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sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

Well 3 rads down 32 to go. 1 of 7 chemo starts tomorrow. Rad not too bad. the first day was the worst. they had trouble adjusting Jeff's mask to fit right and line up. 2nd day a little better. Today it was quick he was in there only 12 min. The tongue stick to hold it down really bothers him but he says the mask is not to bad. He comes out with these little square impressions on his face.
Thanks everyone for your wishes and prayers and most of all your words of wisdom/experiences
Sue

Skiffin16's picture
Skiffin16
Posts: 8087
Joined: Sep 2009

LOL...

Tell him welcome to our club, it's the first of many reminders of having rads.

Down the road he'll more than likely have a few other minor temporary quirks from this club we all belong.

Turkey Neck, and L'Hermett's Syndrome come to mind.

Neither particular annoying, just a reminder that you went through the experience of radiation.

Oh, I guess I should check to see if you have a bit of humor... My humor, tends to skirt a bit on the abi-normal side usually.

Best,
John

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

Hi John
I love your humor and I always count on reading your replies to me and others for a laugh, which is very needed right now. What is L'Hermett's Syndrome? I am just stressed about 1st chemo for him. I know it will most likly been uneventful, but still.
Have a good day,
Sue

phrannie51's picture
phrannie51
Posts: 3728
Joined: Mar 2012

of the mask. The first week I swore they didn't have it right...LOL...but in fact, I had to get used to that thing on my face and shoulders. Thank gawd, it takes so little time to get a treatment!!

Sending positive thoughts on his chemo. Tell him to take his anti-nausea meds if he feels sick or not. Having them already inside, keep nausea at bay...and tell him to drink all the water he can take in afterwards...flush that stuff out of his system.

p

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Getting oriented to the drill is half the battle. I asked the techs to hold the mask just off my face for 5 seconds. I would wiggle into the best position. Soon you and your techs will be a team. Rick.

CivilMatt's picture
CivilMatt
Posts: 2961
Joined: May 2012

Sue,

Yeah, those masks they is a tight fit. Don’t want you getting up to leave, gotta keep you still.

As p51 says keep drinking (until you are blue in the face) and be proactive in fighting nausea.

Keep slaying the dragon.

Best,

Matt

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

I will push the water
Sue

Skiffin16's picture
Skiffin16
Posts: 8087
Joined: Sep 2009

Neither of these will you have to worry about for a while, and not even then really...

A lot of us with rads, usually 3 -4 months post will notice both.

Turkey Neck (as we call it, LOL)...is a lot of swelling and puffed up under the chin and throat, kinda like a buck in rutt, LOL...

It's mainly due to the lymphatic fluids that build up because their normal paths of flow are damaged and hosed up from the radiation.

The fluid builds up and causes the swelling appearance.

On the SuperThread there are some suggestions on massages and such to help. But usually with time, a few months to just less than a year, they repair themselves pretty well.

L'Hermette's is the electric shock sensation you get when you bend your head forward, sort of like touching your chin to your chest.

A lot get a shocking sensation or tingle that shoots down your spine, arms, legs to your fingers and toes...

That to usually comes on a few months post rads, lastinf nearly a year or so.

Just our own little special clubs we belong to, LOL...

JG

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