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Update on KayeKay

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Sorry I haven't been on here lately. I have been home since last Thursday. Really in a lot of pain and feeling like crap. I was feeling pretty good the first few days home. Since yesterday I have felt pretty bad. y painkillers just seemed to stop working wtf?? They had to remove more than they planned they found more cancer than they expected so I do have a liver pump. Anyways I told you guys I would keep you updated so ya. Noy doing so well gonna get back to bed. Talk to you guys later and thanks to everyone for their thoughts and prayers. They were greatly appreciated and definitely needed. Thank u all!  

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

This crazy cancer...one day feeling good the next like crap.  When I feel bad I just jump in bed and try to ride it out.  Pray the bad feeling doesn't last very long.  Jeff

Chelsea71
Posts: 1170
Joined: Sep 2012

Nice to hear from you. I'm happy you made it through okay. Hopefully the pain will subside soon. At least it's all over.

Chelsea

Varmint5's picture
Varmint5
Posts: 371
Joined: Feb 2012

KayeKay - take care and just rest and heal. I hope you get something that helps with that pain.

Sandy

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

I am sorry that its a hard recovery. But considering what you have been through, its not surprising.

You have been in my prayers and wiil continue to be so. 

You really have the battle to fight, you are so young and that shuold give you strengh.

Thank you for giving us an update, especially knowing that you are feeling so bad. 

May your recovery continue and fast. 

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Hoping you feel and get better soon...

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

it sounds like it has been a rough road for you.  I cannot imagine your pain as I have not had this surgery, but I will be continuing to keep you in my thoughts and sending some strength your way. -- Cynthia

Semira's picture
Semira
Posts: 278
Joined: Mar 2012

Hope you will feel better soon!

A hug from germany

Petra

 

annalexandria's picture
annalexandria
Posts: 2204
Joined: Oct 2011

I found when I had the big surgeries it took several weeks to start to feel a little more normal, and it sounds like you've had a very big one.  Just rest, and stay hydrated, and give yourself plenty of time to heal.  Big (gentle) hugs~Ann Alexandria

janderson1964's picture
janderson1964
Posts: 1574
Joined: Oct 2011

Thanks for checking in with us. I had a similar experience on my last surgery. They ended up taking all of my right lobe part of my left lobe and part of my diaphram but I got through it. You have youth on your side which is a big asset although I am sorry you have to deal with this at such a young age.

dmj101's picture
dmj101
Posts: 526
Joined: Nov 2011

Well a slow recovery is not a bad thing.. take the rest.. your body is telling you it needs it to repair.  The fact that you made it to the computer to post is a good sign..

sending to peace and <huggss> to help you thru it..

Dyanclark's picture
Dyanclark
Posts: 254
Joined: Apr 2012

Get your rest and we will wait to hear from you.   So sorry you are having a bad time.   We will have you in our thoughts.

Hugs George & Dyan SurprisedKiss 

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

Thanks for checking in but I am sorry you are in such pain.....take care of yourself .....sending positive thoughts your way! ~Ann

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Great thanks to all of you for your support. I think one the reasons my pain gets so bad is onmy good days I try to do wayyy too much cause in the hospital they say " the more u do the faster u recover,"but apparently that's not true for after u get home, just when you wake up from surgery. So often I feel like I'm being punished but why soo much??? There has been so much bad in my life that it really outweighs the good and seems to have always had.                                                  But anyways I need some suggestions on a tattoo about hope. But not "Keeping the Hope" because I already have "Keeping the Faith." So some suggestions would be great since I just can't seem to find anything that really stands out to me and I'm getting ready to get my next one that says "Never give up." But I want to add either "Fight Like Hell" or Fight Like a Girl." I was leaning more towards fight like a girl because they say colon cancer is more common in men than in women and definetly in someone of my age. Shall we take votes for anyone that wants to have a say? Vote 1 for "Fight Like Hell" and vote 2 for "Fight Like A Girl. Okay thanks guys! I should be in touch more often...

Chelsea71
Posts: 1170
Joined: Sep 2012

I think it's a very good sign that you're thinking about tattoos. You must be feeling better and ready to get on with life. I have no ideas but I will put some thought into it.

Chelsea

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

Just an idea. I'm not good at this kind of stuff.

I visualize a rising sun with Hope Rising in script below. 

I too think its a good thing that you are thinking ahead. You are obviously a strong woman.

I know what its like having crappy time in life. In fact, when the Oncologist told me I had stage 3, at first I was shocked then I was angry. I had an awful childhood, I mean horrific for a child (as many do). I told God that it was unfair that I had such a terrible choldhood, and that I deserved to go out of this life happy. 

Chin up and muster on. We're with you every step of the way. 

janderson1964's picture
janderson1964
Posts: 1574
Joined: Oct 2011

What about "Never say die". It is probobly too many words but what I like to say is "What doesnt kill me will only make me stronger". This is referring to the fact that I have had cancer 3 times and 3 times it did NOT kill me and I am stronger after each time.

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

Fight like a girl.  Love it.  Let your body help you recover - listen to its signs. 

Best, Vita

sharpy102's picture
sharpy102
Posts: 338
Joined: Apr 2009

How about: "Hope dies last!" for your tattoo? :)

Deena11
Posts: 193
Joined: Nov 2012

I know you had a rough time.  Rest and know these fine people here on this forum are sending strong, healing energy your way!!

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

Get well soon,and do things at your own speed,try not to push too hard.I vote for #2.I hate cancer.

hippiechicks's picture
hippiechicks
Posts: 314
Joined: Sep 2012

Wishing you comfort during your recovery.  It sounds like you are up and moving which is great! But, over doing it will only set you back...that I have learned.  As for your new tattoo ... what do you think of the song lyrics "What doesn't kill you makes you stronger"?  Maybe even putting its musical notes as the tattoo on a staff .... sorta would be cool ... with the cancer ribbon maybe?

Hope you are feeling better soon!!

 

 

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

thank u for all your opinions. im going with "Never Give Up, Fight Like a girl." and the "what doesnt kill you makes you stronger on a lyrical staff sound very interesting. I swear it seems like Im not getting better as the days go on. Pain is not getting better nor am i feeling better. Plus this pump is still soo uncomfortable. Grrrr....

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

I hope you are in touch with your surgeon and oncologist about how you are feeling. 

Recovery can be a slow process, but you still want to know that all is going how it should. 

We are all concerned for you. 

I hope you are going to wait a while before the new tat. Get as recovered as you can before getting inked. 

Liking the new picture.

Blessings!

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

lol ok ya this has been torture.

jen2012
Posts: 1196
Joined: Aug 2012

Sorry you aren't feeling well still.  Try not to do too much too fast.  I think I remember you having a small child at home?  It's really tough to take it easy as a mom, but if you are lifting a lot you will be sore.  Not cancer related, but I had my gallbladder removed 6 weeks after a c-section with my second child and remember feeling well after a couple of days so I was up and down the stairs, taking care of the baby and 2 1/2 yr old, etc. - by that night, I knew I did too much.   Try to let other take care of you for a while!

 

smokeyjoe
Posts: 1428
Joined: Feb 2011

sheesh so sorry you're in pain,  hard to rest and sleep when in pain.   I'd contact doctors and let them know the meds are not working, and they can try something that will give you some relief and much needed rest.    Try not to do too much, you need time to heal.  

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

thanks guys... this has been absolutely horrrrribbbleee!!! pain wise having 25-26 inches of incisions feeling like my insides have been torn apart and played in. omg!! but neways they got me fixed up on another round of meds today and i am not gonna let them fool me into thinking im better cause i can move better cause of the meds. wawa biiiggg mistake i made thinking i was better cuz the meds made me move easier. but im gradually getting better. started moving around last night a lil more. i was completely bed ridden for the last 2 weeks. STAY STRONG YEAH!!

annalexandria's picture
annalexandria
Posts: 2204
Joined: Oct 2011

I was unable to take pain meds after my first surgery because of nausea, and I found that icing the incision pretty much non-stop really helped.  I think I lowered my body temp by about ten degrees, which wasn't very comfortable, but it reduced the pain quite a bit.  And feeling like your insides have been "played with" is actually kind of accurate from what I've been told.  My oldest daughter loves reality medical shows, and she's seen a colon resection done.  It's kind of like unpacking a suitcase and then stuffing it all back in (and not having it all quite fit the way it did when you first packed).  It's no wonder things hurt for a long time after!  Hugs and hope for healing coming your way~AA

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Actually I prefer heat as to ice and Ive been using heat since Monday and youre right it does seem to help. Did i say colon resection if so im sorry i had a liver resection,RFA,umblical hernia fixed, and a liver pump put in. I think its just about more than one person can handle at once. Especially since my liver surgery was not laprascopic. im in the works for a cane it just seems like its taking them forever. since the doc got me fixed up and refilled my pain meds on monday im starting to get a lot a lot of strain in my back from not being able to straighten up so i walk around like the hunchback. thank u for ur support:) gentle hugs back* :x

annalexandria's picture
annalexandria
Posts: 2204
Joined: Oct 2011

That was my mistake.  Even without the colon resection, that is a lot of surgery all at once.  All of my surgeries have been the full deal too, and it's really a slow process healing from that.  I found that holding a pillow pressed to my gut whenever I walked around helped.  Looks kind of goofy, but it made me feel like things were kind of holding together better.  Gentle hugs back 'atcha.  Wish you didn't have to go through something so freaking hard.  AA

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

yes i dont like being the one that has to be taken care of. especially when its to a point where i was bed ridden 4 2 weeks. :( o this has been so terrible.. the docs said the pain would only be tolerable on strong meds so this was major MAJOR surgery. def. when i cant move hardly at all for 2 weeks. glad my son does not live with me full time cause i couldnt even take care of myself at all these past weeks. 

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

This sounds like a terribly hard journey. I am so glad that you are young and relativly healthy. 

I'm sorry you're not able to take care of your son. It must be so hard for you. I hope his caregiver brings him to see you often. They are energetic, and a short visit would lift your spirits. 

We're here for you with support. Wish we could take away your pain.

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

You always lift my spirits. You make me feel so cared about when u dont even know me we just share a bad common ailment. Yes just talking to my son on the phone lifts my spirits. He lives almost 5 hrs. away from me so i dont get to see him often at all which is very hArd to deal with. This surgery has been absolutely horrible and the hardest recovery i have ever even fathomed and i have had quite a few surgeries 2 major ones prior to this surgery. I think I just took this surgery really really bad and it was very major. Like I ttold ann i got cut from side to side for my liver, a resection,rfa, a hernia fixed which i think i have already herniated again and the liver pump put in. But i also love to hear your comments they are very securing to me. xxThank You Allxx :)

janderson1964's picture
janderson1964
Posts: 1574
Joined: Oct 2011

On the tatoo subject. Maybe should have a blue band or ribbon with the words on it since blue is the official color for colon cancer. One of my tatoos has some blue tribal on it and I thought about having a blue ribbon added with stage IV survivor written on it.

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

ya thats y i chose blue for the one i have and my fiance drew me something with a ribbon and all that. several things now that i think about it. lol :)

marbleotis's picture
marbleotis
Posts: 485
Joined: Mar 2012

Really sorry to hear this.  Please take care of yourself.  With each day grow stronger!

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Finally! Tomorrow is the day! Sxrew this cancer stuff I'm getting married!

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

Love and happiness to both of you. You will be a beautiful bride and he is a lucky guy! I will be thinking of you tomorrow....~ Ann

Sundanceh's picture
Sundanceh
Posts: 4283
Joined: Jun 2009

Congratulations and Best Wishes!

jen2012
Posts: 1196
Joined: Aug 2012

Congrats!!  I hope you have a beautiful day! 

Chelsea71
Posts: 1170
Joined: Sep 2012

How exciting.  Congratulations.  Hope you have many happy years together.  Screw cancer!

 

 

tootsie1's picture
tootsie1
Posts: 5006
Joined: Feb 2008

Sorry you had more than expected. Praying for you!

*hugs*

Gail

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

on your wedding! wishing you many many years together!

hugs

judy

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Thank you all so much. I  am now offically married! Yayy! I am now Mrs. Peña. I cried during the ceremony!  OMG LOL! :)  I would upload a picture of us if anyone can tell me how to do that.

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Ok so Ill have to change my profile pic. Ill upload a photo of us there. 

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

Ok theres a picture from before the ceremony.

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

You need to post this wonderful news to a new thread. 

You look beautiful!

I hope you have some picturres on Photobucket or something, as I know we all want to share in this happy event. You WAY deserve it. 

Please start a new thread with pictures. We all need to celebrate this wonderful time in your life. 

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

I dont know how to post the pictures on here from my phone?? Thank you all! I've never been happier than I am today! :) BTW- what is photobucket?

Trubrit's picture
Trubrit
Posts: 1420
Joined: Jan 2013

Photobucket is a photo share website. I think its probably www.photobucket.com

You down load you pictures there, and then you can download your pictures here, using the little tree icon in the bar above 

It really would be great to see more pictures, or a bigger picture of your icon.

You look lovely in your icon, but my eye are so bad, I can't see it too well. 

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

I knew you would be a beautiful bride.....wishing you many years of happiness. It is my anniversary today....hope you have as many happy years as we have had! Thinking of you! ~ Ann

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