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Follow Up Tomorrow!!

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

Hi all,

 

I had a radical nephrectomy 6 weeks ago now and tomorrow is my follow up appointment.  I know I need to know the staging of the tumor but I suppose I'm just a little frightened about what May hear.  Initially they were only going to do a partial but the roots were longer than they thought so they took the whole kidney.  Is the sizing just the bit that is visable and not include the roots?  After the op they said they were confident it was contained and by the ct scan it was approximately 4cm.....could they have got that part wrong?  He also said no follow up treatment just monitoring for 5 years.   I suppose I am just looking to you all because you are either going through it or have come out the other side.  I'm so glad to have found this site and I am happy to meet you all.

Eims

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Eims,

Sounds like you are saying that this will be your first glimpse of the pathology report which seems a bit odd, mine took 5 days.  At any rate, a 4.0cm tumor is small, roots or no roots, and clear cell, stage 1, grade 1, with clear margins are the most likely results.  Mine was 4.2cm and it has been nearly 3 1/2 years for me, it seems like the blink of an eye and I expect you'll think so too.  A surgical cure is likely and you should have a long time to tell the tale of when you "HAD" cancer long ago.

Let us know how it turns out,

Gary

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

Hi Gary,

5 days??  Wow!!  I'm in Ireland and things take a little longer here!!  Yep it will be the first time I hear what type it was etc.  3 1/2 years that is fabulous and I am delighted to hear that.....it always helps to hear positive stories.  Its amazing how most of these tumors are only caught by chance.  I was sent for an ultrasound for my gall bladder and this is how mine was flagged and I still think someone upstairs was looking after me!!

Eims

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Eims,

It took a motorcycle crash and a bunch of broken bones to find mine, but I've never regretted it for a second.  I visited Ireland 18 yers ago, beautiful, but I'm glad I'm on this side of the pond, I don't think I could have lasted for six weeks, WAITING SUCKS!!!  You are right about being looked after from above.

Gary

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

I am feeling a little on the nervous side today but I know we will get throught it.  I hope the crash didn't do you too much more harm but honestly I truly believe everything happens for a reason!!  My goodness the roads here are bad enough at the moment so 18 years ago they were atrocious!!!  I just hope he hasn't changed his mind since after the op ;-)  Thanks Gary.

Eims

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

You are about 2 months ahead of me on all this. I'm following along, trying to be a cheerleader when I really haven't learned all the cheers yet, but I'm enthusiastic! Laughing  I DO know that a positive attitude and outlook keeps spirits high and that is important!

I'll be reading others posts here with great interest.  I have two good ears (so to speak) and I'm a good listener.  I'll stop by to help rally you on as often as I can!

Cheers!  Bon Chance!

icemantoo's picture
icemantoo
Posts: 1660
Joined: Jan 2010

Eims,

 

Sounds like from your description so far that everything will be OK with your initial results. Let us know if we are right.

 

Icemantoo

icemantoo's picture
icemantoo
Posts: 1660
Joined: Jan 2010

Eims,

 

Sounds like from your description so far that everything will be OK with your initial results. Let us know if we are right.

 

Icemantoo

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

well the results came back and i think i am still in shock.  they told me that the cancerous part of the tumor was smaller than they thought 2.3cm.  it was a t1 grade 3.  they are happy that it was contained and it will be a ct in 6 months time.  i really feel like i was exceptionally lucky and blessed at the same time.  

eims x

garym's picture
garym
Posts: 1651
Joined: Nov 2009

There, now that wasn't so bad was it, yeah right.  Bet you're wondering what all the fuss was about.  Soon you'll have forgotten most of the bad stuff and things will be back to "normal" except for those darn scans to remind you, but you can LIVE with those.

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

gary i know exactly what you mean!!!  i was super hyper yesterday and i am sure my consultant thought i was a nutter!!  honestly i bounced out of the hospital and i just kept saying to my friend that you couldn't ask for better results than that and she kept saying yes you could...like no tumor for a start hahahaha.  i am extremely happy and my goodness am i blessed.

eims x

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I know you and your family must be thrilled!  I know I am pretty darned excited for you!  Stay on top of it!

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

thank you MDCinSC....i am lighting candles and praying for everyone here x

NomadicMike's picture
NomadicMike
Posts: 33
Joined: Feb 2013

I had similar good news yesterday!  Stay well.  Enjoy life!

LKidd
Posts: 37
Joined: Feb 2013

Good news for you Eims! It's so good to see positive out of this. Like some have said, before you know it life will be back to normal. I'd take the scans any day - glad to hear it turned out well for you.

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

i just wanted to say thank you to you all and another positive out of this is the lovely people on here.  it wonderful how virtual strangers can support you and make it be ok...if that makes sense!!!  one thing i have learned through this journey is the people who really care about us and the people who don't.  i am grateful for the small things now and i appreciate them more too.  happy weekend to you all.

eims x

foxhd's picture
foxhd
Posts: 2066
Joined: Oct 2011

Scanxiety sux donut? Now live well, stay positive. Enjoy life. Good job!

foxhd's picture
foxhd
Posts: 2066
Joined: Oct 2011

Scanxiety sux donut? Now live well, stay positive. Enjoy life. Good job!

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