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Hallwang and Other German Therapies

renw's picture
renw
Posts: 282
Joined: Jan 2013

My experience with Hallwang and other German therapies has been more brutal than most, but I assume that is due to my high tumour burden. I have been documenting everything on my blog for anyone interested: mcrc4.com

I stopped systemic chemo 6 weeks ago now. I was classed as having stable disease, while on chemo, but that is a deceptive term. A stable disease is anything with less than 25% growth, so although I was officially 'stable' most of my tumours still grew. To continue down the chemo path, for me at least , I knew was a dead end.

Again one of my oncolgists told me that should I stop chemo, I would have maybe 2 months. Well its been 6 weeks now and I am still in relatively good health (my oncologist will be sooo disappointed), so I am hoping that the german therapies are doing something positive. I'll know for sure next month when I get my next MRI.

I still believe that focusing on the immune system and immunotherapies is the way to go.

coloCan
Posts: 1845
Joined: Oct 2009

http://consumer.healthday.com/Article.asp?AID=676431

tho who knows when/if actually available for those who need it if it works

manwithnoname
Posts: 390
Joined: Jun 2012

PD-1 from glioma studies, it's a great target.

On a note about immunotherapy I talked to a mother who's kid was in a coma, this kid had done 21 brain surgeries and 4 spinal for multiple reccurent tumours + several chemo regimes and maximum radiation, she was given Sirolimus which is an immune suppresent, she came out of coma and has stable disease which might even be regressing. 

Bizarre.

coloCan
Posts: 1845
Joined: Oct 2009

should be more reports on CRC and other cancers as drug companies and researchers publicize their results thus far

renw's picture
renw
Posts: 282
Joined: Jan 2013

some impact on t-reg cells perhaps?

manwithnoname
Posts: 390
Joined: Jun 2012

and also TAM's and MDSC's also various cytokines, it also generates memory T-cells in cancer vaccine therapy.

Our Onc. will prescribe it.

renw's picture
renw
Posts: 282
Joined: Jan 2013

Only 29 out of 140 had a partial remission, 26 continued to get a long term benefit, 1 had full remission. 3 died from the treatment. Although it sounds great, you are 3 times as likely to die from the treatment  than to achive full remission. Still better than chemo but.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Interesting,  I went to the site and was happy to see that the place I have gone to for genetic testing was listed amongst the hospitals they have in their network...... 

traci43's picture
traci43
Posts: 423
Joined: Jul 2007

The amount of information you've amassed there is incredible.  You are rational and even in your posts.  I've been fighting colon cancer for 6 years now and have just scratched the surface.   Thanks for sharing!  Traci

renw's picture
renw
Posts: 282
Joined: Jan 2013

thx. Glad people are finding it useful. That's the main reason that I am documenting everything so that others can learn from my mistakes and hopefully sucesses as well. 

johnsnowden's picture
johnsnowden
Posts: 20
Joined: May 2013

I have begun to read your blog and will be folowing your posts. thank you for sharing.

Chelsea71
Posts: 1170
Joined: Sep 2012

I too have been following your blog. You write well. I understand what you're talking about. Anxious to know what's going on with the infected port. Looking forward to the next installment.

renw's picture
renw
Posts: 282
Joined: Jan 2013

Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any  blog updates till i get back into the swing of things again.

Chelsea71
Posts: 1170
Joined: Sep 2012

Good luck. Enjoy your break.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

Pls keep us posted when you can.  We'll be thinking of you.  Hugs~AA

smokeyjoe
Posts: 1428
Joined: Feb 2011

Interesting blog,  well written   ..... hope your port issues clear up soon. 

lilacbrroller's picture
lilacbrroller
Posts: 272
Joined: Jun 2012

Well, hang in there. I read your blog. It's good. Thank you for posting it.

good luck.,sending happy healing thoughts your way

karin

vinaykumar
Posts: 66
Joined: Dec 2012

i have been following your posts. i admire your courage and thoughtfulness to write down the treatments and the logic behind them.

 

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