CSN Login
Members Online: 3

9 months NED

CivilMatt's picture
Posts: 3378
Joined: May 2012

Fellow H&Ners,

I am happy (ecstatic) to say after a call this evening from my radiation oncologist I am officially “NED in the head” . She said my PET/CT scan results were beautiful and it was all good. To be doubly sure I had an exam by my ENT (throat and lower tongue scope, tongue pull to gag and neck feel all-a-round) and he said all clear, your good (except for dry mouth and fibrosis, but even that is ok).

If I was a drinking man I would have a belt, instead I will just be happy and put the scanxiety to rest for 3 more months.

Your Oregon warrior,


Pam M's picture
Pam M
Posts: 2196
Joined: Nov 2009

Get down with your beautiful self!

Skiffin16's picture
Posts: 8238
Joined: Sep 2009

I knew you had it in you Matt...

Now you don't...


Billie67's picture
Posts: 834
Joined: Jul 2012

You were the first person to introduce yourself to me when I first came on and I remember thinking to myself "this guy is so positive and upbeat, I can't wait to feel like that again"
Now I can't wait to be even more like you! Way to go.......now time to celebrate.
enjoy this NED, you've worked hard for it.

wolfen's picture
Posts: 1256
Joined: Apr 2009

Congrats on meeting that guy NED! Relax and enjoy the holidays.



cureitall66's picture
Posts: 907
Joined: Aug 2012


Happy to hear your results. I know you will continue to get those NED's.. now get your jolly hat on and have a Merry Christmas!


Posts: 1503
Joined: Nov 2011

Question if I may..you had a 9month PET/CT? or just CT? I've only had the one PET/CT 3 months after my last tx and all the rest have been CT/ w contrast other than the initial stageing PET/CT.....I always wonder why some get the PET/CT and others don't. :)

All the same....one state over in Idaho I'm happy for your Christmas gift NED!



CivilMatt's picture
Posts: 3378
Joined: May 2012


At 6 months I was told I did not need any scans (just visual pokes and prods). I was upset and by the time I got things straightened out it was 7 months. I was persuaded to wait until 9 months (which I did) and then had the PET/CT scan.

First I talked with my insurance and they were ok for a scan I just had to get a doctor to order one (I also mentioned my concerns for reoccurrence, from what I’ve read). I lined up (in my mind) all four of my doctors and picked the one who liked me the best (rad onc) and asked her for a scan, she agreed and I was on for a 9 month PET/CT scan.

I’ve had a lot of trouble getting past the idea that stage IVa , scc, bot, hpv+ is no big deal. I’ve learned a tremendous amount from this forum about being proactive and your own best advocate.

Thanks Tim,


Posts: 134
Joined: May 2012

Guess he knew you had been more nice than naughty this year and deserved the gift of NED.

Congratulations and Merry Christmas!!


blackswampboy's picture
Posts: 341
Joined: Jul 2012

whoa, that's terrific.
here's a virtual shot of whiskey, to your continued health.
best wishes, douglas

lts's picture
Posts: 75
Joined: Nov 2012

Lotta NED talk on here lately. I like it.

Happy for you Matt.


Tonsil Dad's picture
Tonsil Dad
Posts: 489
Joined: Dec 2011

Congrats Matt on receiving the best three letters in the alphabet,
enjoy the Christmas holidays..." and may all your Christmas's be NED "

God bless
Tonsil dad,


jtl's picture
Posts: 429
Joined: Sep 2011

And to everyone else who has NED. I don't post much but when I do login on I always see new names so it is encouraging to the NED. Keep them coming. I am a little over a year post and so far I am pleased with the results. I have had 2 PET/CT scans sinced I finish Rads with another scheduled next March. So basically, I am getting 2 per year along with bi-monthly exams by both my ENT and Rad Onc.

I think the reason for CT vs PET or PET/CT is all about $$$$$. I prefer to get a PET but that is because my original CT did not spot my cancer as it turns out I end up getting both for comparative reasons. I did not have a lump or mass but rather an irreguar area on the lower oropharynx that only the PET picked up.

osmotar's picture
Posts: 970
Joined: Jul 2011

Another warrior joins the NED ranks!!!. Yeah....congrats..wahoooooo!!!

NJShore's picture
Posts: 412
Joined: Nov 2012


I am so excited for you! Congratulations! I am doing the NED dance for you.

What a wonderful day it is.. Now. :)

You go warrior,


ooo's picture
Posts: 107
Joined: Mar 2012

Fabulous! :)

phrannie51's picture
Posts: 4126
Joined: Mar 2012

It"s nerve wracking isn't it? I love good news.


hwt's picture
Posts: 2244
Joined: Jun 2012

That's wonderful Matt...you are so deserving. Happy way to celebrate the holidays!

luv4lacrosse's picture
Posts: 1412
Joined: Jul 2010

Matt, I am so happy for you. This makes my day, and here's to many more.

What a gift to receive before Christmas.

I am hapy for you and your famliy.

Best Christmas wishes for you and your family.



Posts: 62
Joined: Jul 2012

Very glad to hear the words NED they are always a delight. Keep up the strong spirits and hope for many, many, many more NEDs..

Mrs. Sarge
Posts: 205
Joined: Apr 2012

No one really understands like a CA survivor! So glad for you Matt and all the other NEDS!! Terrific work!!!!!

josh r.
Posts: 235
Joined: Oct 2010

Hi Matt,
Great news and here's to ya! Let's cheers again in three! josh r.

Posts: 1901
Joined: May 2012

I am so terribly pleased for you....NED meets MATT for a christmas celebration ! Hurray and continued NED forever and a day ! Katie

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network