Dec 07, 2012 - 7:03 pm
Since my diagnosis I have been volunteering with Iberman Angels.
The organization matches volunteers with someone newly diagnosed with the same kind of cancer you have/had. I've been matched with 2 ladies with kidney cancer so far and one really needs help. They found 2 spots on her lungs and she had cat scans today to see if it's spread to other areas but won't get the results until Mon or Tues. So poor thing is extrememly upset and crying. I've talked to her and it's helped, but she mentioned that she'd love to talk to someone whose kidney cancer has spread. I told her about this message board but she doesn't do the computer. Her husband died a year ago from colon cancer so she's by herself.
To top it off, she initially saw a surgeon who was incredibly cold. First he told her he didn't want to take out the kidney (tumor is the size of a baseball). When she said she wanted it out of her body, he replied but you might die on the table. (!!) She began crying and said she didn't want to die and he incredibly replied, Well, we all have to die sometime. Unbelievable. I told her she needs a new surgeon.
JoAnn lives in Kansas City. Is there one of you whose cancer has spread, and who would be willing to talk to her? She said she needs hope. I've told her about the many trials out there, but it's nothing like someone who has been through it.
If you PM me, she said I could give her phone # out. So hopefully, one of the 'regulars' on the board will respond to this post.