CSN Login
Members Online: 7

Stage 3c peritoneal cancer

Robyn Angela
Posts: 8
Joined: Oct 2013

Hi everyone I just joined you all today and need someone to talk to! 

ajb1963's picture
ajb1963
Posts: 1
Joined: Oct 2013

Hi, Robyn!  I just joined today, my mom was diagnosed last week with primary peritoneal cancer, stage III.  There is not a lot of info out there, so it is scary.  Keep the faith!

Best Friend
Posts: 222
Joined: May 2011

Hang in there. Its definitely not a normal cancer. It takes alot of research and faith. I think i could be helpful a tad bit so ask away. my mom was diagnosed 4c ppc in 2011. She just got done her last round of treatments at the end of november. right now she's done. she is saving her catscan and blood tests till after the holidays. Just hang in there. I always was so sad. I used to have the worst time holding in the sadness. But i got use to it and came on here alot. its very nice to be able to talk to everyone.

Take care.

Nflinchum
Posts: 74
Joined: Jun 2012

Hi Robyn I will be more than happy to talk to you.

nadine

Robyn Angela
Posts: 8
Joined: Oct 2013

I wish you were here in my lounge room!,

 

PatsieD
Posts: 100
Joined: Jun 2012

Hi Robyn.  

Im here. Love 

Patsie

JulieBelle's picture
JulieBelle
Posts: 61
Joined: Jul 2013

Hi Robyn,  Im here too.  Stage 4 PPC diagnosed 2years ago.

Julie

seatown's picture
seatown
Posts: 239
Joined: Sep 2012

Hello --

I too have been diagnosed with primary peritoneal cancer, Stage IIIc or Stage IV, depending on whom you talk to and when. My diagnosis was in July 2012. Since then, I've been on chemo (Taxol, Carboplatin & now Avastin) almost continuously, except for a couple of months at the beginning of 2013. Also had surgery in Feb. 2013, from which 3 of 6 biopsies came back positive after initial 6 mos of chemo. The good news: I've felt well almost all the time, have responded well to chemo, and as of Sept. 2013 have been declared N.E.D. -- NO EVIDENCE OF DISEASE! Am hoping that will continue, and am hoping for only the best for you.

FYI, since diagnosis I've been writing about my illness  at www.CaringBridge.org/visit/CaroleSeaton  Sometimes the pages there don't load exactly right, but you'll get the idea.

All best wishes,

Carole 

Robyn Angela
Posts: 8
Joined: Oct 2013

Hi carol! I'm so happy for you! That is wonderful news. I just finished chemo after 6 rounds of carb/taxol and have been going well with the treatment. My ca125 began at 468 and gradually dropped throughout the chemo. I am feeling really sad at the moment because after seeing my oncologist today ( 2 weeks after last and final chemo) my ca125 has risen to 20. She said not to worry as long as it remains under 35!. That still doesn't give me hope. I feel really depressed about this and was hoping to have a happy Christmas and get down to single digits!. I'm finding it really hard to stay positive now. Why does it rise so much? I've heard of it going up a couple of digits but not this much and only within 2 weeks? Sorry about my sob story but I'm really happy for you. I want to be a survivor!!!!!

seatown's picture
seatown
Posts: 239
Joined: Sep 2012

Hi, Robyn --

My oncologist also always says the same thing -- "But it's still in the normal range." Unfortunately he can't say that any more. The lowest my  CA 125 ever got was 15, after being approx. 2800 upon diagnosis. When I saw my surgeon in Sept., CA 125 had gone up a few points & I was stewing then. He too said, "Don't worry until it doubles, & then doubles again." Unfortunately I am now approaching that state. My CA as measured on Thurs. 12/19 is now 44, & the surgeon wants to see me ASAP -- which as it turns out, won't be until the day after New Year's. I'm hoping for the best but prepared to hear bad news. Meanwhile -- don't you worry, you still have plenty of space to go before YOUR CA 125 is out of the normal range! Please have a happy Christmas.

Robyn Angela
Posts: 8
Joined: Oct 2013

Happy new year! And remain that way

Nflinchum
Posts: 74
Joined: Jun 2012

Hi Julie,

we must have been diagnoised about the same time. I am stage 4 PPC and it will be 2 years dec. 29th. It's been a long 2 years but I am thankful to be alive. Take care!

JulieBelle's picture
JulieBelle
Posts: 61
Joined: Jul 2013

I got the news December 7th 2011 so almost my 2 year anniversary.  Not sure how to mark it!   Might even crack a bottle of champagne to celebrate still being here!     Yes a big two years and how life has changed!  I certainly appreciate the little things a lot more, wish I still had my fitness but on the whole feel I'm doing OK.   Starting a whole new year and seeing an additional Onc who is doing some interesting work I am told so hoping that will bring something positive onto my horizon.  

Wish you well.   Julie 

millermom
Posts: 3
Joined: Dec 2013

Hi I to was diag with Peritoneal cancer/ Ovarian Primary 3c and am currently on Carbo/ Taxol for 18 weeks...7down 11 to go and seem to be tolerating it with some sucess.  It is a truly scary thing but with constant positive thoughts we can all be sucess stories... I have to believe that...My CA125 at onset was 8000 and after an 8hr surgery and 7 treatments was just 900...still a way to go but it's on the downside and it works for me...I would love to chat with anyone at any time , please feel free to communicate...And good luck to all...

Nannylue
Posts: 3
Joined: Jun 2011

HELLO EVERYONE, i AM NEW AS OF TODAY RO THIS SITE, i WAS DIAGNOSED IN eEB 2008 AND MY ca 125 WAS 21

AFTER MY CHEMO TREATMENTS THE ca125 STAYED BETWEEN  5-8 FOR ALMOST 5 YEARS AND THEN STARTED TO 

RISE SLOWLY, IT IS NOW 41, HAD  pet-ct scan 2 DAYS AGO NO RESULTS YET BUT i AM SO SCARED BECAUSE

THE oNCOLOGISTS IS PRETTY SURE IT IS ACTIVE AGAIN,i AM HOPEING AND PRAYING FOR THE BEST, MY BEST

TO ALL OF YOU.

Robyn Angela
Posts: 8
Joined: Oct 2013

Hi I just read your post and was just wondering what stage your cancer is? Your ca125 seems to be relatively low! Hang in there and try to stay positive. I know that's easier said than done! Your ca125 looks in the normal zone so don't panic too much. Mine is going up again after it was 9 in May and now tripled! Not much we can do but eat healthy stay positive and surround ourselves with positive people and cherish what we have❤️

Take care and let's keep in touchxx

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network