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I'm going back in!

foxhd's picture
foxhd
Posts: 2054
Joined: Oct 2011

Results are in from latest scan. My remaining tumors have been shrinking from the IL-2! I will be readmitted on the 30th for round #3 of IL-2. Still some issues with bone mets but we will deal with that later if they remain. I look forward to the treatment. I don't look forward to miserable side effects.  I'll be out of circulation until at least thanksgiving. Who wants to come and visit? I'll need someone to rake leaves! I probably won't feel good again until the snow flies. My post Il-2 skin peeling and redness will be a hit on Halloween. Can't wait. I think that for the next week and a half I am giving myself a green light to eat, drink, and party too much. Just more fun and games. See, there is life with cancer. Sometimes we have to look a little harder.

 

There have been many new people on board. Sorry about that. But here is a brief synopsis of my past couple years.

I have been very strong and fit since always. March 2011 brought me a radical nephrectomy. By oct. 2011 I was loaded with mets. I began the clinical trial of MDX-1106 in dec. 2011. I responded beautifully and was nearly cured until a few new mets developed in june 2013. I then began with the IL-2 in july 2013. Results are above.

To everyone. Keep looking for the right treatment. Don't take the first suggestion from your Dr. It may limit future options. There is plenty of information out there now. Read and learn. Choose carefully. Good luck to everyone. We can do this. FLY. Fox loves you!

Eskimo lily's picture
Eskimo lily
Posts: 43
Joined: Aug 2013

Fox, I'll be thinking about you. I'm sure it will all be worth is when you hear the golden word, "shrinkage"!! 

Limelife50's picture
Limelife50
Posts: 420
Joined: Nov 2011

Thanks Gary a great quote

Limelife50's picture
Limelife50
Posts: 420
Joined: Nov 2011

Kind of thought Gary would remember that quote word for word

cran1's picture
cran1
Posts: 129
Joined: Mar 2013

Hang in there Fox man.

donna_lee's picture
donna_lee
Posts: 438
Joined: Feb 2009

If you scan the headers quickly, you'll read that "You're going to back in..."  Now that would not be a pleasant view with you in your hospital gown.  Add to that, all the shrinkage Alice is talking about and you really do have problems.

Fox, this has been a very informative group of posts.  You articulated what many of us have thought or even talked over with others; and it generated many others posts of support and controversy.

If there was anything we could do for you, we would.  And we honor your fortitude in going through the physical pain and discomfort; we want you to succeed.

All love and hugs.

Donna

TillieSOK's picture
TillieSOK
Posts: 246
Joined: Jul 2013

Hey Fox!  I tried to help you, I really, really did!  I got food poisoning just so I could share your symptoms with you....you know, problems shared are halved.....so I've got the diarrhea and the vomiting covered, along with the skin so cold it hurts.  I couldn't quite come to terms with the water weight (I have enough troubles with that anyway, so didn't want more) or the peeling skin without benefit of a bodacious sunburn.  If you need more help getting through this, just let me know!  Hang in there, and WLY2

Alexandra's picture
Alexandra
Posts: 1268
Joined: Jul 2012

I didn't get to say "good luck" to you before you went in due to some BS in my life. Kick a$$ and come out on top. I will patiently wait for you on the outside. Then we can play doctor, drink beer and laugh at inappropriate jokes.

alice124's picture
alice124
Posts: 881
Joined: Mar 2012

Okay, I admit it. Not sure if it's age or this site, but SHRINKAGE IS my favorite word. (NED is three words.)  

Fox, hope you come home from your latest drug induced psychosis to lots of it. 

 

ELF ELF ELF ELF ELF ELF ELF ELF

foxhd's picture
foxhd
Posts: 2054
Joined: Oct 2011

OMG! That is mean chit. I'm getting experienced at this IL-2 stuff. Treatments were stopped after 5 infusions. This time I was afraid that I would never pee again. Then what would I do with it? Maybe Alex has some ideas? It is amazing just how psychotic one can become. I was very confused and disoriented by weds. I didn't know the month, let alone the year. I began the lexapro once I was admitted. It sure helps with sleep and passing time. There is no such thing as passing gas. That comes at a cost. Same skin peeling, redness, and overall miserable. It is amazing. Good news is I am feeling better after only a few days. Better news is I'm home home for a week and then just one more admission for this stuff. I've developed hives along my waist and axillas. I want to scratch them off to raw skin. I'll start on something for it today. Also, unlike our buddy, the Wedgemiester, I am painless. Bone mets are behaving. Let's hope they are surrendering. I wish I could help you out in this area Tex. My eyes are red and swollen. It makes using this computer difficult. But not a biggy. Looking forward to completing this series is a mixed blessing. Because it means a new plan comes into play. I've got several weeks to prepare for that. Alice, I concentrate on believing that having completed IL-2 will make other treatments more effective. I'm all in on that thought. Please all be well. I will be limited in my tolerence for reading and concentrating for a while. But I am here and in everyones corner. FLY!

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Didn't expect to hear from you for several more days, glad you are bouncing back so quickly.  As hard as it is on you I gotta believe its kickin' cancers ass big time!  Now get some rest.

danbren2's picture
danbren2
Posts: 202
Joined: May 2013

Foxhd,

     I am going in for my scan on Friday, Oct. 11.  When I first came to this sight you were one of the first to make me understand that I just might have a fighting chance of beating this God awful Cancer! I am so proud to know you and all that you are suffering for everyone that has ever had cancer.  Praying everything goes great for you!

                                                        Love and prayers for good health!

                                                         Brenda

Alexandra's picture
Alexandra
Posts: 1268
Joined: Jul 2012

three down one more to go. Come on Fox! You can do it! Put a little! Muscle to it! Come! On Fox! You! Can do it!

To answer your question "what to do with it" in a way that doesn't require reading or concentrating:

More ideas by PM.  Luv ya!

DMike's picture
DMike
Posts: 241
Joined: Nov 2011

Hey Fox,

You're one week closer to getting good news about IL2! I've been thinking about you all week.  Keep fighting.

--David

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

One last treatment. Hope you get great results. Go Fox go.Ron

foxhd's picture
foxhd
Posts: 2054
Joined: Oct 2011

I readmit tomorrow for my 4th round of IL-2. I anticipate only 4-5 infusions as my kidney runs into difficulty. This will make my recovery much shorter and easier. I'm hoping. I'll see you all after my psychosis diminishes. I'll then be on no treatment for another 6-8 weeks. That feels good. I look forward to that scan. Talk to y'all later. Please do well my friends. FLY. Fox.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Hear from you after...  Hope you get those long lasting NED results..!

Ron

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Hear from you after...  Hope you get those long lasting NED results..!

Ron

srbelle1
Posts: 123
Joined: Jul 2013

wishing you the best; it blows me away to see the courage of those who undergo this treatment.

sarah

izzycohen
Posts: 64
Joined: Aug 2013

You're an inspiration to all of us.  Keep fighting the good fight.  Looking forward to hearing from you.

 

Izzy

cran1's picture
cran1
Posts: 129
Joined: Mar 2013

Be well Fox.

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