Aug 28, 2013 - 9:58 pm
It has been a really long time since I have posted on the board. I took it very hard when we lost Glenna. I needed a break and was just busy living my life as normally as possible. I had a great run on Tarceva which gave me 18 months of relativly normal life with few side effects. In May it was discovered I had a return of the beast in my collarbones, one adrenal gland, and some scattered tiny spots in my lungs. Doctor took me off Tarceva and I am back to chemo for 6 rounds. My cocktail this time is Carbo and Alimta which is not as bad as the Cisplatin and Vinerelbine chemo I had 3 years ago. I have had 2 rounds and go back for number 3 on Wednesday. I had a CT yesterday to see how it is working. If this works, the plan is to keep me on a 21 day maintenece chemo with Alimta only. Doc says I am also a candidate for Afatinib if we need to go there. Does anyone have any experience with Afatinib? I still work full time although I will say the Alimta makes one VERY tired even with a normal amount of sleep! Great to see so many of my "old friends" are still kickin'!