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Whole Brain Radiation Experiences?

NJCANCER123
Posts: 1
Joined: Sep 2013

Wife had second surgery to remove small superficial tumor last month on brain and now Dr's are suggesting whole brain radiaition (WBR) to eliminate any small cells that could remain.  Her first surgery was in the same place last August and followed up with Gamma Knife last September.  Looking for some help with anyone who had WBR and concerned potential side effects. 

Background:  49 year old female.

* All started 3 years ago with surprise colon cancer detection after going in for diverticulitis surgery.  After resection,  cancer returned to same area after chemo and radiation of abdomen one year later.  Now seeing small tumors in lung and kidney and been on chemo (Avastin) to control for past six months.   Last August treated and removal of small brain lesion with new small leasion just removed again last month. 

Because of size of cavity old and new another gamma knife is a concern. 

Any help would be appreciated.

 

cursedby3
Posts: 1
Joined: Aug 2012

hello NJ...

I'm not sure if I had whole brain radiation. What I do know is that they put 3 small tattoo/ink marks on my scalp and aimed at them after my third craniotomy  to remove my grade 2 astrocytoma, That occured in 1985 and I was 17 and I am now your wife's age. I can't say it saved my life, although it could have kept my tumor from recurring. It did also stop a lot of my hair from growing back...forever..sigh. I do believe that it has caused cognitive issues with me and also put a toll on my immune system. I have gone on to have 3 wonderful sons and live..so far..for 32 more years; so  considering the odds, i would do it again. Maybe the radiation has changed from years ago. Ask about long term effects and see a nutritionalist or a naturopath for guidance to keep her immunity up. God bless. Lori

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