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O T-infant grand daughter-heart surgery UPDATE

disneyfan2008
Posts: 5488
Joined: Oct 2010

I posted about granddaughter in the past weeks-we were NOT allowed to go to hopstials or see her etc-I have some contact with her now-(lives LOCAL with in 10 mins)  more then likely she will need OPEN heart surgery soon as she gains 2-3 lbs.

She has been in Westchester Medical Center 2 times in her short life..She'll be a month old on the 17th.

please keep her in your thoughts...THANKS...

Denise

debi.18's picture
debi.18
Posts: 850
Joined: Jun 2011

Oh Denise, I'm so sorry to hear she will need surgery.  I'm happy to hear you are able be a part of her life now.  Will keep her in my prayers.  Please keep us posted.

Hugs, Debi

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

 

I'm sorry to hear what your family is going through and will keep her in my prayers.  Linda

fauxma's picture
fauxma
Posts: 3543
Joined: Dec 2008

So sorry to hear this news.  I will keep her in my prayers.  It is so scary when such a wee one needs surgery.  My heart goes out to you and her family.

Stef

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andi44
Posts: 156
Joined: Jun 2013

Denise, so very sad your grand baby has to have surgery....I'll keep her in my thoughts...

Andi

disneyfan2008
Posts: 5488
Joined: Oct 2010

thanks all...she will be ONE month tomorrow...she has gained over a lb and half at this point.

Denise

disneyfan2008
Posts: 5488
Joined: Oct 2010

Update: She gained 2 lbs (now 7lbs) so on her way to mended heart!

Denise aka Mema

fauxma's picture
fauxma
Posts: 3543
Joined: Dec 2008

glad to hear she is gaining the weight she needs for surgery.  I will keep her, you and her mama in my prayers.

Stef

Double Whammy's picture
Double Whammy
Posts: 2332
Joined: Jun 2010

for your granddaughter and all of your family.  So sorry to read that she needs surgery, but it is good news that she is gaining weight and reaching the point where she can have it.  Will keep you all in my thoughts and prayers.

Suzanne

disneyfan2008
Posts: 5488
Joined: Oct 2010

Thanks for replies and good thoughts and prayers...

 

Denise

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

 

Sounds like that sweet baby will be just fine.  So glad to hear about her weight gain and soon surgery.  I can feel your love for her.  Please keep us in the loop.  Hugs, Linda

CypressCynthia's picture
CypressCynthia
Posts: 4015
Joined: Oct 2009

Sending hugs and prayers!  Keep us posted.

disneyfan2008
Posts: 5488
Joined: Oct 2010

again: thanks all for prayers, thoughts and replies...even though O.T. I appreciated them all....

 

just the waiting game to see when they do her surgery...

Denise

Lynn Smith
Posts: 1265
Joined: Mar 2011

Glad the weight gain didn't take to long.The  sooner she is able to have the heart surgery the better.She will be a healthy baby and her family will feel so much better.

Let's us know when the surgery is planned and keep us updated. You're in our Thoughts and Prayers 

Lynn Smith

disneyfan2008
Posts: 5488
Joined: Oct 2010

Still no surgery date-but I was told by my daughter her heart (HOLES) is a smidgen better.

I"LL take any improvement...

 

ONCE again thanks for the replies

 

Denise

fauxma's picture
fauxma
Posts: 3543
Joined: Dec 2008

Good to hear the improvement.  Praying she continues to gain strength, weight and will have the surgery soon and be all better.

Stef

carkris's picture
carkris
Posts: 4523
Joined: Aug 2009

might consider boston for surgery, wouldnt do it in westchester, perhaps New York city

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I will keep her in prayer.

This is scary surgery to think about happening to someone so tiny.  I have 2 grandchildren who have been throuth this.  One had surgery at one month and the other at 2 weeks.  They are doing great.  One is 18 now and the other is 12.

I will also pray for you and your daughter for strength, peace and healing.

Sandy

disneyfan2008
Posts: 5488
Joined: Oct 2010

Sandy:

Wow, I guess you have been through this> are the siblings?

Thanks for the info and knowing their ages now...makes me feel better.

 

Denise

Grandma X 6
Posts: 120
Joined: Mar 2010

I hope your Grandaugther is doing well. My Daugther works at Westerchester Medical Center, in peds she is a intensive care nurse it is very possible that she has taken care of your Grandaugther. It is a wonderful Hospital, she is in good hands. I will pray for her and your Family. Keep us posted.

Cindy

disneyfan2008
Posts: 5488
Joined: Oct 2010

Cindy:

Small world....Baby is gaining weight-just the waiting game...

Perpahs your daughter did...she's been there twice-once for 2-3 days-next time week...

 

thanks for your comment...we live in Dutchess County

Denise

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

They are siblings and their younger sister was born a few years later with a full strong heart.

Pray all is going well with your wee grand baby.

Sandy

 

disneyfan2008
Posts: 5488
Joined: Oct 2010

THANKS............!!!!!!

disneyfan2008
Posts: 5488
Joined: Oct 2010

I have been able to see my granddaughter-not often but when I do I take advantage of every second. She has gained weight-soon Dr will decide if she needs open heart surgery or not. HOPEFULLY the heart meds will mend/fix her tiny heart.

 

Denise

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