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Tomorrow is PEG day

TracyLynn72's picture
TracyLynn72
Posts: 603
Joined: May 2013

 

I ended up in the ER getting 4 more hours of IV fluids today (just had 4 hours of them Monday), I had lost 5 lbs since then and the oncologist was beyond concerned.  My oncologist (not my fave) is on vacation for 2 weeks so the one I like is seeing me.  He sent me right over to the ER and got fluids going and then asked why in the world had I not gotten a PEG yet?  I told him that was a good question as it has never been mentioned and when I mentioned it, nothing was ever said.  So, I go in tomorrow to have one put in.  I'm so relieved as my blood work and urine showed I was very dehydrated and malnourished. Wish me luck!!

Skiffin16's picture
Skiffin16
Posts: 8021
Joined: Sep 2009

It's amazing how great you feel once you get fluids isn't it....

Hoping you start feeling better long tern soon...

John

Ingrid K's picture
Ingrid K
Posts: 783
Joined: Mar 2011

FINALLY, you needed a PEG weeks ago. 

Shame on your medical team for not insisting that you have one before now.

You will feel so much better once you get fluids and nutrition.

It would be a damn shame to survive the cancer and die of starvation.

hwt's picture
hwt
Posts: 1655
Joined: Jun 2012

Glad to hear you finally have someone that you have confidence in. I'm sure you will feel better with the proper hydration and nutrition.

CivilMatt's picture
CivilMatt
Posts: 2646
Joined: May 2012

TracyLynn,

It is a piece of cake, here’s to you feeling better soon.

Matt

donfoo's picture
donfoo
Posts: 990
Joined: Dec 2012

Tracy,

So glad to see progress and you getting a PEG. It was overdue in your case and still a bit baffling in your case as nearly all others report their doctors barking out the treat of getting a PEG ordered in they lose a single pound more, indicating they all know how fundamental basic nutrition and hydration are.

In fact, for most of us here, THE mantra of HNC forum is hydrate, nutrition, and pain management. If you watch just these three things you will survive and thrive, although the journey may still think you are riding through hell there is sunshine on the other end.

So glad your spirits seem so much better too. It seems like it is really coming together for you and I am trilled for it! don

Duggie88's picture
Duggie88
Posts: 465
Joined: Feb 2010

Cool........I see a turn around in the near future. Here's to hoping this gives you the edge for easier times. Fight on and wishing you luck. T's and P's..............

      Jeff

rachel12yrsuv's picture
rachel12yrsuv
Posts: 427
Joined: Feb 2013

Tracylynn,

it feels weird for me to say Yeah finally Peg, bit that is how i feel for you, your whole outlook will be different once you start to eat!  You stay tough get nourished and hydrated and get this thing done! Just a side note, i hated my ENT Onc/Surgeon, but none the less he was a genious!

 

 

praying for you,

Rachel

CherieLW's picture
CherieLW
Posts: 395
Joined: May 2013

Good luck Tracy! I'll be thinking of you! Let us know how you are doing later! Prayers!

Eddie J's picture
Eddie J
Posts: 23
Joined: Sep 2012

After your peg get with a nutrionist to get the right amount of nutrition in regards to calories, carbs ,etc to maintain your weight . and if you have sugar diabetes  should be taken into consideration .Good Luck dont give up.

Eddie J's picture
Eddie J
Posts: 23
Joined: Sep 2012

After your peg get with a nutrionist to get the right amount of nutrition in regards to calories, carbs ,etc to maintain your weight . and if you have sugar diabetes  should be taken into consideration . also their is a web site dedicated to peg tube feeding its the OLNEY Foundation. Good Luck dont give up.

luv4lacrosse's picture
luv4lacrosse
Posts: 1346
Joined: Jul 2010

Dehydration can trigger numerous other serious issues. Keeping your weight at a consistent healthy number is key also as you may need a little xtra LBS in case your treatment gets rough. 

Best

Mike

Crazymom's picture
Crazymom
Posts: 259
Joined: Nov 2011

Good Luck..I went in several times to get extra hydration.  They never seemed to want to do it, but it helped.  Glad you are getting a Peg.  should help   Ann

 

TracyLynn72's picture
TracyLynn72
Posts: 603
Joined: May 2013

 

with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

robswife87's picture
robswife87
Posts: 174
Joined: Mar 2013

your spirits are up. Once you get the hang of it feeding goes so quick. 

Your mouth now gets the break it needs and your tummy gets its nutrition. Can't wait until we hear that you have put on some weight or at least stabilized.

Once you get that nutrition you will start to feel real good.

Sandy

peggylulu's picture
peggylulu
Posts: 366
Joined: Dec 2012

TracyLynn , I am so glad to hear that you got your Peg and that you are feeling better already ! I didn't have to get one as I had plenty of extra weight to lose and I did not have oral surgery so I didn't get dehydrated so I didn't say to much to you but I knew from what I have learned on here that a lot of  your symptoms sounded like you needed a peg ! You are going to feel so much better for the rest of your treatments ! Hang in there .

Peggy

Skiffin16's picture
Skiffin16
Posts: 8021
Joined: Sep 2009

Hopefully when you get back on track the possibility for continuing the last little bit of treatment will be considerd.

But if not, I hope that everything will continue to be great for you and you have nothing but great things in store for your long and happy life.

JG

Ingrid K's picture
Ingrid K
Posts: 783
Joined: Mar 2011

So glad you got the PEG in now.   You will be feeling better in no time.

And you will get through the rest of your treatment and be on the road to recovery.

Wishing you the best.

 

 

phrannie51's picture
phrannie51
Posts: 3413
Joined: Mar 2012

....and it sounds like it's already working for you.  Makes a huge difference in how you feel doesn't it?  Now the worry of not getting enough nutrition and hydration hanging over you at the same time you feel like schmidt will fade away and you can just do the one foot in front of the other till treatment is over.

I'm SO SO glad you were able to change your mind about quitting.

p

hwt's picture
hwt
Posts: 1655
Joined: Jun 2012

Good to hear that you've turned the corner. You really did have a rough go of it. It won't be long now until it's all behind you.

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