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myxopapillary ependymoma

Posts: 1
Joined: Mar 2013

I am 18 years old and have myxopapillary ependymoma its a mouth full trust me I know.  I was origanally diagnosed when I was 12 years old and had surgery to remove the majority of tumor after I had surgery then I had Proton beam radiation.  The tumors in my lower spine where I had the majority of the radiation have not grown.  At 15 I started my fight in my brain.  The first 2 years we tried chemo after chemo and some of them slowed the growth for me and some of them didn't every tumor is different.  finally this past summer they decided to send me up to have Proton Beam radiation again and so far not growth in the tumors keeping my fingers crossed.

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