CSN Login
Members Online: 18

New Flower / Olga -- How are you?

VickiSam's picture
VickiSam
Posts: 8219
Joined: Aug 2009

We are thinking and praying for you .. Please update us when possible.

 

Love and gentle hugs,

 

Vicki Sam

 

 

SIROD's picture
SIROD
Posts: 2116
Joined: Jun 2010

Dear New Flower,

I have been thinking of you too.  How is it going?

 

Doris

New Flower
Posts: 3914
Joined: Aug 2009

It has been very hard to log in. I hope they are working on improvement 

my news are mixed bag. I will try to post ttonight

hugs back

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I also having been wondering how you're doing and sending prayers.  Hope to hear.

 

Hugs, Renee

mom62
Posts: 600
Joined: Mar 2004

Olga,

I was thinking of you today so I thought I would post here as well.  I know you are struggling and want to send hugs and prayers your way.  Keep your chin up, you are one stong woman!

Love, Terry

New Flower
Posts: 3914
Joined: Aug 2009

Dear Friends

Thank you for thinking about me.  News about Linda and Claudia moving to the hospice care havemade me very sad and heartbroken. I hope and pray there are feeling comfortable and free of pain

Physically I am feeling better. I returned to my full-time  job and can drive again.!!! If you remember I have been participating in clinical trails and was getting a combination of Faslodex and experimental drug BKM 120. Initially I got shingles, then everything was going ok, however I felt that the combo was very hard to handle. After 3 months on the trial I was temporary took off the drug BKM 120 due to multiple side effects, including liver function and other blood parameters below acceptable range. My AST was 146, ALT 301. Plus I got Chemo brain.  It was awful, took several infusions of fluids , zofran, pepsin, ect. My recovery was slow, and by the time I was going to resume the drug at lower dose  the study sponsor (pharmaceutical company) decided to take me  off BKM120/placebo indefinitely because I have been off so long due to toxicity. Honestly, I am having a nixed feelings about sponsor's decision. while it was toxic at high dose, we belived it was in part efficaciuos against cancer. Here I am, continuing Faslodex treatment and hopping for the best. My CT scan is scheduled for tomorrow 7/22 at 10:40, my visit to oncologist is on 7/25.

I will let you know what is next for me.

Hugs 

Olga

Christmas Girl's picture
Christmas Girl
Posts: 3629
Joined: Apr 2009

Sending my most hopeful best wishes for good results from your scan tomorrow. Please do keep us posted.

Kind regards, Susan

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network