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Some Scary News, But Not Afraid!

danbren2's picture
danbren2
Posts: 189
Joined: May 2013

Hi Everyone,

     Sorry I have been out of the loop for a few days, but we just found out on Wednesday that my RCC has spread to the brain.  I have about a 1.5 centimeter tumor on my left side that was causing numbness in my right leg and arm, thought I was having a slow motion stroke, but turns out cat scan showed tumor instead, who would of thought, with just getting a good cat scan on Oct 18!! I was released from Georgetown University Hosiptal yesterday, with instructions to call Monday to set up brain surgery!  I have been put on steroids to help reduce the swelling in the brain to releive numbness in leg and arm, and I must say it is working pretty well, have more and more feeling coming back everyday.  I will be in hospital about 5 days after surgery and then will follow up with about 3 cyberknife radiation treatments.  And, from now on, I will also be getting MRI of the brain along with CT scan to make sure no more mets are trying to make a home in me.

     I have the greatest husband in the world, and the best family support and most important all of you.  We are looking forward to getting this behind us and enjoying the holidays!  Please put in a word of prayer for us, and remember, I am good, I am still able to have surgery to remove mets and have not even had to start on daily treatments, so I have a lot more of living to do before I even began to worry about what happens tomorrow! These thoughts have been made possible to me by all of the adivice that I have received from everyone on this network, I am so glad to have found all of you, just not happy about the way we have been brought together!

     Love you all, and I will let you know when surgery is scheduled as soon as I know!

                                               Love and prayers of good health!

                                                Brenda

Jojo61's picture
Jojo61
Posts: 383
Joined: Oct 2013

Hi Brenda,

I am so sorry that this has developed into this....especially with a great CT scan on October 18th. Goes to show you that we have to keep very aware of what our bodies are telling us.

I am so happy that you have a wonderful husband and family to support you. Even though these times are difficult, it can be a beautiful experience, just feeling the love around you.

My thoughts and prayers are with you that you will sail through this.

Keep us posted!

XO

Jojo

foxhd's picture
foxhd
Posts: 1923
Joined: Oct 2011

Brenda, your attitude seems awesome! Way to keep the positive spirit. You'll do what you have to do. Stay tough. You have a good support system. Another challenge from this crappy disease. We're all pulling for you.

rae_rae's picture
rae_rae
Posts: 267
Joined: Oct 2010

You have my prayers and you are going to sail through this!

 

GSRon's picture
GSRon
Posts: 1261
Joined: Jan 2013

Hi Brenda... sending prayers your way...   keep up the good attitude and fight..!

Ron

TillieSOK's picture
TillieSOK
Posts: 237
Joined: Jul 2013

Brenda, all of my thoughts and prayers are heading your way.  Keep your extraordinary attitude!  You will do great.  Prayers DO work.

hugs, sweetie.

 

tillie

izzycohen
Posts: 64
Joined: Aug 2013

Brenda,

That is a shock.  You have two of the necessary ingredients to prevail: an excellent spirit and strong support system.  A mischberach (prayer) will be said for you this week.

 

Izzy

cran1's picture
cran1
Posts: 128
Joined: Mar 2013

Thinking of you B. Stay strong.

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

duplicate

 

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

 

Brenda,

 

I haven’t been around here much lately, but John mentioned your latest report to me this morning, and I knew I had to get in here and let you know you’ll be in my thoughts and prayers as you attack this latest foe. But you’ve got this.  You have a great attitude, a wonderful and caring husband, a top knotch medical team, and a ton of friends and an ace support system who will be with you throughout, some physically and some virtually.  But either way, we’re here for you and engulfing you with positive thoughts and energy. You've got a great toolbox and John and I both are confident you'll make it work for you.

 

srbelle1
Posts: 123
Joined: Jul 2013

what an amazing and positive post in the face of frightening developments!

sarah

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Brenda, I'm blown away by your strength and positive attitude.  I'd like to think I could be as strong given the same circumstances, but honestly, I'm not sure I could be.  You truly are such an inspiration!  I am lifting you in prayer and sending good thoughts your way.  You WILL beat this!!

hugs to you,

Sindy

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

Brenda, you amaze me and inspire me!!  You have an amazing attitude and your positiveness will help you on this journey....sending lots of prayers your way to you and to all around you...god bless you lovely lady.

eims x

danbren2's picture
danbren2
Posts: 189
Joined: May 2013

Thank you for all the well wishes and all of your strength and prayers! I will try and have my husband post tomorrow after the surgery to let everyone know how it went.  I just want you all to know I have the utmost respest and love for every one of us fighting this hideious disease.  We have a lot more fighting to do, and I will speak to you all very soon!

                                                           Love and prayers of good health!

                                                            Brenda

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi Brenda, 

I have just read your post, sorry to hear you have to go through more surgery! You are one tough lady, you have a great positive attitude. We all need to give you a group (((hug))). You know we will be supporting you with the strength of our prayers tomorrow! Keep strong! All the best!

 

Djinnie xx

Jojo61's picture
Jojo61
Posts: 383
Joined: Oct 2013

We all will be thinking of you. I hope all goes very well for you! And we will be waiting for your husband's update.

God bless.

 

Jojo

a.oakley
Posts: 32
Joined: Oct 2012

Brenda,  You will be in my thoughts and prayers tomorrow.  I am truly impressed by your strength and attitude.

foxhd's picture
foxhd
Posts: 1923
Joined: Oct 2011

Brenda! You're a tough chick. You've made that clear. We look forward to your return to posting.

Jojo61's picture
Jojo61
Posts: 383
Joined: Oct 2013

I've been thinking about you a lot, Brenda. I hope things went well for you.

Looking forward to hearing from you soon!

God bless!

XO

angec's picture
angec
Posts: 622
Joined: Mar 2012

Brenda, love and hugs coming your way!  That met will be taken care of soon and you will be back on track.  I love the strength you display, it is VERY encouraging!  Keep moving straight ahead and keep up the positive attitude!  Will be praying for you and your family! 

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

...tonight, Brenda.  Hoping surgery was quick & easy, and that you're starting the healing process.   You will continue to be in my thoughts & prayers -- will be anxiously waiting for an update from your Hubby!!

I am alive
Posts: 221
Joined: Jul 2012

Brenda, I guesS by now you've had the surgery......or are darn close to it. I sense light all around you. The good news is they found the met early and took care of it quickly. Here's hoping your recovery will be just as quick! I think attitude is hugely important and you've got that covered. After your hospital stay you'll be on cruise control, the radiation a blip on the radar.High five, sister! My thoughts and prayers are with you.

Galrim's picture
Galrim
Posts: 278
Joined: Apr 2013

I would write that you should try to keep the spirits high, but as always you do that excellently without needing encouragement to do so :-)

Bumpy road ahead, but Im sure you will manage.

/G

danbren2's picture
danbren2
Posts: 189
Joined: May 2013

Hi Everyone,

     I am back and feeling like a million dollars! Everything went well they were able to get it all and hopefully, no more mets to the brain! Hoping to go back to work next week, of course I have the greatest caregiver in the world, my husband, and most important my fantastic supporters, you guys! Thanks for being there, and I am getting better by the second!

                         Love and prayers of good health to us all!!

                          Brenda

srbelle1
Posts: 123
Joined: Jul 2013

Wonderful news! Have been thinking of you. Your doctors are clearly top-notch since no time was wasted. Great docs, amazing positive attitude and a great husband...

sarah

srbelle1
Posts: 123
Joined: Jul 2013

Wonderful news! Have been thinking of you. Your doctors are clearly top-notch since no time was wasted. Great docs, amazing positive attitude and a great husband...

sarah

angec's picture
angec
Posts: 622
Joined: Mar 2012

WHOO HOO! Glad it went well and you are doing great! What a remarkable person you are! Your attitude should be bottled! You are a good example for me! Take care of yourself and don't over do it! ;)  Oh, do they give you meds now that you had a brain met? Is it Avastin or something? I thought i read that they usually add something to treatment!  Love and hugs!

Rosie5511's picture
Rosie5511
Posts: 6
Joined: Sep 2013

Just read your post, I am new here and new with my diagnosis, not had my first follow up visit after surgery scheduled for Feb.  I also have a great support system but fear sometimes stops me in my tracks.  I have been on this journey since August and know that I will meet people like you brave and postive that will lift me when I fall, thank you for your bravery.   

elpasorudy's picture
elpasorudy
Posts: 78
Joined: Jan 2013

Brenda,

Glad to hear about your good news. Amazing.

foxhd's picture
foxhd
Posts: 1923
Joined: Oct 2011

Did I mention AWESOME?! Been worried. Nice to hear you did well. Keep it up.

Jojo61's picture
Jojo61
Posts: 383
Joined: Oct 2013

Oh so happy to hear it all went well. I have been thinking about you SO much. You do have a great attitude and you do us proud!

 

Take care and God Bless!

XO

Jojo

I am alive
Posts: 221
Joined: Jul 2012

back to work already?! Isn't it amazing? have a GREAT Thanksgiving!!!

danbren2's picture
danbren2
Posts: 189
Joined: May 2013

Hi Everyone,

I will be having cyber radation to help make sure mets are no longer in brain.  Tomorrow going for a full body MRI and hoping for no surprises.  I will be having 3 back to back cyberknife radiation treatments, but there will be no other meds at this time.  Doc says you can't treat what is not there.  I had just graduated to every 6 months tests, will now be going back to every 3 months.  I am very lucky I do not have to start meds yet.  If they can get it with surgery that is the best way! I am so happy to be here with my family for the holidays!  Been fighting the fight for 3 years and I will not go out easy, got to much love for life!  Love to you all and Happy Thanksgiving!

                                                  Love and prayers for good health to us all!

                                                    Brenda

a_oaklee
Posts: 169
Joined: Nov 2013

Brenda!  You are an inspiration!  I'm so happy that you are doing okay.  The cyberknife will be a breeze.  Enjoy Thanksgiving. 

donna_lee's picture
donna_lee
Posts: 407
Joined: Feb 2009

Bringing you good wishes, good luck, and a stocking full of health.  You have enough great attituded to tell the bad old Grinch to get lost and just have him cut out of your life for good.

Prayers to you both.

Donna

Jojo61's picture
Jojo61
Posts: 383
Joined: Oct 2013

Hi Brenda!

Glad that they are being thorough. I love your attitude - it has carried you through your challenges - and will continue to do so.

Enjoy your time with your family and Happy Thanksgiving!!

 

:)

Jojo

cran1's picture
cran1
Posts: 128
Joined: Mar 2013

Great news!!

foxhd's picture
foxhd
Posts: 1923
Joined: Oct 2011

Glad you are doing well, Brenda. you said something interesting as I have thought about this often. I guess you have not ben on any meds. I have had infusions for nivolumab and zometa. (almost forgot IL-2) But nothing oral. I haven't much considered taking an oral. We'll see. Get strong.

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hey Brenda, I am so happy to hear the op went well! All the best with the MRI and radiation treatment. 

Have a great Thanksgiving with that wonderful family of yours:)

 

Djinnie x

 

TillieSOK's picture
TillieSOK
Posts: 237
Joined: Jul 2013

Absolutely excellent news!!  I couldn't be happier for you!  And to be home with your family for Thanksgiving knowing that sucker is outta there HAS to feel great!!  You are my poster girl for excellent attitude!

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