Mar 17, 2013 - 8:46 am
I am fairly new to this or any message board, but not so new to OC. I was diagnosed in July, 2011, with stage 3c. I had three cycles of good old taxol and carbo then hysterectomy and debunking, then four more cycles of chemo. That got me to NED!!! I went into a clinical trial for a maintenance drug called Opaxio. I got five glorious months last Spring and Summer and then the numbers started going up and CT scan showed New spot and old ones growing. We went with more taxol plus another drug that I took every day by mouth. After two months tumors were still growing. So we went to doxcil. That actually worked I had nothing new, one tumor on my liver got smaller and everything else stayed the same. YEAH! But. . . . . . like so often with this miserable disease that wasn't the end of it. After the third cycle I developed a very nasty rash, more like a burn really. So, we had to stop. I was devastated.
So after giving my body a chance to heal from the rash I'm ready to start again with an IP port. I'm a little apprehensive. It seems so different from IV chemo. So I guess I'm wondering what to expect.I have found such inspiration and encouragement in the posts that I've read. You are all truly Teal Warriors and I am so happy to have found this site. May God bless us all in our fight!