I was diagnosed with Hepatosplenic T-cell Lymphoma in February of this year. I am currently undergoing chemotherapy and would love to share experiences with anyone else who has this monster!
I am a 38 year old mother of two, registered nurse, who before February was the picture of health. I first went to the doctor because everytime I ate, even 1/2 a sandwich, I felt full. The doctor and I both thought it was a bowel obstruction, but the cat scan showed an enormous spleen and bloodwork should pancytopenia (low blood counts on everything). A bone marrow biopsy confirmed lymphoma and I had immediate surgery to remove my diseased spleen. I have just completed chemo round #5 and am looking at chemo through August (at least). I am receiving CHOP therapy every 3 weeks and have been doing well except lately a little depression has settled in. I am waiting on some bone marrow results right now - hoping that the chemo is working. If anyone out there has this rare form of t-cell lymphoma, I'd love to chat with you.