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Stage IV Breast Cancer with Mets to Bone

amayberrymy's picture
amayberrymy
Posts: 1
Joined: Jun 2011

I am just looking for others out there in a similar situation as me.  I'm 35, married with a 4 year old daughter.  I am going into my 3rd year since my original dx which was Stage 2 April 2011.  Reoccurence in Sept 2012 with Mets to bone.  I am taking Xeloda now after trying Tamoxifen and Femera both of which failed.  Hoping for some success with this new treatment.

New Flower
Posts: 3463
Joined: Aug 2009

Welcome to the board.

I have similar diagnosis and just completed 8 months of Xeloda. I am also on Xgeva monthly shot to improve structure of my bones and prevent fractures.

My initial diagnosis was Stage III in 2008 at the age of 46. Four years later cancer has progressed to my bones showing in 10 different bones. Last year my son has graduated from college, in this respect my situation is different.

Xeloda treatment was reasonable for me, however when I learned about mets all over my body while on Tamoxifen,  and that Chemo is the only option for me I was in shock. 

All ledies and gentelments on this board are very supportive. Please come back for support and advice. If you have any questions about Xeloda please PM me I will be happy to help. We have seen improvement from Xeloda treatment and very optimistic for the future

New Flower

 

Debaludoll's picture
Debaludoll
Posts: 4
Joined: Mar 2013

Hello, I know exactally what you are going through. 10yrs later I had my reoccuence tomy bones. That was in Sept. of 2013. My children where 5,2 and 1 yrs. of age and I was VERY aggresive with my treatments and did ALL the surgery I was suppose to. So no I did not and was shocked it came back after 10 yrs. Although in the back of my mind I always knew it was a possibility. So bone mets are fine for me and its been 6 months on Fulvestrant and Xgeva {denosumab}- to make bones stronger. I feel much better and bones are healing and Im actually able to get back to being active. I fractured my Clavicle bone { PAINFUL} and on the tennis courts, who knew you can fracture a bone with no impact of any kind. I posted just the other day for my first time so Im also new here.  If you ever feel like talking inbox me your number. Best Wishes to US! Debbie

Debaludoll's picture
Debaludoll
Posts: 4
Joined: Mar 2013

Hello, I know exactally what you are going through. 10yrs later I had my reoccuence tomy bones. That was in Sept. of 2013. My children where 5,2 and 1 yrs. of age and I was VERY aggresive with my treatments and did ALL the surgery I was suppose to. So no I did not and was shocked it came back after 10 yrs. Although in the back of my mind I always knew it was a possibility. So bone mets are fine for me and its been 6 months on Fulvestrant and Xgeva {denosumab}- to make bones stronger. I feel much better and bones are healing and Im actually able to get back to being active. I fractured my Clavicle bone { PAINFUL} and on the tennis courts, who knew you can fracture a bone with no impact of any kind. I posted just the other day for my first time so Im also new here.  If you ever feel like talking inbox me your number. Best Wishes to US! Debbie

SIROD's picture
SIROD
Posts: 1625
Joined: Jun 2010

Hi,

If that is your daughter, she is very beautiful like the lady behind her.  I am sorry that you have a need to join us.  You came to a good discussion board and there are many women who have bone mets.  My bone mets were found in 2000 in two ribs.  For me Arimidex gave me 8 years of NEAD (no evidence of active disease).  Then it returned full blast in both lungs, lining and the ribs too in 2008, so I am still here.