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Scan results- Clean!!

izzycohen
Posts: 64
Joined: Aug 2013

We met with the surgeon this morning and got the results of the first CT scan since surgery.  I got an "all clear" on the scan!!  I think I'll splurge and have a glass of wine tonight.

Many thanks for all of your prayers and well wishes.  I cannot tell how much they are appreciated.  You are all wonderful and supportive.  I vow to do my level best at being as comforting and supportive to fellow "club members" as you have been for me.

The doctor feels I am a candidate to participate in a clinical trial called "Everest".  My understanding is that it is a drug designed to prevent a recurrence of cancer.  Of course I won't know if I'm actually taking the drug or the placebo.  I will meet with someone in the next few weeks.

 

Izzy

icemantoo's picture
icemantoo
Posts: 1452
Joined: Jan 2010

Izzy,

 

 

Mazel Tov

 

Icemantoo

izzycohen
Posts: 64
Joined: Aug 2013

Iceman,

clue me in.  What does "NEDS" mean?  I've seen the term several times on this forum.  I think it refers to a clean scan.

 

thanks for the Mazel Tov.

 

Izzy

todd121
Posts: 495
Joined: Dec 2012

Glad to hear you're all good.

I'm in that study. I'm finishing my second 18 week period next week. I think I have 1 more to go.

There's at least one other poster here who has been in that study and completed it.

Best of luck to you.

Todd

todd121
Posts: 495
Joined: Dec 2012

By the way, I read your pathology report on your bio page, and I really don't understand it. I've never heard a staging been given with 1, 2 and 3 all used. Could you have a closer look and let me know if it was copied correctly? For example, you can't be Stage 1 and Stage 2, because the only difference between these stages is the size of the tumor. (more or less than 7cm). And if any involvement in blood vessels is involved, that makes you Stage 3. Your pathology said something about "isolated foci of stage 3". What does that mean? Is it possible you meant to use the word "grade" instead of "stage"?

Todd

izzycohen
Posts: 64
Joined: Aug 2013

Todd,

I may have misused the term "stage".  I re-read the pathology report.  It reads: "The majority of the tumor is Grade 1 to focally Grade 2.  However, several small tumor foci show Grade 3". 

Djinnie's picture
Djinnie
Posts: 751
Joined: Apr 2013

Congratulations Izzy! It's a good feeling isn't it! 

 

Djinnie

foxhd's picture
foxhd
Posts: 1855
Joined: Oct 2011

Great to hear. I believe in the clinical studies. You willl be monitored closely and if even on the placebo, they will be on top of any changes. However, I would do whatever to be in a study without a placebo. Take care of youself first.

izzycohen
Posts: 64
Joined: Aug 2013

I  most likely will participate.  I spoke with a Doctor friend at Shul last night.  He feels that it is a very good thing to participate.  I feel it will be an opportunity to contribute  in the fight against cancer.  It appears there will be personal benefits also.

Eims's picture
Eims
Posts: 409
Joined: Feb 2013

yaaaaaaaaaaaaaay Izzy thats great news......and djinnie nice to see you, to see you nice!!!!!  ah ya gotta love brucie Smile

Djinnie's picture
Djinnie
Posts: 751
Joined: Apr 2013

Nice one Eims!!! I thought I'd give the dog a rest, he was getting tired of holding that bone!

 

Djinnie x

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

That glass of wine wine sounds well deserved for you and your wife. Congratulations!

izzycohen
Posts: 64
Joined: Aug 2013

Alice,

That glass of wine turned out to be a beer.  A "Wisconsin Amber".  It was the best beer I ever had!

 

 

Miashelle1's picture
Miashelle1
Posts: 40
Joined: Aug 2013

Congratulations...so pleased for you xxx

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

Congratulations!  Mine are next Thursday.

izzycohen
Posts: 64
Joined: Aug 2013

Praying that your scans are clear.

 

Izzy

izzycohen
Posts: 64
Joined: Aug 2013

I hope things are going well for you.

 

Izzy

cran1's picture
cran1
Posts: 126
Joined: Mar 2013

Congrats!

Alehan's picture
Alehan
Posts: 24
Joined: Oct 2013

Great news! :)

danbren2's picture
danbren2
Posts: 166
Joined: May 2013

So happy for you Izzy! It's a great feeling for all of us when one of us comes back clear!

                                      Love and prayers for continued good health!

                                       Brenda

todd121
Posts: 495
Joined: Dec 2012

By the way, not to be picky, but just trying to help with accuracy.

Everolimus was not designed to prevent recurrence of cancer. In fact, it wasn't designed to be a cancer drug at all, at least to my understanding. It was first used and is still mostly used to prevent rejection of transplanted organs like kidneys and hearts. I can't say how or why they decided to try it on kidney cancer, but that came later. It's currently only FDA approved as a kidney cancer treatment after failure of some other drugs like Sutent. It is used for some other cancer (I don't remember which one) and it is also used in some stints to keep blood clots from forming in the stints.

They don't know if it will prevent kidney cancer. That's the purpose of the Everest study: to see if it might delay or prevent recurrence.

Todd

NanoSecond's picture
NanoSecond
Posts: 503
Joined: Oct 2012

Hi Todd.  The mTOR inhibitors all play a key regulatory role in immune response.  That is why they initially were (and still are) employed in transplate operations.  But do keep in mind that this means they may be immune suppressive depending on the circumstance.

I am not sure if I sent this to you once before or not.  It's a heads up that you might want to discuss with your oncologist in case he was unaware of it:

http://annonc.oxfordjournals.org/content/early/2013/06/23/annonc.mdt233.abstract

You may have to wait a bit for it to load.  It's worth the wait.

todd121
Posts: 495
Joined: Dec 2012

Thanks. I've printed it out and I'll hand a copy to my oncologist tomorrow.

I went back and looked at the list of possible adverse reactions, and I do see a 3% occurrence of renal failure listed and there's a 16% higher incidence of increased creatinine than with placebo.

They are taking blood and monitoring every 6 weeks (creatinine, GFR, lipids, blood sugar, etc). I suppose that's why. My creatinine was up slightly last time around and I'm hoping it's same or reduced tomorrow. I'm going to make sure to drink plenty of water this time. I have in the past, but I did not this past time.

Todd

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