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Just Curious - First Remissions

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

I'm just curious and am wondering how long everyone's first remissions lasted, and if anyone is still NED after first line treatment, how long have you been NED?

Thanks!

JoanC's picture
JoanC
Posts: 225
Joined: Jan 2009

I was DX 3C on April 3 2008. Has surgery,IP chemo and have been NED ever since.

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

NED for 7 months.

kikz's picture
kikz
Posts: 1284
Joined: Jun 2010

after 18 months.  I have been on medication since June 2012.  Tamoxifen lowered my numbers for the first three months and then they rose for the next three.  I was put on Femara in January and had my first blood draw today since starting.  Here's hoping for good news.

 

Karen

LoveButterflies's picture
LoveButterflies
Posts: 73
Joined: Feb 2012

I have been NED for 14 months.  I was dx 3C 6/11. 

lovesanimals's picture
lovesanimals
Posts: 1282
Joined: Sep 2011

I am still NED (no evidence of disease) after my first treatment (actually surgery) - two years and four months.

Kelly

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Finished treatment at beginning of December 2010 - NED since then :)))))

Michelle xxx

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Finished treatment at beginning of December 2010 - NED since then :)))))

Michelle xxx

poopergirl14052's picture
poopergirl14052
Posts: 1179
Joined: Nov 2010

..then nine months..been on chemo almost one year in March...Val 

mopar
Posts: 1954
Joined: Apr 2003

DX in 2000, recurrance in 2006 - still in remission, but due for annual check-up!

Monika

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

I was diagnosed in  January 2012 and have been NED since June 2012

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

This is interesting.  There are some nice, long remissions in this group.  :)

Marnel's picture
Marnel
Posts: 42
Joined: Mar 2012

I was dx in Feb 2012 with OCCC 1C, finished chemo in July 2012 and am having my first recurrence in Feb 2013.  I was hoping for a longer dance but am ready for the fight.

123Miley's picture
123Miley
Posts: 94
Joined: Jan 2013

I was diagnosed stage 3C in July of 2007.  Surgery followed by 11 months of carbo and taxol/taxotere.  I enjoyed nearly 5 years before my first reoccurance!  

I had 6 more months of carbo/taxol last year and strated on Doxil this January. 

Even though I am back on treatment I feel very lucky and blessed that I had that long of a time and that I have and continue to do so well.  I always try to remimd myself that there is the other side of those otherwise pretty scary statistics!

 

Alexandra's picture
Alexandra
Posts: 1268
Joined: Jul 2012

since last chemo on Nov. 26, 2012

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Love this wig Alexandra!

Alexandra's picture
Alexandra
Posts: 1268
Joined: Jul 2012

It's called Voltage by Raquel Welch color glazed sand. I confess to Photoshopping my chubby cheeks down a couple of inches.Embarassed

kikz's picture
kikz
Posts: 1284
Joined: Jun 2010

too funny!Laughing

lulu1010's picture
lulu1010
Posts: 367
Joined: Feb 2011

Had 9 months of remission followed by 5 months of Doxil and 6 treatments of carbo and now back in remission.

Cafewoman53's picture
Cafewoman53
Posts: 738
Joined: Jul 2010

I finished my front line chemo in Dec. of 2010 then had a pet/ct scan which found kidney cancer. I had my right kidney removed inJan,2011

After 30days I began six rounds of Avastin during which my ca125 slowly kept rising til it doubled after the last round

 

So I guess I had two months of remission just enough time to remove my kidney and have a short recovery

But I am still here and I am feeling well!

Cafewoman53's picture
Cafewoman53
Posts: 738
Joined: Jul 2010

Ssorry double post

kimberly sue 63's picture
kimberly sue 63
Posts: 408
Joined: Apr 2012

Dx 3/28/12, treatment from 4-2012 to 10/2012 Still in remission 3/2013....3 months!!!!Kim

da1955
Posts: 30
Joined: Aug 2011

So, it has almost been a full  year. I was DX in March of 2011, didn't have surgery until July 2011 followed by 6 rounds of carbo/platin which ended in March of 2012. Keeping my fingers crossed for longer.

Havehope2
Posts: 22
Joined: Mar 2011

Just having my first recurrence after 18 months of NED. 

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