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An Update on PinkKari09

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Hello everyone. This is KarLee, Kari's daughter. Mom made it very clear that when she was no longer able to post, she wanted me to keep you all informed of her status. 

Mom went into hospice the 2nd week of December for pain control with a plan of staying there for a few days to get her pain under control. Most of her issues revolved around an agonizing headache and generalized pain and weakness. Much to Mom's dismay, she ended up staying in hospice for a week until she insisted on leaving, even though her pain was not controlled. 

That was December 19th. For about a week, Mom was nothing short of an energizer bunny. She spent her birthday with friends and family. Went shopping A LOT. Went out to the casino and gambled a bit. She did many many things that she wanted to do. However, she just wasn't herself that week. She was very angry and aggressive and easily upset by little things. Her headaches continued to get worse and she became more weak.

On Christmas day, Mom's headaches, nausea, and weakness were too much for her and the Palliative care doctor instructed her to go the ER for a head CT. Mom was scheduled to get a CT done on the 26th to evaluate the possibility of radiation, but the doctor wanted to her go in that day because of her symptoms. We went in to the ER, had a CT and MRI of the brain and it showed significant involvement in her temporal lobe with multiple masses. This explained all of Mom's symptoms including her behaviors. Mom was too weak to go home, and we transferred from the ER to hospice. 

Over the last week, the staff has been adjusting her pain and anxiety medication. She is on a couple of continuous IV drips (thank goodness for ports). There are times when she is anxious and in pain, and when that happens we increase her meds. She has not really talked since the day she was admitted. She will ask for her Mom (who has passed) sometimes and will say "owey" when she is uncomfortable. But despite all of this, when she is resting, she looks so peaceful. It has taken everything in me to make sure that I am making the right decisions for her and being her advocate. 

As far as all of you readers and bloggers who have supported her throughout the last three years: She loves you guys and you are all very near and dear to her heart. You helped her get through the toughest of times at the end of her life with all of your kind words, cards, gifts (especially the beautiful ornaments), and support.

That is all for now, I will try to continue to update you as I know you all care so much for her. 

Again, Thank you. 

KarLee

New Flower
Posts: 4028
Joined: Aug 2009

I am very sorry. bless your heart you are a wonderful daughter .

 Please give Kari a hug from me. 

No words just tears she is a dear friend 

olga

GreeneyedGirl's picture
GreeneyedGirl
Posts: 1005
Joined: Sep 2008

I was just thinking about your mom last night, and wondering how things were going. It saddens my heart to hear how things have progressed. I watched my mom go through hospice for renal cell carcinoma, and their care is wonderful and supportive to family. As a daughter tho, it was challenging to face. Inner strength and a deep love got me through it. I am praying for your family~♥

~Hugs, Melanie

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Sorry..just upset

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

This isn't the news I had prayed to read about Kari, but, I am so thankful to know something about her.  We've all been worried and thinking of her a LOT.  

You are a brave and wonderful daughter and once again, I thank you for posting this for us. We all love your Mom!

Please keep us updated when you can Karlee.

 

Miles of Love to you and Kari!

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Olga, 

You were one of Mom's favorite girls. Thanks for being there for her.

KarLee

MyTurnNow's picture
MyTurnNow
Posts: 2694
Joined: Aug 2009

Thank you, Karlee, for the update on your mom.  I have also been thinking about her and hoping she was not in pain and at peace.  You are a very special daughter and please let your mom know we are thinking of her.  Also, please give her a hug for me. 

We are here for you, too!

sbmly53
Posts: 1476
Joined: Jan 2010

I am so sorry for all that our sweet Kari has had to endure.  The 'miles of love' she has sent to us all have meant so much. Now, I want to send miles of love and strength to her and to you.

You are in my prayers. I have thought of your Mom every day. Thank you so much for the post.

 

Sue

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Thanks for sharing this information with us as we've all been asking how Kari is.  Kari talked all of the time on here about how wonderful you and your brother are.  She loved you both so much!

My heart breaks for you two and know that I am sending love and prayers to Kari and to you two.

Hugs, Debby

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Double post

KathiM's picture
KathiM
Posts: 7879
Joined: Aug 2005

I am putting my arms around you both...

I share the role of being the 'caregiver daughter' with my mom.  I can tell you that your mom is very grateful, even if she doesn't say it.  

 

My mom had slipped farther away from me, and then focused, and said "I love you, too, darling" when I said "I love you"....it was the BEST!

 

Hugs from one daughter to another.....Kathi

Clementine_P's picture
Clementine_P
Posts: 366
Joined: Feb 2011

to hear of this turn of events with your mother.  You are a wonderful daughter (just like Kari told us!) and are doing all the right things for your mother.  I am glad to hear that you are there for her and doing everything to help her to be comfortable.  I wish you and your family (and especially Kari) peace during this heart wrenching situation.

 

Be well, 

Clementine

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1654
Joined: Jan 2011

I'm so sorry you and your family are dealing with this at this time.

Thank you so much for taking the time to update us about your mama. She was one of the very first people I prayed for (and continue to) when I was dx last year. I always think of her. We were all worried about her since we haven't seen her post. Your mom is an inspiration to all of us and we love her.

You and your family will be in my prayers. And I will pray for our dear sweet pink sister Kari not to suffer. To feel at peace.

Sending you and Kari all my love.

 

Double Whammy's picture
Double Whammy
Posts: 2299
Joined: Jun 2010

as well as the rest of your family.  We have loved Kari and will continue to.  Thank you for letting us know the latest.  It sounds like you're the best daughter a mom could have.  Thank you for all you do for her.

Love,

Suzanne

survivorbc09
Posts: 4378
Joined: Jun 2009

I keep lighting candles and praying for Kari.

 

Hugs, Jan

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Thanks for keeping us all up to date when I know from sad experience how your heart has to be breaking every waking minute. You have been fighting right alongside your Mom this entire time and you must be tired beyond all belief. My hope and prayer is that your Mom knows comfort and peace as she passes, and that you and all your family will also find all the comfort and peace you can in the times to come.

Love,
Joe

Jean 0609's picture
Jean 0609
Posts: 2328
Joined: Jun 2010

We all love your Mom very much and she is a special sister to all of us.  Thank you for being there for her and for the update.  I know this is so hard for you too.

 

xoxo,

Jean

 

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Jean, 

I remember Mom mentioning you a few times. You were very important to her. Thanks for the kind words and thoughts. 

KarLee

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

I am sorry the news is not better. Please know that you and your mom are in my thoughts. Thank you for being there for her.

Hugs,

Georgia

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

Thank you so much for the contact.  Everyone here prays for your Mom continuously, and you are certainly making the right decisions.  Much love and comfort to you and your family.  Linda

aisling8's picture
aisling8
Posts: 1275
Joined: Feb 2010

You're all in my prayers.

xoxo

Victoria

Lynn Smith
Posts: 1265
Joined: Mar 2011

Thank You for the update on how your mom is doing.We all wondered about her recently when she hadn't posted.Glad she's comfortable but really wish things would be different.She is a brave Lady.

Thinking of your mom and the family. Has to be hard around the holidays.

Lynn Smith

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I will be praying for Kari and I am sending big comforting hugs to you Karlee.  I was also very worried since I hadn't seen any post from Kari in some time.  Thank you for posting and sharing with us.

Hugs, Diane

fauxma's picture
fauxma
Posts: 3535
Joined: Dec 2008

My kind thoughts and prayers for you, your mom and the entire family.  This is such a hard thing to go through and my heart goes out to you.  Your mom is a very special women who raised an exceptional child.

 

tommaseena's picture
tommaseena
Posts: 1771
Joined: Feb 2009

Thank you Karlee for the update of your mom.  Prayers and comfort for you and your family at this time.  Your mom is one very special woman for sure.  Hugs for all of you.  Margo

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

It's hard to say what I want to say as I don't want to face the reality here.  Kari has always been an inspiration to everyone here and loved by all. 

I guess I knew from Kari's other posts that this was inevitable, but, I still don't want to believe it.

I am praying for Kari and for her family.  Kari, please know how loved you are by everyone and I mean everyone!

Love you Kari!

linpsu's picture
linpsu
Posts: 727
Joined: Mar 2010

KarLee -

My heart is breaking for you and your famlily.  Kari is so important to all of us and we pray for her comfort at this time.

Hugs,

Linda

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I will be praying for a miracle and I am sending lots of hugs, support and love to Kari and to you Karlee.  What a wonderful daughter you are to keep us informed.  I know this must be so difficult for you.

The pink sisters are here for you and will always be here for you.

With lots of love,

Noel

linpsu's picture
linpsu
Posts: 727
Joined: Mar 2010

KarLee -

My heart is breaking for you and your famlily.  Kari is so important to all of us and we pray for her comfort at this time.

Hugs,

Linda

SIROD's picture
SIROD
Posts: 2172
Joined: Jun 2010

I didn't know your mother but have been reading her story for a few years.  A valiant warrior in a disease that has no mercy.

Wishing you and your family the best as you struggle helping your mother find the peace she earned.  May Kari's journey into the good night be a short one.  

Best,

 

Doris

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Hi Karlee.  I am sorry that you had to post this news about Kari, but, I know that you are doing what Kari wanted you to do.  You're a very special daughter and I thank you for telling us.

I will be praying for Kari and I am sending the biggest of hugs and lots of love to her!

Kari is special to all of us and I still believe in miracles!

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Hello everyone. Sitting next to Mom in hospice and reading all of these comments sends overwhelming joy to me knowing that you were all such good support for her. I knew how much she cared for you guys but I did not understand the extent at which you all supported her and looked up to her. It truly is a blessing. 

Thanks for all of the kind words and thoughts and prayers. Mom is doing well today, very restful, I think we have finally cought up on her medication so that she can relax. Her vital signs this morning are normal, she is just on a little oxygen for comfort, but she seems to be holding on to something. Her eyes are open quite a lot. Not sure what it is she is looking for. 

 

Thanks Again,

KarLee 

Bella Luna's picture
Bella Luna
Posts: 1572
Joined: Aug 2009

KarLee... thank you for letting us know.  Your Mom is very dear to us.  She is such a vibrant, beautiful, and strong woman who we so admire and love.  I pray God grant your Mom, you, and the the family peace of mind and heart as she begins the next phase of her journey.  God bless.

Ines

 

butterflylvr's picture
butterflylvr
Posts: 943
Joined: Apr 2011

Your mother will always carry a special place in all of our hearts, she is one of many warriors on this board who have been a true inspiration to me along my journey. Her jest for life and gung ho attitude brought smiles to my face. Even on some of her hard days she always found the strength to reach out to others. I know I don't need to tell you how much we love and adore her. My love and prayers go out to you, Kari and your entire family... Don't ever second guess what you are doing isn't enough, there is a reason your mother chose you for the role... I pray your mom finds comfort and peace these final days of her earth journey. She's going to make one beautiful angel in the heavens above... God bless and comfort you all during these sad and difficult times.

Hugs,

Lorrie

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I am sending miles of love to you Kari!

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

Dear Karilee, I am so sorry, I know how hard this is. Your Mom is such a fighter. I hope she will relax for you. Thank you so much for keeping us posted. Even though we have never met your mom, and some pinks have. We Pinks know so much about each other we could really be sister's & brother's. We have traveled your Mom's journey with her and we will be with her until she is finished with it. Tell her we love her and we are right there with her. We are also here for you honey. So anytime now or later, we will be here. Love and Hugs for both.

Kathy

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Dear KarLee,

 

Thank you for taking the time to tell us about your Mom.  I know that must have been difficult for you, but we do appreciate knowing.  It does make my heart heavy.  Your Mom is truly loved by many here, including me.  Iwish for peace for dear Kari, for you, and for the rest of your family and friends in the coming days.

Miles of love,

 

Linda

survivorbc09
Posts: 4378
Joined: Jun 2009

I'm so sorry Karlee that your Mom is in hospice now.  My heart really aches for you and your family.  I will be here for her and for you.  Thank you for posting this news and give your Mom the biggest of hugs from me.

 

Hugs, Jan

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

all love your Mom Karlee!  Even the times when she would come on and post bad news, she would still say something positive and end it with the "miles of love". She would post encouraging support to anyone on this site that needed it, even though she was having a hard time. 

I thank you for this update and will be praying for Kari.  Please give her a big hug from me and please keep updated.

 

Sue

salls41's picture
salls41
Posts: 340
Joined: Apr 2012

I am so sorry you are going through this. I was with my Mom in her final days of lung cancer, it was the hardest thing to go through for me and I am sure it is for you as well. I am glad her pain is minimal now. I wish I knew your Mom for a longer time. She was always encouraging to me. ( I also have triple negative bc but I am NED for now). I pray for strength for you, her dear daughter. I know how much she loves you!!

God Bless you!

Sandy

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

It's easy to write kind words about your Mom.  She is certainly a very special lady!  I've been praying for her and always look for any update from you Karlee. 

How is she doing?

 

Love to Kari and you!

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

KarLee posting an update:

Mom is approaching the end of her second week since she was admitted to hospice. She is still nonverbal and has not ate or drank since admission. It is so difficult to see someone go through the amount of suffering that she has been through in the last weeks. I have always said that there is a reason for everything, but this is making it very hard to understand why anyone would possibly be dealt the cards that Mom has been dealt. 

I hate to sound negative, but it is very difficult to understand why.

Despite this, i do still count the blessings that have come out of this experience. I look back at all the things that Mom was able to do because of the life sustaining treatments that she was gifted. In the last year and a half she traveled to Texas, Arizona, Cancun, and Denver with her closest family and friends. She got to go on a river fishing trip, see her Son graduate and her Daughter get married. She had two more holiday seasons and thanksgivings, two more birthdays and countless conversations and opportunities to spend time with those who are closest to her. 

Thinking about the positives helps. Makes things bearable. Makes me understand that there are prices to pay for everything in life. Mom got to have all those experiences, and now is paying the price. Still doesn't seem fair, but sometimes you can't make sense of everything.

That's all for now. Sorry it took awhile to get an update posted. Sometimes it's hard to find the right words and I hate posting bad news for all you amazing fighters who are in the midst of all different stages of your battle. Just know that for every sad story, there is a happy story. Keep fighting and now that you are always on my mind and in my heart. 

KarLee

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I don't know how difficult this is for you Karlee, but, I try to imagine. Thank you for the update as we all continue to pray for Kari and for you.

Love to you all,

Diane

Clementine_P's picture
Clementine_P
Posts: 366
Joined: Feb 2011

I took out the formatting though and here is what she said:

 

 

PinkKari09 Update 1/7/12

KarLee posting an update:

Mom is approaching the end of her second week since she was admitted to hospice. She is still nonverbal and has not ate or drank since admission. It is so difficult to see someone go through the amount of suffering that she has been through in the last weeks. I have always said that there is a reason for everything, but this is making it very hard to understand why anyone would possibly be dealt the cards that Mom has been dealt.

I hate to sound negative, but it is very difficult to understand why.

Despite this, i do still count the blessings that have come out of this experience. I look back at all the things that Mom was able to do because of the life sustaining treatments that she was gifted. In the last year and a half she traveled to Texas, Arizona, Cancun, and Denver with her closest family and friends. She got to go on a river fishing trip, see her Son graduate and her Daughter get married. She had two more holiday seasons and thanksgivings, two more birthdays and countless conversations and opportunities to spend time with those who are closest to her.

Thinking about the positives helps. Makes things bearable. Makes me understand that there are prices to pay for everything in life. Mom got to have all those experiences, and now is paying the price. Still doesn't seem fair, but sometimes you can't make sense of everything.

That's all for now. Sorry it took awhile to get an update posted. Sometimes it's hard to find the right words and I hate posting bad news for all you amazing fighters who are in the midst of all different stages of your battle. Just know that for every sad story, there is a happy story. Keep fighting and now that you are always on my mind and in my heart.

KarLee

 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Thanks Clementine for reposting Karlee's newest update.  I couldn't read anything either, just had symbols.

Karlee, thanks for posting so we know how your mom is doing.  I am including, as always, Kari in my daily prayers and will never stop. 

I love your mom and she has been such a huge inspiration to me.  She truly is my hero.

 

With many,many hugs and prayers, Megan

Jean 0609's picture
Jean 0609
Posts: 2328
Joined: Jun 2010

You are as amazing as your Mom.  I know it's hard for you, for thanks for the update.  Post when you can.  Please give her big hugs and "miles of love" for us again.

xoxo,

Jean

 

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

We all appreciate your updating us Karlee, so thanks again.  Hugs to you and your Mom! 

 

Hugs, Debby

Ctine70's picture
Ctine70
Posts: 150
Joined: Sep 2012

Thank you for the update. I am so sad to hear about your mom. Although I haven't been on the board too long I always found her to be my inspiration. She is an amazing women and you are a wonderful daughter

you will both be in my thought and prayes 

 

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I don't know if it's my computer or what, but all I see from Karlee's latest update today on Kari is a bunch of symbols. 

Anyone else see just symbols? Frown

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

I don't know how Clementine converted it, but I'm thankful.  It is hard to even get on this site.  Very frustrating.  When I finally did and saw symbols, I had no clue how to correct it.  Not that computer savvy.  So, if you see this Clementine, give us a lesson!  Thanks so much for your help.  Lex and I appreciate it:)

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Clementine, thank you!  I am thankful to you also for converting Karlee's post. 

 

To Karlee, just know that Kari and your family remain in my prayers and thank you for taking such good care of our sweet pink sister.

 

 

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