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Here we go again...

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

Here we go again...seems like just yesterday that I began my first journey of chemo.  Port placed and worried how I would handle the drugs. 

Well...with recurrence only months after ending the first round, more surgery and healing, now had another port placed and beginning treatment again in the morning.  Hoping it goes a bit better.  Hoping for cure.  Hoping for at least a break for a while afterwards. Hoping to see my children grow a little more and that my husband does not have to worry so much.  

The docs tell me there are only so many drugs out there...if this does not work, then cure is not an option any longer.

relaxoutdoors08
Posts: 521
Joined: May 2011

just wanted to share I read your profile NED in January.....praying for contined NED.....praying surgery did the work and chemo is the added insurance.  What chemo will you be getting ?

NB

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

Well that was bizzar....not sure where my post went...lol.

Thank you for your thoughts and prayers...appreciated!  I will begin FOLFIRI tomorrow morning. Hoping it goes better than FOLFOX did.  We to are hoping for continued NED, but I do not think my doctors are expecting as much.  I think with the recurrence happening so soon after the last treatments they are not so optimistic about this round.

I have not heard much about this drug or its side effects...so hoping for the best.

 

lilacbrroller's picture
lilacbrroller
Posts: 308
Joined: Jun 2012

Good luck with round two - we're not terminal til they say we are, and until that time, we must enjoy life and each day we have. Cool  

Hang in there!

 

- Karin

thxmiker's picture
thxmiker
Posts: 1240
Joined: Oct 2010

We are sending our prayers and thoughts fr a positive outcome.   Second, Do what ever it takes and see Dr. Lowey at USC, or one of the other great Cancer hospitals, Sloan Kettring, etc...

 

I was given a non positive prognosis also. I saw Dr. Lowey and he gave me a treatment program and nutrition advice. (Although I was pretty much eating the Zone Diet, which is not far off from the Med Diet that he recommended.)

 

Keep your spirits up, and keep in touch.

Best Always, mike

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

Thanks for the your prayers and thoughts...I have been to several top hospitals.  Actually found they did not give me the best advice for my situation. 

I also hope to make some diet changes and more exercise this year.  All my energy has been to chemo and healing this past year and a half. Hope this round isn't so rough.

 

annalexandria's picture
annalexandria
Posts: 2280
Joined: Oct 2011

Is there any chance for more surgery?  I had four recurrences, each addressed by surgery, before getting to NED.  I was getting whacked open every six months for a while there.  What chemo are they trying this time?  It's just so exhausting, and I know how depressing it is to face recurrence so soon after treatment.  Sending strength, and a few hugs, your way.  Ann Alexandria

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

It is exhausting...that is what I am...exhausted. My joints ache from my last chemo treatments still and I hope my body can handle 12 more. 

This is after my surgeries....I had two back to back in Oct and Dec.  I just finished healing from them and this is follow up chemo...a bit delayed as I was gathering opinions.  We are trying FOLFIRI... I am currently (hopefully) NED...hoping to kick the micro stuff down and stay NED!! Not looking forward to going to sleep tonight...because I know what tomorrow will bring!

I will happily accept all strength, hugs and well wishes with great appreciation!! Thank you!!

Hope all is well with you as well.

annalexandria's picture
annalexandria
Posts: 2280
Joined: Oct 2011

I was unclear on your situation.  My doc decided to give up on the chemo, after trying two different kinds with no results.  As my last two recurrences were single tumors, he decided to take a "wait and see" approach rather than do a 3rd line chemo, and address anything that popped up via surgery.  That's worked out well for me, as I've been NED for 15 months now.  I had mixed feelings about not doing chemo, but it's been a good choice, for the time being at least.  I hope this round is not too tough on you...sounds like you've been through an awful lot already!  AA

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

This is bad news and so sorry you had to hear it.  Hopefully, only a small bump on the road back to good health.  Chemo may be rough but it beats the alternative.  Stay strong and hold fast. 

Wishing you fair winds and following seas.  

Rick

Trubrit's picture
Trubrit
Posts: 1539
Joined: Jan 2013

You are in my thoughts and prayeknows knowing hoe exhausting chemo can be, in many areas, my heart goes out to you 

bless you!  

tootsie1's picture
tootsie1
Posts: 5012
Joined: Feb 2008

Praying for a solution!

 

*Hugs*

Gail

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