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Strength and Humor, Alexandra

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Dear Alexandra

I just want to say that I hold you close in my heart and send you hope and huge hugs.

Your strength and your humor will see you through.

I am here for you, we are all here for you..

(((Hugs)))

Lisha

lovesanimals's picture
lovesanimals
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Joined: Sep 2011

I echo what Lisha said.  And it's good to hear from you too, Lisha.

Kelly

Alexandra's picture
Alexandra
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Joined: Jul 2012

Dear Lisha and Kelly - I can't express enough how much your kind wishes and on-going support mean to me. I love you guys!

Stay strong and feel great,

XOXO,

Alexandra

poopergirl14052's picture
poopergirl14052
Posts: 1155
Joined: Nov 2010

feel the same way. :)....val

wholfmeister's picture
wholfmeister
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Joined: Dec 2012

Power through this one, friend!

Alexandra's picture
Alexandra
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You are all very kind. I'm studying for my biopsy tomorrow. Can't break that expensive MRI machine. Taking all above and below the belt piercings out. Embarassed  

scatsm's picture
scatsm
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Joined: Apr 2013

Thinking of you and hoping for good results!

kikz's picture
kikz
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Joined: Jun 2010

You will be in my thoughts and prayers.

Karen

PS:  Those piercings sound intriguing!

Alexandra's picture
Alexandra
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Joined: Jul 2012

I'll be OK. My radiologist is the best in Canada.

Free Mammogram photo mammogram-scam.jpg 

kikz's picture
kikz
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That's not him!  LOL

lovesanimals's picture
lovesanimals
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Very creative guy!  Don't think I would trust his "equipment" though! Laughing

Kelly

scatsm's picture
scatsm
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Joined: Apr 2013

I am laughing out loud....

Hearty Pioneer's picture
Hearty Pioneer
Posts: 128
Joined: Apr 2013

Hope the procedure goes well tomorrow and you have negative results.

Love the mamogram picture. You have such a great sense of humor!

Alexandra's picture
Alexandra
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I bet Marquis de Sade performed MRI-guided breast biopsies in his dungeon. If he didn't - he's was an amateur.

I spent 2 hrs on my stomach with boobs hanging through 2 holes and locked in a vice, metal bar digging into my rib-cage, being rolled in and out of the giant loud magnet, core-needles drilling and sucking out flesh on both sides. Towards the end I was whining and whimpering "let me out of here". When I finally emerged, my boobs were red and squeeshed like pancakes, bleeding from 2 incisions, sweat dripping, mascara running, oh I was a sight for sore eyes, which didn't stop me from flirting with a nurse. I was told to apply constant pressure at home; I can't press on my boobs and type at the same time; called all my male friends for a favor, so far - no takers. What a drag it is getting old... Tune in for the results on Oct. 1st. 

    

      

ConnieSW's picture
ConnieSW
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Well thank goodness that's done.  Hope I never have to find out what it's like myself.  I'm perfectly satisfied with your discription.  Poor boobs.

kikz's picture
kikz
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Joined: Jun 2010

I love how you deal with these tough situations with humor.  I do too.  Sometimes people don't get it but that's their problema.  I hope you feel better soon.  I hope your pancakes turn back to melons.

Karen

scatsm's picture
scatsm
Posts: 244
Joined: Apr 2013

here's hoping for a good outcome next week. Your description made me laugh...it wasn't all that bad, was it? My standards must be very low....compared to other procedures I've had, it didn't seem too bad. One good thing about having had breast cancer is I never have to have another mammogram or breast MRI ever again...it's the little things!

Alexandra's picture
Alexandra
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I had a few surgeries in my lifetime (appendectomy, hysterectomy, abdominoplasty, IP port insertion w/out sedation), 2 car accidents (broken arm, broken knees, broken ribs, crack in the forehead), several Law & Order SVU-type encounters in my youth, 24 hr+ dry labor with episiotomy w/out epidural, chemo without a port and yet the biopsy today takes the cake. If I never see the motherloving MRI machine again, I want a mastectomy.

What procedures were worse? I need to know to stay away from them. 

Drinking Baileys Irish Cream makes everything better... Oh yeh!

scatsm's picture
scatsm
Posts: 244
Joined: Apr 2013

worse procedures: total knee replacement, regular MRI (scared the crap out of me, had to stop and wait to get someone to prescribe an ativan after which I thankfully fell asleep), total abdominal hysterectomy. Those were the very worst...you've already had the TAH so you're good. Stay away from the knee replacement...ouch! And enjoy your Baileys!!

Alexandra's picture
Alexandra
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I would've taken more, but I had to drive back. Didn't do dick anything for me. It's coffee's fault.

I need both knee replacements. Since car accident in 1998 I can't kneel. Puts a cramp on blow- my love life. Embarassed

I'm pi$$ very drunk and probably should stay away from the board to maintain my unspoiled lady-like image.

 

lovesanimals's picture
lovesanimals
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You've been through the wringer in your short lifetime!  Amongst all of us, I'll bet we're missing several hunded body parts and internal organs!

Let us know of course when you get the MRI results. 

Kelly

debrajo's picture
debrajo
Posts: 770
Joined: Sep 2011

After all you went through the guy with the boob-box looks like a much better deal!  Sooo sorry for you!  If you have MY kind of luck the results on Oct 1 will say"undetermined and needs to be repeated!  Next time[? ] take the Baileys BEFORE you go...that's why GOD invented Cabs!

JulieBelle's picture
JulieBelle
Posts: 61
Joined: Jul 2013

Sending u extra strength and positivity.   Keep up the laughs.   It is such great medicine for all of us. 

Julie x

Hearty Pioneer's picture
Hearty Pioneer
Posts: 128
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Alex,

Sorry you have had to endure so much.  Makes you a true survivor. Take care of you.  Hope Oct 1 brings a negative result!

GSRon's picture
GSRon
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Joined: Jan 2013

I see there is a sense of humor over here as well...  First. I must apologize (sort of) for sticking my nose in here... (cause I don't belong here).  but today I found out one of my long lost cousins is fighting the big "O" - Cancer that is... I will try to point her your way...  I know you will welcome her with open arms...

Be Well All..!

Ron - running back to the Kidney forum where I belong...  :)

Alexandra's picture
Alexandra
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Joined: Jul 2012

Sorry about your cousin's cancer. She will definitely find support on this board. As you can see we're having all kinds of fun. And ladies are very nice.

I liked your pic at the IOM Yanks tent and your awesome bike.

 

 

GSRon's picture
GSRon
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Thanks Alexandra..!  Yes I sort of knew the Ladies would play nice..!  But it is still a tad awkward that I am in da wimmen's world...   But I see that the grass is no greener here...  Geeesh..  Just hope that someone finds a cure for the Crud (Cancer) soon...  FYI, I posted a link to a lecture by Dr Watson about curing the incurable Cancers...  Heck I will post it here too...  it gives good info and of course hope..

Yes I got one Cuz with Ovarian, one with Thyroid, and the Cuz with the thyorid has a son with some weird Kidney Cancer... geesh..   Y

http://www.youtube.com/watch?v=6qiyOqy2to8

Oh yes, glad you liked my pics...  I must admit the pics here are (overall) better than the ones in the Kidney group... heh..  :)

Be Well All..!!!

Ron

lovesanimals's picture
lovesanimals
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Joined: Sep 2011

And thanks for the information.  As Alexandra said, you are welcome here anytime with the ladies.  Unfortunately, we are all members of the same big "club".  Wishing you and your extended family the best.

Kelly

Rosamond M
Posts: 86
Joined: Apr 2013

 

Our dear Alexandra you've been through enough

I'd just like to say you're pretty damn tough!

We know what it's like to be prodded and squeezed

Because we all share this nasty disease.

So please when you finally receive that report

Remember we're here with affectionate support.

foxhd's picture
foxhd
Posts: 1910
Joined: Oct 2011

Just to let you ladies know. Alex visits and supports us on other boards too. We all wish her the best. Sometimes it is the closest we get to someone talking dirty to us. Sort of like 1-900- love 'em hanging. Good luck Alexandra! We love you!

Alexandra's picture
Alexandra
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Many thanks to Connie, Debra, Julie, Rosamond the poet. Oh my dear cyber-boyfriend Foxy, I really need to clean up my language and sexual innuendo before your BP goes up. Embarassed 

Yesterday I found out that my CA125 jumped from 6 to 60 in one month, and we all here know what that means. I'm looking at 4 to 6 rounds of Carboplatin before I could get into the 50 PARP / 50 placebo trial, if they are still recruiting. Avastin has not been approved in Canada yet and is out of reach.

If breast biopsy comes back positive, I will be disqualified from any clinical trials. I am not a happy camper, actually right now I'm a very angry and frustrated camper.

But all the kindness and support here on CSN makes me feel so much better.

debrajo's picture
debrajo
Posts: 770
Joined: Sep 2011

Damn Alexandra!  That is so not right!  There  should be a law that once you go through all the crap you have been through there would be NO WAY IN HELL this stuff could come back!  When does all the testing start? I'm so frustrated for you, I can hardly speak{write}!  You will be fine....you have attitude!  Debra

scatsm's picture
scatsm
Posts: 244
Joined: Apr 2013

I hate to hear that...no wonder you feel angry.  I feel angry that you have to go through this. We can all relate.

When I was diagnosed with breast cancer after ovarian, I was angry too. After a while, it dissipated but at the beginning I felt marked, like this was a direct hit against me. Now I realize that it was just BRCA doing its thing. Hopefully, you won't have to deal with the breast cancer twist at all. The ovarian recurrence is scary enough, but you will come out if it as strong as ever. I hope that you will feel free to share your pain as well as your good humor. We all have dark days and all are scared at some points on this journey...please let us be there for you. You have made us laugh a lot and I'm grateful for that. Let us give back to you!!

Sending positive, healing thoughts,

Susan

ConnieSW's picture
ConnieSW
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S***!

 

( I rarely swear so my response is very indictve on how upset I am for you.)

GSRon's picture
GSRon
Posts: 1247
Joined: Jan 2013

Hi All...  OK, I just got back from a 2 day trip to Lost Angeles..  My 82 yr old Aunt passed away... blood clot and heart issues...  BUT, she twice had the dreaded Breast Cancer and beat it..!  Her Breast Cancer did not do her in...!  She was my favorite Aunt, and seeing her adult kids and their kids made me smile, even though...well you know...  I wish you all well...  And da Fox Man is right.. We all love Ms Alex on the other board..!  I will go now.. otherwise I might be accused of trolling here... :)

Ron

ConnieSW's picture
ConnieSW
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You are welcome any time.  I started following your board because of the husband of one of our ladies.  Now I feel a need to keep track of all of you over there.

GSRon's picture
GSRon
Posts: 1247
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Thanks Connie..!  You know I do not need much encouragement to be here among all you Ladies..!   Sadly, the more we all look around, the more people we see fighting this crud..

Be Well All..!

Ron

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Yes - you're comfortable in this milieu aren't you Ron!

Not so me -- far too shy.  However, I enjoy the strength and humour displayed here where Alex's attitude is so contagious.  There does seem to be a bond between our respective forums and perhaps that's mediated by Alex as much as by anything else!

Sorry for your latest loss Ron and I join you and the splendid ladies over here in hoping for the very best news possible from Alex - she's well overdue the breaks that this unrelenting malady is so reluctant to allow us! Be well folks, everywhere.

Alexandra's picture
Alexandra
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I am so glad to see you here. You, Ron, Fox and anyone else from RCC board are very welcome. No need to be shy, we gyno gals only have pyjama parties and tickle fight every so often. In the words of good old Karl Marx: Survivors of the World, Unite!

 

kikz's picture
kikz
Posts: 1270
Joined: Jun 2010

likes to test our strength doesn't it?   I am so sorry you have to face it again amidst the other health issues.  I agree that once we have fought off the beast we should be granted immunity from it for life.  You are in my thoughts and prayers as you and my other dear sisters on this board always are.  Keep strong Alexandra and keep your sense of humor as I know you will.

Love,                                                                                                                                                                                                                                                                        

Karen

 

ConnieSW's picture
ConnieSW
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I've been keeping my eye on you too.  Come visit on the uterine board.  That's where I belong but I follow the ovarian gals because my type of uterine cancer acts like ovarian.

 

Its a beautiful day for golf here in upstate NY.  

Alexandra's picture
Alexandra
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Breast biopsy results came in minutes before DR's appointment, not yet reviewed by the surgeon.

"Ductal hyperplasia, dense stromal fibrosis, scattered foci of intraductal proliferation with cytologic atypia. Rare calcifications seen is benign ducts"

I don't know WTF it means, but the DR said "it's not normal, but it's not breast cancer". She made a sad puppy face when I told her about ovarian recurrence. And advised against prophylactic mastectomy. See ya in 6 months. I get to keep my bruised up DD's. And I'm still eligible for OVCA trial, if I can get into one. Yay! Drinking to that.

CT scan and CA125 tomorrow. Another day another Canadian taxpayers' dollar wasted on my medical care.

scatsm's picture
scatsm
Posts: 244
Joined: Apr 2013

and that you will be eligible for a parp trial....that's good news to me. I wonder why the Breast surgeon advised against mastectomy?

What do you and/or your gyn/onc have to do to get you into a trial? I have my fingers crossed for that.

 

Susan

 

If you're not too drunk, let us know...if you are, well, enjoy!!

Hearty Pioneer's picture
Hearty Pioneer
Posts: 128
Joined: Apr 2013

I am glad it is not cancer and you get to keep your DD's.

Hope you get into a OVCA trial.

Take care.

Alexandra's picture
Alexandra
Posts: 1220
Joined: Jul 2012

I was lying about DD's because of the guys from other boards coming here, they are C's at best.

From the day I met this breast doctor over a year ago (after my BRCA1+ status was discovered), she was against prophylactic mastectomy. She was also against high-risk surveillance (mammo, MRI) but I insisted on it. Her mantra was always "women with ovarian cancer don't die of breast cancer" and "your estimated lifespan does not justify BMX". Today I asked again and she repeated the same thing. Maybe I should take my business to another doctor. And this depressing **** can estimate her own ******* lifespan.

As far as trial, they offered me phase 2 Incyte IDO Inhibitor INCB024360 vs Tamoxifen or 4-6 rounds of Carboplatin then phase 3 PARP Inhibitors Olaparib or Niraparib vs. placebo for maintenance. What I want is single agent Olaparib (the trial Shawnna is in) without any chemo but they don't have it in Canada.

I will know more after I see the DR again on Oct. 7.

 

kikz's picture
kikz
Posts: 1270
Joined: Jun 2010

Is not letting all your info sink in.  just let me say I am happy for your good news and praying for all the other.  I am so tired and angry about all the crap we all have to deal with.  I don't usually get angry about it but when I read all of the posts here and on Facebook and it's all about how we all just want to live.  I have no patience for people who complain about petty things when we are just trying to stay alive.  I'll get off my soapbox now.

My very best to you Alexandra.

Karen

 

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

Здравствуйте моя дорогая Сашенька ! Это не удивительно , что так много людей любят вас, понимают и принимают ваш юмор . Вы просто прекрасный человек ! Сегодня , когда я узнала что рак вернулся, что CA125 растет, мне стало так больно за вас ,такую молодую , за себя, еще не совсем старую; обидно до слез,  почему нам дано так много боли моральной и физической?  Почему мы не в той части населения , которых рак не коснулся.  Просто хочется очень хорошо поплакать , что бы сбросить эту боль . но почему то не получается.  Сашенька,  я очень рада за вас , что рак груди не обнаружен, что у вас будет возможность попасть на траял.  Я надеюсь, что это даст возможность отвоевать больше  времени для жизни у этого монстра.  Я вас просто обожаю!  Спасибо, что вы помогаете многим женщинам своими знаниями, опытом и юмором.  Спасибо за доброе сердце!  Дай Бог вам хорошего самочувствя и сил на вашем жизненном пути ! С уважением, Зина.

ConnieSW's picture
ConnieSW
Posts: 583
Joined: Jun 2012

Congratulations re the breast news.  At least you don't have to fight on 2 fronts.  C's are lovely.  I have DD's and size is vastly overrated.  I get so frustrated with altering patterns when I sew and knit for myself.

I hope your spirits are a little better with the light of day.  You are worth every dollar the system spends on you.  You are a young woman with every right to live a long life.  Get your dukes up and keep fighting.  You have a whole team of us behind you, Alexandra.

poopergirl14052's picture
poopergirl14052
Posts: 1155
Joined: Nov 2010

glad your news was good...now for the trials. Keep up your wonderful spirits and success ..no more cancer please. You have been through enough. Don't worry about taxpayers..you are one too! Keep smiling hon..and keep your sunny side up...Val 

debrajo's picture
debrajo
Posts: 770
Joined: Sep 2011

Maybe it's me, looking for a fight, but I don't like your breast dr. attitude at all!  Thats like saying, "Don't worry about breast cancer dear, the Ovarian is goning to kill you long before the the boobs do"!  That's really insulting!  I'd find a new, young, good looking, sympathic,male dr. who wants to make you happy{and healthy}!  You are a Canadian National Treasure....damn the expence. 

Pamela B's picture
Pamela B
Posts: 108
Joined: Jan 2013
Oh Alexandra!  I haven't been on the board lately and the first thing I read was about your ordeal. It made me cry!  You are the funniest and most supportive person on this board and the glue that holds us all together.  I am so glad to hear it isn't breast cancer.  I am also glad you don't really have DD because I was very envious that you get all that cuteness and huge boobs as well! Stay strong and keep fighting. We will all be here for you as you are always here for us. can't imagine this board without you knowledge and humor. Keep us posted as you learn more. You are always in my thoughts and prayers.
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