: 22
Joined: Aug 2013

So glad to hear you're doing well, Jan, and continuing to have your great, upbeat, willing-to-take-it-on attitude!

Hoping these are brief bumps in the road.

-j

 

RoseyR
Posts: 464
Joined: Feb 2011

 

Ladies,

 

Sorry Ive been away from the boards for awhile (job as full-time professor really consuming!), but want to report that Jan is doing pretty well.  She is struggling a bit to keep her weight up but also encouraged by latest scans showing shrinkage of her "hot spots": one in her lung has completely disappeared; one in her neck has shrunk to half its original size, and with a few more rounds of Doxil and new naturopathic treatment, she is hoping to be in great shape in a few months.

As always, she feels optimistic but is quite busy with her new nutritional regimen and relatives' inquiries--so temporarily is taking a break fron the boards.

I hope and assume she won't mind my brief and upbeat report to all of you.

As I was diagnosed three years ago with the same uterine cancer as Jan (MMMT, stage IB,), would also like to report that I remain well and am grateful for high-quality of life for the past three years since diagnosis.  (I avoid sugar like the plague, take curcumin three times a day, and try to eat only organic meats and raw goat or sheep cheese; try to get a lot of those cruciferous veggies in my diet as well since estrogen seems to fuel so many gynecological cancers.  Whether they have helped,, who knows?  But am feeling really good.

Like Jan, I've consulted with integrative and naturopathic doctors, preferring not to rely solely on oncological opinion.

Love you all!  (Ro, you're a warrioress; Dre, did you see my message about your gorgeous red haircolor a few months ago?)

More Soon,

RoseyR

 

 

.

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 658
Joined: Mar 2013

It is completely understandable to take a break and re-group ones own life. 

Such good progress for Jan and I pray it continues moving in that direction for her and all the warriors here.

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

I am glad that both you and Jan are doing well.  I was wondering about Jan, so I am glad to read your post.  Jan's last scan did give her good results.  Hope she is tolerating the Doxil without bad side effects.

Rosey glad you have had three years of " high quality life".  Glad all your hard work is paying off for you.  Thanks for keeping us updated.  In peace and caring.

ConnieSW's picture
ConnieSW
Posts: 686
Joined: Jun 2012

for the update.  I had been concerned regarding Jan's weight.  She is so small to begin with.  Glad to hear you are doing well.

I believe
Posts: 38
Joined: Oct 2012

Hi Jan,

Wanted to wish you all the luck and health for 2014 and hope you are doing well with the new rounds of Chemo.

Thanks a lot for your help and advices.

Take care

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I'm just passing thru and thought I'd stop and post.  All the treatments are going along as planned, had a change in drugs after the first round, come to find doxil now is a better fit vs. taxol which had in '09 along with carboplatin.  Hair was already falling out from taxol, so by time I started on doxil was too late to save the hair.  Doxil the hair will get "thinner", but not all fall out...argh!!!  Yes it's coming back, so a very nice site when I look in the mirror.

Did a 2nd PET scan a month ago, just to see how the drugs are working.  Three areas light up and all of them are better or completely gone.  Lymph on neck is 50% smaller,  chest node is completely gone, and abdominal area is .5  cm larger, but less intense.  All in all, oncologist is happy with the progress and at this juncture should have 3 more chemo's and be done by March....YAHOO!!!

Had my first consult with natruopath and after being on the new eating plan, and supplements for a good 5-6 weeks, the major trifecta (5) blood markers she follows for whole body terrain have all gone in the right direction, plus one is back to normal....another YAHOO!!!  Lots of good positive news to keep the old girl going here.  Down side, this damn doxil has just given me fits with my stomach and just not hungry, so the weight is coming off.  Doing better with naturopath guidance to add more good fats to the diet.  Also, the dry skin and rashes on the body are abundant, but just keep putting on  lots of cream thruout the day.  I do feel like one big grease ball with the creams, but without them, I'd be a dry mess.

Very happy I've made the change to this new naturopath as it has opened my eyes to the things in our environments and how they affect our health.  With no gluten and definitely no sugars (even watching the high glycemic fruits) and most fruits/veggies being organic, and the poultry/eggs/beef all from grass-fed and pastured (no vegegetarian fed either) animals, I feel better.....no more stomach cramping was dealing with prior to the recurrence.  Quite a lot to this way of eating, so it's a learning curve for me and little by little I'm making the correct changes.  Even have my hubbie and daughter making a few changes to their diets, but not as intense as mine.  Hey, at least they're trying to be healthier.

Life is good and as we all know, we're never prepared for the words "your cancer is back"....argh!  I've learned to continue to fight but with new eyes with the naturopath as the western treatments in my eyes aren't always the only way to kick this cancer out forever.  

Hope everyone has a safe and health start to 2014....I know mine will be great....I can feel it in my bones...all good~~~

Love to all,

Jan

 

 

 

 

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

You sound like things are going good for you.  So happy to hear that your PET gave you good results.  I have heard that Doxil can be hard  on your skin.  At least it does not sound like you have the blisters so many  talk about.  I hope the next three treatments continue to give you good results.

Happy you are pleased with your naturopath,too.  Those who previously have consulted with one have felt they too had positive results.  I am glad your stomach problems have resolved, too.  May you continue your journey to resume your dance with NED.  You are such a positive inspiration for all of us traveling with you.    In peace and caring.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

How have you been doing?  For sake of my not keeping up with this site and no time to read thru all the prior messges, let me know how life is for you.  You lounging on the beaches of beautiful, sunny Florida?  I'm so envious and as much as we'd love to go to this state, not good to be in the sun while on doxil...argh!

How's Rudy, Mary Ann's husband?  Memory serves me correctly, he was to have some surgery or procedure for potential cancer....never quite heard the latest on his situation.

I simply try to put one foot in front of the other and get on with life...not always easy, but I do it.  

 

Best to you my dear friend,

Jan

 

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

I am doing good.  I go back to the doctor on Jan 14.  I hope to get good results again.  Last  visit I had a 200 drop in my CA -125.  Of course it is still over 500..  Not sure why it dropped without chemo.   I hope the last report was not an error.  We enjoyed the holidays here in Florida.  No beach day today, as it is only 50 degrees and very windy.  I know you would love to have 50 in St. Louis.

We had a wonderful 25 day trip to Australia and New Zealand.  I finally got through all of our pictures.  It was nice reliving the trip as I went through all the pictures.  Tom takes a camera, too, so we had 3000 pictures between the two of us.  Of course a lot got deleted.

Rudy 's surgery on his kidney came back with no cancer.  So that was good news.  He also has a new lady friend which I am happy for him.  I messaged him but did not hear back from him, so I hope he is doing well.

Continue to take it one day at a time and take care of yourself.  Hope you continue to tolerate the Doxil well, and it continues to take care of that cancer.  In peace and caring.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 658
Joined: Mar 2013

Jan, as Ro said, you are quite the inspiration to many of us so hearing from you and the progress is great. 

Wishing you and all the ladies a healthy 2014!!

HUGS!

cheerful
Posts: 136
Joined: Apr 2011

Hi Jan:

 

  Happy New Year! Glad to hear that you are halfway through your treatments and that you will be finished in March - you have to be really happy about that. Also, happy to hear that where your cancer was found that everything is shrinking considerably - that is so good to hear.

 

 Sounds like you are really happy with your naturopath.

 

 I will continue to pray for you as you will be in my thoughts and prayers.  

 

 I wish you all the best with the remainder of your chemo treatments.

 

Love, 

Cheerful

a/k/a Jane

 

 

 

 

  

ConnieSW's picture
ConnieSW
Posts: 686
Joined: Jun 2012

I do think of you often and really admire how you are dealing with this.  Just mastering the diet must take so much effort.

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Dear Jan,

Though, as I wrote when a I sheepishly though happily received the 'all points search' which was put out for me, I have been lurking, and missed your research and well documented 'learnings'. Happy to see though 'stuff' returning and dealing with it isn't 'a walk in the park', you are getting a handle on it.

As one for whom NED seems not to be in the offing, I am interested in what alternative you are researching, learning and experiencing. Please keep us up to date, your sage comments are missed!

All the best,

Sara

Ro10's picture
Ro10
Posts: 1540
Joined: Jan 2009

I too am one that has never been NED, but I am still here 5 years after my diagnosis.  I continue to be thankful for every day ( and years) I have.  I try to find joy in every day.  Hope you continue to hang in there.  You remain in My prayers.  In peace and caring.

Fayard's picture
Fayard
Posts: 355
Joined: May 2011

Dear Jan,

I am so happy to hear treatment is working well. I want you to know that I think and pray for you every day.

PS: Before I got marry, I dated someone who had throat cancer, stage 4. He survived. It has been 7 years now. He had the strongest treatment of both, chemo and radiation. His neck and back burned as he had been in a fire. I took care of him during treatment and used Aloe plant for the burn, rush and dryness. I peeled the stalk and blended the inside, storage in a glass jar, and rubbed on his whole body every day as many times as I could. Today, no one can even tell he had radiation treatment.

Hugs and love, you friend Luisa

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

RYou are all such an inspiratio to me...never giving up on any of the sisters on this site....me included!  I'm such a good rooter for others and when we're down, tend to forget ourselves, but thankfully you beautiful lades have brought lots of smiling faces before me.  

My new diet is really good, but having been on it for only 2 months does take time to get used to.  I'm a very determined person, so even during the holidays when I slipped, I did get back and continue onward.  I believe so much in what we put in our bodies and our environments affect our health.  So much research out there, but many of it hidden behind the money hungry pharmaceutical co's....very sad!!  One area I'd definitely recommend everyone go in terms of diet -- NO SUGAR!!!!  Now this doesn't just mean table white sugar, but even the agave nectar and artificial sweeteners.  Basically these all increase the glycemic levels in our bodies and cancer thrives on sugar to grow...bingo!  I was sorta doing this before recurrence, but not really true to myself.  Also, follow the EWG.org dirty dozen list of foods which must be ORGANIC due to pesticides.  As well as watch the poultry and meats as they must be from grass fed, non-vegetarian fed animals.  The vegetarian feed given to these animals is GMO corn, soy and wheat.  I'd run whenever I see soy as there's so much unknown about this ingredient and I was heavily on soy supplements for a good 8 yrs prior to diagnosis in '09.  Lastly, don't forget stress...that's huge and we all know we've got it, but more about how we deal with it.  Learn to do yoga, meditation, etc, to calm our bodies as added stress gets the body functions all out of wack.

Don't want to over-extend my comments on diet and living, but if anyone has more interest in my new changes via the natruopath, plse send me a personal email and happy to converse there.  

RO, happy you're enjoying FL and feeling well.  You're one of the most determined women I've known and still kicking.  You truly are amazing and my idol....plse never give up and keep up that positive spirit...it's addictive.  Glad Rudy is fine as didn't know if it was cancer, but most likely surgery to rule it out....so very happy for him and a new companion.  We should all be able to enjoy life no matter where we are on the age chain.

Fayard, nice input about the friend and skin issues.  I've finally found some greasy cream called Bag Balm which has done the trick.  If I keep the skin very moist it's not bad, but when the itchies start, out comes the cream.  

 

Best to all you sisters...love,

Jan 

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