Apr 17, 2013 - 11:58 am
My fiance and I just found out the news yesterday that he has this very rare disease Hepatosplenic T cell lymphoma. We are from Albuquerque, NM and are being sent immediately today to the MayoClinic in Rochester, MN.
I told myself, not to read the internet about this type of cancer. However, I could not help it. I am in so much pain and hurting. Is this reality?
It started back at the end of January, after my fiance got a root canal. He went to work and came home with flu-like symptoms (fever, aching body, slight cough, etc) in which, we went to an urgent care. This doctor did nothing yet, grab some blood work that did depict low WBC's count. However, she stated, "it must be something viral" and should diminish over a couple weeks. I was not satisfied at all. We scheduled an appt. with his PCP. His PCP misdiagnosed him for the flu as he failed to get his flu shot Fall 2012. He recieved Tamiflu, a "Tussin" cough supressant, and Amoxcillin. However, after 2-3 his symptoms did not subside and he ended up breaking out in a welt formation of bumps along his chest area and back. We went back to his PCP. His PCP said he must have an had allergic reaction to something the dentist may have given him. He was than sent for blood work as well. Again, we recieved another antibiotic, antihistamine and a steriod shot. Well, the blood again came back with a low WBC count, high AST/ALT liver enzymes, high MVC, and high LD. His PCP said it's probably Hepatitis A. (As terrible as that sounded at the time, I would kill for that to be his diagnoses now). The welts on his back were still somewhat persistent and at this point he had lost 23 lbs and had the extreme night sweats. We scheduled to meet with his dermatologist. The dermatologist is the individual who got everything on the road and she found the links of the biopsy from his skin to be a link with some type of lymphoma. Landing us to the beginning of March where we had to wait 3 weeks to see the oncologist/hematologist. However, once we did eventually see him. Everything was extremely fast. We scares me so much.
It is present day, April 17, 2013 we are headed to Rochester, MN today at 2:50 because this cancer is so rare and aggressive. Kyle just turned 23 years old on April 9th. This is not suppose to be happening to us, yet it is.
I need help. I need advice. I need to hear from those suriviors or anyone that knows a surivior.
Those that do have this type of horrendous cancer, please contact me. On this website or through my email Mchantal@salud.unm.edu
Please. Thank you.