The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

NEW TO SITE

sapphire23
sapphire23 CSN Member Posts: 1
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hi Everyone,

I am new to this site and am an almost 5-year survivor of Non-Hodgkins Lymphoma.

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Comments

  • allmost60
    allmost60 CSN Member Posts: 3,178 Member
    #2
    Welcome...

    Hi Sapphire23,

     Welcome to the group. If you click on my picture it will take you to my "about me" page where you can read about my cancer journey thus far. I guess I'm a survivor also since I just found out I am now in full remission last week. You might want to take time and fill out your about me page. I'm so encouraged to read you are 5 years out with your NHL...gives me hope for the same. Hope all is still well with you. Stick around, others will welcome you soon. Best wishes...Sue

    (Follicular NHL-stg3-grd2-typA-Dx 6/10-age 62) In Remission. Smile

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  • pubkeybreaker
    pubkeybreaker CSN Member Posts: 3
    #3
    Newly Diagnosed

    I was diagnosed with MCL in January of this year.  It is in stage 1. I am a 58 YO male.

    It was caught because I am a diabetic and routine blood work turned up a sharply elevated white count.

    I just had my first round of treatments two weeks ago with Bendamustine & Rituximab. It is followed by Neulasta [at $3000 per injection!!!!]

    The steroids given with the chemo sent my blood sugar sky high. It was quite an effort to bring it down.  I also came down with a very nasty head cold at the same time as the chemo and have been miserable for two weeks. 

    So far I have no spleen or lymph node involvement;  only small bowel and colon and bone marrow. I have had diarrhea however for 3.5 months.

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  • po18guy
    po18guy CSN Member Posts: 1,572 Member
    #4
    Hello!

    Welcome! What variety did you have, and what treatment(s)? 

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