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Pathology Report

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

I saw my ENT that did my surgery last Tuesday this morning . Got the news I expected that the Lymph Gland that I could feel was SCC . The good news is that the other two that he removed were not Cancer ! I will be going to MDAnderson in Houston in the next 2 or 3 weeks to see what if any treatments they recommend. So I will just be happy with what they say to do and do it !

My best to everyone and please say a little prayer that whatever MDA says to do works!

Peggy

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

to be SCC....and you find yourself back in the trenches.  Gawd I hate this nasty disease.  You sound upbeat and positive tho, and that is at the very least, half the battle.  MDA will get a plan going for you, it's got everything under the sun there is, to beat this into submission.

p

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Peggy,

I am sorry about the results.  You caught it early and your team will take care of it.

Keep the faith,

Matt

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

peggy, sorry for the news but glad ur going 2 mda.  they will come up with a plan.  saying a special prayer for you.

God bless,

dj

Duggie88's picture
Duggie88
Posts: 570
Joined: Feb 2010

I am on board with Phrannie here. Staying positive is half the battle. We are all on your side in fighting the battle. Cancer sucks there ain't no two ways about it. One foot in front of the other will get you there.

Thoughts and Prayers

      Jeff

jcortney's picture
jcortney
Posts: 426
Joined: Sep 2012

Sorry it turned out as it did.  But, MDA is one the best SCC H&N programs in the country. 

Joe

katenorwood
Posts: 1862
Joined: May 2012

So darn it anyways !  I have many friends dealing with H/N dx's at MD Anderson.  I have heard amazing things about them.  I am putting you back into my pocket, and back in my thoughts and prayers until you are clear of the beast.  I'm sorry that you have to face this again....but remember we are all here pulling for you always !  Keep us updated on what they decide for tx's.  Hugs sent !  Katie

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

I 'm so glad I found all of you guys !!! I couln't get through this again without you !!! You can be sure that I will keep y'all updated

Peggy .

rachel12yrsuv's picture
rachel12yrsuv
Posts: 432
Joined: Feb 2013

Peggy,

I am so sorry for that report and for just learning of it now.  MDA will find a plan at this early stage and you will back to remission in no time you'll see.  Stay positive girl and know pour family will never leave not feeling like your wrap in hundReds of warm loving arms !  I already asked The Lord to go with you on this journey and to give you the strength to kick the beast dead in tfax face!

 

love ya Peggy andif u need to talk pm America a cd will chat

 

Rachel

 

rachel12yrsuv's picture
rachel12yrsuv
Posts: 432
Joined: Feb 2013

Peggy

this phone replaces words so sorry I did not want you to Pm America a cd????? I said pm me and we can chat. Sorry I promise not nuts! Lol

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

I am glad you cleared that up , because I could not make anything out of it . hahaha I don't promise that I'm not nuts tho !!!! I just learned how to PM on here today thanks to John, but I may take you up on the offer.

Love ya,

Peggy

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

Peggy,

So sorry to hear the results were not what we all wanted you to hear. But know you are one tough cookie when you need to be, and we will be right here with you.. you aren't alone in this fight.. the CSN family seems to be present and ready!

MDA is a great place, with great doctors with great plans. I look forward to your updates, and you just leave the worring to us.

Hugs,

Kari

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

I was so happy to see you're name on the main page when I got on just now ! I was starting to get a little concerned about you , along with some others ! I hope you are feeling good ! Thanks for the hugs and I will TRY to leave the worring to y'all ! Lol

Peggy

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Well damn, that's not the news I was expecting....

Hopefully treatment will be somewhat non-envasive, and most important...successful.

JG

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

Sorry that wasn't the news we all hoped for you. You have a winning spirit and that will take you a long way in this journey.

God bless.

Candi

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Thank you so much Candi . I am still hoping for good news when I get to Houston's MDA.

Peggy

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Thank you JG , I am hopeful about that , It's just the waiting .....Yell

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

Wow...MD Anderson....they are the best and this is caught so early....the news is going to be great and this little bump is not going to do anything but give you a pause for a short time!

Whispered a prayer before hitting submit!!!

Tim

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Peggy:

the waiting surely sucks.  Hope you get some really good news from MDAnderson.  I as others have said have heard nothing but the best about them.

Saying some special prayers for you and sending big hugs your way.

p.s.  (Do you live near MDA or do you have to travel some....Sorry if you mentioned this earlier.

Was just wondering where you were from and hopefully don't have to travel too far)

 

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

and I have an appointment at 8:30 on the 29th of May. Houston is about a 6 hour drive so we will have to go the day before. We live about 90 miles West of San Antonio . The lady that called told me to plan on being there for 3 to 5 days . It's going to be a little hard on the pocket book , but well worth it ! My PCP just wants their advice on treatments and wants me to get the treatments here at home so I don't have to stay there or go back and forth.Thank you so much for your thoughts ,prayers and hugs . Both the PCP and ENT said it's possable they will no treatments for now and just watch me closely. Wouldn't that be nice ?

fishmanpa's picture
fishmanpa
Posts: 1131
Joined: Jan 2013

Positive thoughts and prayers for a safe journey and good news from MDA. 

"T"

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

 

Call MDA and ask them for a list of low cost hotels in that area. When I had to overnight there for a few days that is what I did and some of them took almost half off the normal price of the room, but you got to call and tell them it is because you are going to MD Anderson

 

Hope it helps

Hondo

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Hondo are there some Hotels that are really close because if I have to stay 5 days whoever takes me may have to leave me and my Husband there and we dont drive in Houston so would have to walk. The lady I talked to at MDA said that there is a Hotel right there that belongs to MDA and that u can just walk across a skywalk and you're there. The rooms start at $115.00. Thanks for your help and info .

Peggy

HobbsDoggy
Posts: 165
Joined: Feb 2013

Best of everything in your renewed journey.  Sounds like MD Anderson is ready to do a comprehensive job and I am sure they will.  All good news.

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

I don't know if this would work for you or not, gas is a factor but still would probably come out cheaper than the $115.00 a night...and that is an RV.  Do you have one or a friend who may let you borrow one.  Many treatment facilities have RV spaces in the parking lot.

I had a choice to stay in a home for $20.00 a night that was part of the treatment center and close by / offered shuttle for free, or a hotel or stay in an RV in the parking lot.

I chose the RV bc I have five kids and wanted to be with them when they came down to see me on the weekends.

 

I lived in that 24 foot RV thru my entire rad treatments :)  

Be sure you call ahead if something like this would work ...and be sure you know what hookups they have ...the treatment facility I stayed out offered electric and water...but no sewer or cable.  So once a week I had to pull up and go dump....  :)

You may want to look into that housing option...many treatment centers have homes with 5-12 rooms (some even large apt building they have taken over and use for patients while getting treatment).  At anywhere from $20 - $70 a night it's still cheaper than a hotel.  Some hotels offer a "medical rate" or an MDA rate ....check on that too....it's usually negotiated with the hosptial / treatment center and the rate can be as much as 20% or more off the regular rate.

Best,

Tim

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

for your time and your great Ideas and tips . I have a friend that stayed in an RV at MDA ,I will ask if he still has it (they bought one just for that reason)if I have to stay there for more than the 3 to 5 days. My daughter and her husband will take us so we probably will need more space, but if I have treatments there I will look into some of your sugestions. Thank you again for your thoughtfulness (is that a word?) Well anyway that's what I mean.

Peggy

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Peggy,

I have some cancer kicking boots you may use.  Don’t worry; this is just a little clean up.

Your Oregon warrior,

Matt

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

My Oregon warrior , I hope your right and you probably are . (about the cleanup)I have some well used Fireman's boots don't you think those would work too ?

Peggy

 

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Peggy,

Yes I do, Fireman’s Boots may even be better.

Now, off to Sweet Home (town in Oregon) to visit my parents.

Matt

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

A  wonderful visit ! You are so lucky to still have your parents and a good son to go visit them !

Peggy

tommyodavey's picture
tommyodavey
Posts: 382
Joined: Nov 2011

Peggy,

 

So sorry to hear the news.  Your attitude is just so awesome I wish we could bottle it and give it away to new members!  Go get rid of this setback and continue on with your life.  

 

It is what we all fear every time we get tested.  Sorry it happened to you.

 

Tom

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Thank you Tom ! You are so right about the fear everytime we get tested . I just was so surprised that it happened this soon . I feel like MDA will set me on the right track. Two of my Doc said I am an unual case !

Peggy

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

I thought hard about going to MDA, and so did a search on my computer of hotels near there.  If I remember right, there were shuttles coming and going all day to and from the hospitals.  You might find a cheaper room, a little further away from the hospital, that has that shuttle service.

p

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

That's a great Idea ! Why didn't I think of that ? I guess I just didn't realize that they would have shuttles . Thank you I will go do that serch right now .

Peggy

Crazymom's picture
Crazymom
Posts: 318
Joined: Nov 2011

MD Anderson is the best.  That is where I go for my cancer doctors...I will say a little prayer for you tonight.  So sorry that it has come back.     Ann

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Do you go to MDA in Houston ? Thank you for your reply and your prayers .

Peggy

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

I haven't been able to get on here much lately so I'm just now catching up. I'm sorry you are having to deal with this again....ugh!!!
I just want you to know that I am saying a prayer for the second I finish this post. Take good care and keep us posted.
Billie

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Sweet Billie , thank you so much . No one seems to know what happened guess that really doesn't matter. I plan to do whatever MDA says I just hope it's not Chemo. Who know it might not be that bad it's just that I haven't had any so the unknown is always scary . I will keep posting , I plan to take my Laptop with me . I don't go until the 29th. Hope it's ok to wait that long.

Peggy

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

First of all, don't worry about the waiting too long part. If it were dangerous to wait they would have gotten you in sooner for sure.
Don't be scared of chemo. You may not even need it but if by chance you do, there are so many kinds out there and someone on here will be able to give you all the details about the kind the onc might choose for you IF you even need it. Chemo has gotten so much better! People don't get as sick as they once did and it's no longer a gaurantee that you will lose your hair. In my case I had erbitux which actually made my hair grow!! I had amazing eyelashes too, dare I say I miss that?????
Billie

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Thanks for your reply . They actually made my appointment for tomorrow the 15th but my Daughter couldn't take me before her kids are out of school. I was so surprised that I could get in that soon, but my ENT and my PCP acted like it would be ok to wait. Wow if I do need Chemo I hope it's Erbitux because since rads and loseing so much weight my hair has gotten so thin ! As soon as I know if and what my treatments will be you can bet I will be on here asking questions ! I may even have to have Radiation again but am assuming it will be in a little different area and hoping it wont effect my taste and salivia glands this time.

Peggy

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