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Tomorrow is my last treatment, then on to recovery, recieved a very sad phone call a few minutes ago...

Hard12Find
Posts: 207
Joined: Sep 2012

Well tomorrow is my last day of treatment, and doing relatively well, but just received a phone call from my oldest sister. She told me she was just diagnosed with stage 3 SCC with a primary tumor on the tonsil, with lymph node involvment on the same side, where as mine was same except stage 4 because of node involvement on the opposite side as well. What a mind blower! I am encouraging her to get on this site for suppport and resources.
Jim

phrannie51's picture
phrannie51
Posts: 3730
Joined: Mar 2012

I remember that day well, and what a relief it is. The next two weeks or so might be rough, since you keep on cooking...BUT, you won't have to get up and get to radiation...and that was wonderful for me!

I'm so sorry to hear about your sister...wow, two in one family, with such little time between Dx'es...We'll pull her into the fold when she gets here.

p

susiebwell
Posts: 3
Joined: Nov 2012

Hey Little Bro, not to be left out of all the fun, I just begin. Feeding tube and port tomorrow. I am so anxious to get started so I can get done. I have too much to do for this.

Hard12Find
Posts: 207
Joined: Sep 2012

I know you do...I'll be here all the way.....I remember I had to wait a couple weeks before getting into radiation, seemed like forever.
I love you Sis and am working on some things for thanksgiving.....
J

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Susie, welcome but sorry you have to join the ranks.

You have a great tutor in your brother, but wow two siblings in such a short time, kind of makes your head spin.

I agree the sooner you get started, the sooner you will get thru it. Sounds like you have a good medical team who are moving quickly to get you on "the bus". Our last batch of survivors all rode on "Phrannie's bus" and all of the rest of us oldies cheered all of them on. You will get great advice from everyone here, so ask away if you have any questions.

Best of luck to you on this journey.

Skiffin16's picture
Skiffin16
Posts: 8087
Joined: Sep 2009

I actually had the very same x as you...STGII Tonsils and Lymnode on the same side...HPV+.

I went through nine weeks of chemo (three week cycles), then seven weeks of concurrent weekly chemo and daily rads...that was back in 2009, all clear since.

My point being, it's very survivable, and you'll get through it.

As your brother has, I'm sure you'll do just as well...

Sorry for your situation, but what a better support system on going through it than your brother.

Best,
John

fisrpotpe's picture
fisrpotpe
Posts: 1338
Joined: Aug 2010

i must just say it, this sucks X 2.

welcome to CSN, so sorry your joining us. this is the place for support and information.

both you and your bro will be in our thoughts daily.

john

if your bro can do it so can you.

CivilMatt's picture
CivilMatt
Posts: 2964
Joined: May 2012

Hi Jim and Susie,

My goodness what an awful two fer.

Jim, congratulations on your final tomorrow, I’ll be ringing my bell for you. You sound good; I hope you are feeling well. In a few weeks you should really be on the mend.

Susie, welcome and sorry you are here. It sounds like they are wasting no time getting started. Well, take a good look at Jim and know you can do it. If you have any questions, feel free to ask.

My, my, my, this is a first for me.

Best,

Matt

ratface's picture
ratface
Posts: 1248
Joined: Aug 2009

all at the same time and on the same thread and wow. Welcome to you both. You might mention it to your individual oncologists just for posterity sake. All the best to you sibling folk.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

What a relief the end of rads is - something about knowing that even though you're not going to wake up the next day completely recovered, at least you know you're not doing anything to cause more damage.

And how hard to learn that your sister will be travelling down the same road you've been on.

Welcome to the group, Susie. Sounds like you're ready to kick into action - good. Do well.

luvofmylif
Posts: 344
Joined: Sep 2012

Congrats on the end of the treatment and the ringing of the bell, although, it is tempered with the news about your sister. I feel so bad for her but glad she and you have each other to lean on. Enjoy your new found freedon not going to radiation every day. After today we have 4 left.

Joan

phrannie51's picture
phrannie51
Posts: 3730
Joined: Mar 2012

THE END!! So close...we'll be here ringing the bell for you next week!!!

p

luvofmylif
Posts: 344
Joined: Sep 2012

Congrats on the end of the treatment and the ringing of the bell, although, it is tempered with the news about your sister. I feel so bad for her but glad she and you have each other to lean on. Enjoy your new found freedon not going to radiation every day. After today we have 4 left.

Joan

hwt's picture
hwt
Posts: 1935
Joined: Jun 2012

No doubt your bond as brother and sister will be stronger than any other when you both have this behind you. God Bless! As a team, you are halfway there :-)

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Welcome to the group, but at the same time sorry we have to get to know each other. This group is great and so supportive of each other. I am glad to hear that you are getting the ball rolling quickly. The waiting is so hard.

anniew_0903
Posts: 13
Joined: Jan 2011

my husband was about 3 month post treatment for stage 4 bot cancer when we learned that my brother in law had also been dx with the same thing! Crazy..you can't imagine that it can happen to begin with and then to have other family members dealing with it. At least you can offer alot of insight and support.

katenorwood
Posts: 1829
Joined: May 2012

Jim and Susie,
Wow....well Susie, you're brother as you already know is a true fighter. And from your first post here it sounds like you are too ! Does anyone know if this has ever been linked to be hereditary ? I'm assumming the doctors will be following this one closely. Jim fantastic news on last day of treatment ! Time to heal and then comes NED. Susie will be right behind you ! I have a kid sister Suzie too, 2 yrs apart. Best to both of you, and welcome aboard Susie ! Katie

Tim6003's picture
Tim6003
Posts: 1495
Joined: Nov 2011

Jim....so very glad you are done! NED around the corner my friend. Susie....I'm sorry you have to join out club...but what a great resource you will find here.

Bless you both ...prayers whispered all is and goes well.

Best,

Tim

Hard12Find
Posts: 207
Joined: Sep 2012

Just finished treatment, recovery starts now. Matt I hope you rang that bell for all your worth, I just had to look up a sound effect and play it on the computer, but somehow I feel better....Thank you all my friends for the support for myself and my sister, she got her peg and port today and is resting at home, looking forward to Dave and Vivianne, John and Joan, not long now guys.....
Hurray!!
Jim

luvofmylif
Posts: 344
Joined: Sep 2012

Congrats on the end of your treatment. I hope soon you start feeling better. I am thinking of your sister and hoping she gets through the treatment with as little problem as possible. Thanks for all the positive thoughts. Four more for us.

phrannie51's picture
phrannie51
Posts: 3730
Joined: Mar 2012

Jim!! Tomorrow you don't have to go anywhere...you can sleep all you want and need.

Welcome Susie...as others have said, I'm sorry you had to join this club, but at least you are signed up and ready to use this site....You'll be so glad you did. They are a warm, kind, knowledgable group of people...and here to lift you up when things get really stinky.

p

CivilMatt's picture
CivilMatt
Posts: 2964
Joined: May 2012

Hi Jim,

I did indeed ring my bell (for all it’s worth).

Congratulations, I am glad the formal part of this ride has ended for you. Relax, relax, relax.

Best,

Matt

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

NOW whatever will you do for entertainment?

Hard12Find
Posts: 207
Joined: Sep 2012

I am sure I will think of something.....
Jim

vermontgirl's picture
vermontgirl
Posts: 66
Joined: Nov 2012

Susie, your brother was one of many who responded earlier this week when our world changed overnight and we found my husband on this path with scc. He offered so much comfort and information and among all the others enabled me to gather my strength and rally for a fight. You have a great resource in your brother and all of us here.

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