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Anyone have these symptoms and diagnosis???

Amber_Lyn
Posts: 11
Joined: Apr 2013

Hello,

I was wondering if anyone has experienced this...  I noticed my left breast was "swollen", sore and just not feeling right.  Then about a week later my armpit swelled.  I went to my gyn who said he felt the swelling and sent me for a mammo and ultrasound.  The reports state that there is no swelling in my lymph nodes, no abnormalities within the breast.  The only thing they said is that the breast shows scattered Fibroglandular density.  I have an appointment with a breast specialist but when I called to see if I could get on the cancellation list I was told that I was scheduled appropriately and that I shouldn't be concerned because cancer usually doesn't cause pain and my reports were clear.  I am concerned that they are going to "sweep me under the carpet"!  I don't think my symptoms are normal and obviously my gyn didn't either.  Has anyone had these symptons with "negative" test results?  My breast and armpit are very tender, still very "swollen" and not right!  Anyone who may have info I would greatly appreciate it.  I would like to see the breast specialist armed with my concerns/info so that I don't get "swept" aside. 

Thank you in advance for your comments!

Amber

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Hi Amber!  I think you are doing the right thing by having an appointment to see a breast specialtist.  I don't think your symptoms are normal either, but, I don't know what it might mean.  It could be an infection or something.  Did they do an ultrasound or mention a MRI?  You might bring that up to your breast specialtist.  It is good news that your mammo was clear.

I have high breast density in my breasts too, which is the same as fibroglandular density, so that is why I not only have a mammo, but, an ultrasound and even a MRI still. 

You keep your appointment.  When is it?  If your breast gets worse, call them and tell them so they can get you in sooner.  Or, even call your PCP and see what they think.

Wishing you good luck and keep us updated,

Megan

Patti1967
Posts: 186
Joined: Mar 2013

I would insist on an MRI or ultrasound.  I had bilateral breast cancer and the cancer in my left breast hurt and kept waking me up at night, which is what prompted me to go to the doc.  It may be nothing, but do what you have to do to make sure:)

Good luck and hope you find out nothing is wrong.

Patti

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I don't want to scare you, but, some pink sisters here did have pain in their breast and that's why they went for a mammo etc.  I think it would be the best to get a MRI also.  It is expensive and your insurance will have to approve it, but, it should, so you will know whether it is just dense tissue for sure or something else.

Good luck,

Angie

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

An ultrasound and MRI would be good things for you to try and get Amber.  Something is wrong and it needs to be found out and taken care of. 

Keep updating us,

Debby

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

First, please realize that you have come to place of people who have breast cancer.  Because of our experience with it, we go to 'breast cancer' first and other possibilities second.  We don't want to scare you because those other possibilites still exist...there is a good chance it is a virus or an infection causing the swelling.

I did have swelling in the armpit, no pain though.  I saw my PCP, had a mammo, and ultrasound all in the same day.  Never even went to the GYN.  The biopsy was the next day.

  My thought is that your docs don't have the same urgency mine did, so that's encouraging.  If you really want to see the breast specialist sooner, just call every day and ask if they've had any cancellations.  It might not work, but it might work too.  Definitately call if you have any changes in your breast...redness, swelling, skin changes, a bruised look, change in the shape of your nipple, etc.  If you do have changes in your breast insist on getting in right away.

I hope it all turns out to be nothing...I look forward to your post telling us that!

Hugs,

Linda

 

 

Pink Rose
Posts: 495
Joined: Nov 2012

We just want to be sure that you don't have bc.  It might be an infected milk duct or node.  It could be something very simple that can be treated easily.  But, you do need to get this checked more thouroughly I think. 

Please do and keep us updated.  And, I don't, nor do the others, mean to scare you.  We just want you satisfied with the answers and to feel secure.

Hugs, Rose

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

My bc showed up on the mammo, and, I then had a core needle biopsy and a MRI and it showed for sure that it was bc.  Your symptons show something is wrong, but, it might not be bc.  Just get the necessary tests and as soon as you can.

You know we all are praying for you! 

Sue :)

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

it posted twice. 

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I didn't have the symptons you describe Amber, but, I say the same as everyone else in please try to get an ultrasound, but mainly, a MRI if possible. 

We are all praying that this will not be bc, and, it probably isn't, but, you need to be diligent in seeking out a doctor that will pursue this.

Best of luck to you and I'll be watching for an update.

 

airdrie
Posts: 3
Joined: Apr 2013

Amber_Lyn,  maybe find another specialist that thinks this is a serious matter.  I had my mammo done (the new 3D) in April 2012 with a marble sized lump in armpit.  Also during the prior year and after mammo I had been having sharp pain in breast.  It came back negative.   The last week of July I noticed a lump protruding from my breast and immediately made an appointment with breast specialist.  I was diagnosed with stage 3 cancer. So I for one don't trust mammos.  Don't forget the doctors work for you so if the mammo and ultra sound came back negative you demand and MRI or CT.  I hope it's not bad news 

VickiSam's picture
VickiSam
Posts: 8419
Joined: Aug 2009

Please let us know what is found .. when time permits.

Strength, Courage and HOPE for a Cure.

Vicki Sam

JJDS
Posts: 259
Joined: Apr 2013

Good luckWednesday!

Amber_Lyn
Posts: 11
Joined: Apr 2013

Thank you!  That is what I'm going to do!

SIROD's picture
SIROD
Posts: 2200
Joined: Jun 2010

 "cancer usually doesn't cause pain and my reports were clear".

The receptionist who you spoke to obviously doesn't know much about cancer.  I had pain and my mother had said that very statement before I went to the surgeon who told me that the pathology report stated my lump was malignant.  

Please as your primary care physicial to order one of those breast MRI's or seek another place whose receptionist doesn't make stupid comments.

Keep us updated.

Best wishes to you,

Doris

Amber_Lyn
Posts: 11
Joined: Apr 2013

I was really annoyed that the receptionist said that!  It really made me feel like I was over reacting.  But I now realize I need to be armed with knowledge!  My grandmother passed from breast cancer and I had a hysterectomy when I was 29 and have been on hormone replacement since, so I know my risk is a little higher than most....

JJDS
Posts: 259
Joined: Apr 2013

If you can't get in very soon, please see if you can get into see someone else.  This should not be delayed.  Breast cancer can sometimes have pain, not that this is, but, if someone tells you that, they are wrong.

Good luck

cinnamonsmile
Posts: 1049
Joined: Dec 2010

Hi, I am sorry you are going through this. If no one has explained what Fibroglandular density is, in a nutshell, it means  you have dense breasts scattered in spots in the breast. It is harder to see some breast cancers in dense breasts. And some think that having dense breasts is linked to a higher relation to breast cancer. It is better for someone with dense breasts to have an MRI and/or ultrasound to pick things up as issues can hide in dense breasts.

That being said, I know it is hard, but don't automatically jump to cancer. No sense worrying about that until you hear the words that you have cancer. I know its hard.

So you have an appointment scheduled with a breast specialist? Is it a breast surgeon? Oncologist? And when is it scheduled for? If you choose to still see this breast specialist, I would certainly let the department manager and the breast specialist  know about the receptionist's  callous remarks. If she isn't a doctor, she has no right giving out medical advice like that. Some breast cancers certainly do cause pain, and you probably (in my opinion from what you have written), have a higher risk for developing bc by taking HRT, dense breasts, and the fact that your grandmother had breast cancer.I am not a doctor, so that is just stuff I have learned since I have had cancer.

Unfortuneately, there are people in the medical profession who shouldn't be there whether it be drs, nurses, receptionists, etc.

I found it the hardest to wait when I was waiting for appointments like you are now, waiting for test results, and then waiting for a treatment plan. Living in limbo is very difficult.Try to think about the plan you have set now. For now, they don't see anything that alarms them which is good. If they were rushig you in, it would be worse. You have an appointment schedule. Not all things that happen in the breast are cancer, although I can see why you are worried. Once you see the breast specialist  you will have a plan and you can always get a second opinion elsewhere.

I had a spot come up on  presurgical MRI that turned out not to be cancer. It was a benign growth. When I had my mammogram (it had already been established I had a lump), I had to wait because one of the radiologists were on vacation so they were back logged. Since they knew I had a lump, I was scheduled for a mammogram and ultrasound after. They saw something suspicious in the mammogram. When I had the ultrasound, I knew it was bad because the ultrasound tech left the room right away and brought back the radiologist who said it didn't look good and she wanted to do a biopsy right away, which she did.

So take it as something good that they aren't seeing anything as of yet.

I hope we help you through this.

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

 

I had dense tissue, and a mammo didn't show a thing.  The young radiologist said he called me back on a whim and had come to realize that aggressives sometimes hide behind a white cloudlike image on a mammo.  By the end of that visit with other scans done, I had a biopsy.  It all led to an aggressive bc and bilateral.  I did have pain in my right breast, and my GYN blew it off at my exam four mos earlier.  You know your own body, so follow your gut....please!!  Linda

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I urge you to please get a MRI.  You can't slip through the cracks here.  This is your life and we all want what is best for you.

Hugs, Lex

RozHopkins
Posts: 476
Joined: Dec 2010

Please do what Patti and Angie suggested.  It really could be something or nothing but our gut feelings are usually right.  Be aware I had pain, itching, swelling. And mine does not show up on mamos.  I had one every year.  Now double mastectomy.......  You are not me.  Insist on MRI it is more thorough.  Good luck.  Lets hope this is just a nasty infection

Amber_Lyn
Posts: 11
Joined: Apr 2013

It's finally almost here!  my swelling has gotten worse and my arm seems weak Now.  Lots of pain and new pain in my chest towards the middle just to the right of my breast :(. I am hoping the breast surgeon will have answers and will schedule a MRI!  Thank you all for the support and encouragement to fight to get answers!

RozHopkins
Posts: 476
Joined: Dec 2010

You said things had gotten worse.  Be firm and insist or go to someone else.  Make them listen.  Still could be an infection, but go with your gut feeling.  Mine does not show up on mamos.  MRI is the way to go.  We are all routing for you, please tell us how things go.  Hoping this is not cancer and just a scarey moment, then at least your mind will be put at rest.  I did have not so much pain but aching in one breast and itching in the other, swelling, both at different stages same cancer type.  I knew something was wrong after years of negative mamos.  Good luck.

Amber_Lyn
Posts: 11
Joined: Apr 2013

I just know in my heart something is wrong and not normal.  I'm so tired of hearing everyone say "it's not serious since there was no lump found on mammo and cancer doesn't present with pain"!!!!!  Maybe it isn't cancer but something is wrong!!!!!  I am going to think the worst but not let it consume me.  If I go in thinking its nothing and get bad news I will be crushed!  If I go in thinking the worst but get good news I will be so happy!  When I went to my gyn appointment I had convinced myself it was just strained muscle or something like that so when I left with all these referrals I was scared and freaking out!  I will go into this next appointment armed with strength from you women and knowledge from the research I've done!  Thank you everyone!

survivorbc09
Posts: 4378
Joined: Jun 2009

Please call them now and insist on getting any sooner.  You are getting worse and that's not good.  Please don't wait Amber.

Hugs, Jan

Lynn Smith
Posts: 1265
Joined: Mar 2011

I had pain  in my left breast soon after my grandson nudged me.Very painful. Got in to see the doctor.He didn't feel a lump.My mammo was due in 5 months.I went in for the mammo and a small tumor was found.The left breast was the side I've had quite a few benign tumors and a cyst,This tumor was cancer. I was shocked.I believe the blow to my left breast caused my cancer plus it was a breast that had benign tumors in the past. Thankful it was caught early.Lumpectomy, no chemo or radiation and take tamoxifin for 5 years.I was dx 4 years in July. 

Get the pain checked out. The saying "cancer doesn't hurt." It does!!!!!  

Lynn Smith 

Amber_Lyn
Posts: 11
Joined: Apr 2013

I had my appointment and still have no resolve :(. I was sent for an emergency ultrasound of the veins in my neck and arm area to rule out a blood clot.  Results were negative.  Next is an MRI of both breasts.  But again the surgeon said that she has been a doctor for 30 years and only two patients presented with pain and had breast cancer.  she doesnt feel that this is a case of breast cancer... Now the problem is sitting and waiting for the insurance precert for the test!  Sometimes the waiting is the worst!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

But, the good news is that you will get a MRI.  I think that is the smartest thing to do Amber.  It will hopefully answer any questions for you and your doctor.

Darn insurance!  I hope they approve it soon.

Good luck and keep us updated,

Megan

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I am so sorry Amber that you still don't have this resolved.  Glad to know it wasn't a blood clot.  I have heard of several that had pain and it turned out to be bc.  Not that I want to scare you, but, it isn't as rare as your doctor makes it sound.

Good luck with the MRI.  Post any information about it when you can.

 

Pink Rose
Posts: 495
Joined: Nov 2012

I hope you get your insurance approval very soon and can get the MRI. 

Hugs, Rose

Amber_Lyn
Posts: 11
Joined: Apr 2013

Well I had the MRI and it was negative, thank goodness! No unfortunately that leaves us guessing what's wrong :(. I have a follow up appt with the breast specialist May 29th, hopefully she will have more ideas!

survivorbc09
Posts: 4378
Joined: Jun 2009

Congrats Amber on the clean MRI!  Good luck the 29th! 

Hugs, Jan

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I hope your breast specialtist can help you Amber.  Congrats also on the MRI!

Kylez

Pink Rose
Posts: 495
Joined: Nov 2012

Good news on your test!  Congrats!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Negative on your MRI is great news.  Congrats!

Pink Rose
Posts: 495
Joined: Nov 2012

Good news on your test!  Congrats!

Pink Rose
Posts: 495
Joined: Nov 2012

Good news on your test!  Congrats!

Amber_Lyn
Posts: 11
Joined: Apr 2013

.

Amber_Lyn
Posts: 11
Joined: Apr 2013

I just don't know what to do!  Today my symptoms have gotten worse :(. My swelling is now from my breast all the way up my neck!  you can't even see my collarbone on that side!  my breast and upper arm are still very swollen too.  My husband wants me to go to the Er but I think they are just going to tell me to see my dr.  It seems like whenever I'm active the swelling gets bad.  I did the breast cancer walk on Mother's Day and then Monday I was sore and swollen a little worse then usual.  Now on Saturday we went to a town yard sale so we were walking a lot and getting in and out of our truck a lot.  Today has been the worst as the was welling has ever been.  I'm at my wits end!

June Bugs
Posts: 169
Joined: May 2013

Please go to the ER!

Amber_Lyn
Posts: 11
Joined: Apr 2013

.

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Amber, did you go to the ER?  Are you any better?  Please update us.

Worried, Diane

Amber_Lyn
Posts: 11
Joined: Apr 2013

.

survivorbc09
Posts: 4378
Joined: Jun 2009

This is nothing to mess around with Amber.  You need to see a doctor.  Do not wait any longer.

Jan

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Amber, worrying about you.  Please log in to the site and post an update for us.  Please hon!

Sue :(

ladybug22's picture
ladybug22
Posts: 647
Joined: Sep 2008

Stay on top of this i had pain with my breast cancer with swollen dont stop keep on them

 

 

KIMKATAOKA's picture
KIMKATAOKA
Posts: 11
Joined: Jun 2013

You did the right thing in contacting your doctor.  Get a second opinion.  I wish I got my second opinion when my doctor said they will just watch my left breast.  My left breast was swallen, larger and uncomfortable.  I was finally diagnosed with stage 2 when I changed health plans.  Don't wait, get that second opinion.

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