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result of scans

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

wow 9 am and I just woke up. Stress does rob you of sleep.....yesterday I was awake at 2am...haha.
so last night my general doctor phoned to say my ct scan seemed clear....no word on CEA and i still have to do blood and go the the onc at the end of the month.

Feeling so blessed, so grateful, and kind of puzzled I think as to this continued NED.

brief review for anyone new...diagnosed in 05 stage IIIb colon cancer....resection and chemo. Then in 2006 mets to liver and declared palliative...young surgeon did liver resection....months of xeloda....08 mets back to liver....another resection and xeloda and oxalyplatin...NED since then

please I beg you do not think I am showing off.....I hate doing this....but please know at the beginning of your journey.....there is hope

love to all

mags

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 466
Joined: May 2012

YAY! So glad to here good news. Don't ever think you are showing off. People like me that was diagnosed April of this year need to here positive news to give us hope. May you stay NED forever. Hugs
Sandy:)

Sundanceh's picture
Sundanceh
Posts: 4306
Joined: Jun 2009

LOL, Maggie:)

There is always that feeling of guilt when you're doing well and another person is not...

Your story shows something to the NEW and the OLD alike (like me)...

For example, when I look at you, I see someone who was dx'd in the same year that I was...someone who has had recurrence like me...and a recurrence again like me.

Having just gone over 15-months clear myself (never happened in my 8-yr fight), I find myself in my own personally uncharted territory.

And then I see you chugging along 4-years clear...

And for a moment, I dare ask myself..."Will I have the same success as Mags has had?"

At 15-months clear in an 8-year battle, I'm still in my infancy stage of being clear and more time has to roll off the clock for me to even consider that I might go as long as you have.

But your story to me, sets the bar high and gives me something to aim for - something to physically see and go for..."hoping" (there's that word) that I've got the chance to "just maybe."

I've been snake bit 3x with this stuff, so I'm a little jaded about what I still think my future holds. But the truth about that, is that I'm just using my own insecurity to shield me against the thoughts and feelings that I have from the inevitable thoughts that cancer will someday find me again...

It's so hard to break the ties that bind...

But, maybe I will be one of those that walks away...next scan would make 21-mos...the one after 27-mos...I might dare to dream then...

But, that's scary for me, because I don't want to fall again, Maggie May.

I was thinking about that this morning when I was showering for work....how hard it is everyday for me still to conform to society and meet all their deadlines and committments...when it's so hard to move and get ready and work like a machine.

And I thought of myself for some reason back in last year's fight...never being up at 6am in the morning...and just sick and bedridden all day long.

I tell you, Maggie...I just can't do this anymore if it comes back...I just hope it's over for me now, like I feel it is over and behind you now...at least it's getting smaller in your rear view mirror.

So, you're not showing off with your good news...I actually liked hearing that this morning...and because of you, I wrote another long winded post...

Our consciences play a mean game of ping-pong when we are deciding to post a good story amidst so much sadness...

But, that is the sole nature of this board...so hearing good stories always water the roots of the foundation that this cancer house is moored to.

Thanks for Hope today...I just talk about it, but you're actually doing it.

Love/Craig

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

dang you Craig...I am sitting here trying to have a cup of coffee

and I am blubbering and crying all over my keyboard....

I love you with all my heart....

mags

janderson1964's picture
janderson1964
Posts: 1713
Joined: Oct 2011

I replied to your other post abou what great news that is. Your are not bragging. Only giving hope as you said not just to the newly diagnosed but to us veterans as well. Our cases are similar. I am coming up on 7 years since being diagnosed stage IV and have had 3 liver resections

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

wow wow triple wow.....

but I do not want another liver resection today ....hahah but you my dearest give me great hope too

have a big big hug

mags

Lovekitties's picture
Lovekitties
Posts: 2970
Joined: Jan 2010

If this is "showing off" please do it every year so that everyone in ear shot can hear that it is possible to be NED!

Glad you got some needed rest and gladder still that the news was so good!

Hugs and love to you. Keep giving us hope.

Marie who loves kitties

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

... from doing back flips, that's so awesome, Mags! Congrats on continued NED.

YoVita's picture
YoVita
Posts: 556
Joined: Mar 2010

Yes, keep it up. It's good for all of us to hear your good news. Happy for you.

jen2012
Posts: 1228
Joined: Aug 2012

Awesome! You guys keep showing off!! I hope you are celebrating your good news.

Sonia32's picture
Sonia32
Posts: 1069
Joined: Mar 2009

great news! and no you are not showing off please don't say that. any news of ned is hope for those still in battle

smokeyjoe
Posts: 1428
Joined: Feb 2011

Mags this just shows what IS POSSIBLE!!! Great news!!!

Semira's picture
Semira
Posts: 286
Joined: Mar 2012

Mags, THANK you for the good news and the hope. We are nearing "our" 1 year cancerversary and so we need good news to keep calm.

Hugs from Germany
Petra

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

enjoy the good news, get some sleep and keep sharing.
hugs,
Pete

Cathleen Mary
Posts: 609
Joined: May 2011

This is the most beneficial 'showing off' I've ever experienced. Your good news is welcome and provides much hope. NED should never be underground.
Enjoy the good news!

Hugs,
Cathleen Mary

steved
Posts: 836
Joined: Apr 2004

Replied to your scanxiety post but lost it on posting and didn't have the energy to repost so thought I really must reply to this great news. Please take time to enjoy and celebrate without any guilt or worries of showing off. Anyone who fights this illness deserves to celebrate any moment of hope and positivity that comes along and ere are many here who will share in your celebrations-myself included.

I hope also by really recognising the scale of this great news and what it really means in your journey it might add to eroding some of the doubts and anxieties that overwhelm whenever it is time for tests and scans- it really is true that in time those feelings reduce even if it didn't feel that way for you over this week.

Thank you for giving us all something to celebrate,

With love,
Steve

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Wonderful news! I really needed some cheering up... I am just having a couple of down days....I don't know if is fatigue or just a slight case of thinking too much about what might be. Your story gives me encouragement ..l that there hope for the long term.

Alex

lauragb
Posts: 368
Joined: Aug 2011

Thank you so much for "showing off"! This is the kind of news I love to hear.
So happy for you.

Light to you.
Laura

janie1
Posts: 753
Joined: Apr 2011

Well now......please do not withhold good news. We need to hear it. You have been a tremendous inspiration.....and you are so, so, kind.
I would love to sip coffee with you someday in YOUR cabin. lol.

jasminsaba
Posts: 149
Joined: Jul 2011

Mags, I am so excited about your good news ... I am excited for you, of course, but also happy for me. Your good news has inspired a lot of hope and optimism in me at a time when I was feeling suddenly very vulnerable. Thank you for sharing your journey and all the best to you.

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

That means the glass is half full and I'm glad it is,,,,Big hugs Maggie. Ron.

abrub's picture
abrub
Posts: 1533
Joined: Mar 2010

Keep it coming, Mags! Sending lots of love,

Alice

Grace14
Posts: 61
Joined: Sep 2011

What fantastic news....I am sooo happy for you! You must be so releived! There is nothing worse in this world than waiting for scan results!!!!

danker
Posts: 751
Joined: Apr 2012

Yes, there is hope for all. And posts like yours prove it can be survived. Continued good luck to you!!!+

marbleotis's picture
marbleotis
Posts: 499
Joined: Mar 2012

Mags,

You give hope to alot of people. Continue to share - that is how we help each other. It helps us not fixate on our own situations.

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

MAGGIE!!!!!
I am so happy for you. We all need great news and I hope to give everyone more hope by next Monday or late Friday. I am coming up on 19 months NED. So we will see.
But, as for you, my dear, may you be shouting your good news as you blow out the candles for your 100 birthday.
Biggggg hugsss, judy

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

and you are not bragging! you should be shouting from the roof top to the whole world! this news gives all of us a boost of hope so please always let us know. it really helps us.
hugs
judy

Chelsea71
Posts: 1170
Joined: Sep 2012

Congratulations!

Curious about your lifestyle. Diet, foods you avoid etc... Do you take cimetidine, MCP or any other supplement? Whatever you're doing, you should keep it up. I seem to recall you being from Ontario. Also wondering what hospital did your liver resections.

Thanks,

Chelsea

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

This is just wanted and needed to hear today. You give hope! Congratulations and much love!

herdizziness's picture
herdizziness
Posts: 3451
Joined: Apr 2010

I needed that right about now. Thanks for posting!!
Winter Marie

wolfen's picture
wolfen
Posts: 1196
Joined: Apr 2009

So great to say "I told you so". I never get to say that one at home. My hubby always does. LOL

Luv Ya,

Wolfen

relaxoutdoors08
Posts: 521
Joined: May 2011

Thinking of you this beautiful Fall Day...Hope and Prayers for you.
NB

Kathleen808's picture
Kathleen808
Posts: 2313
Joined: Jan 2009

Mags,

I celebrate with you my friend!!! What joy to hear the words that you are clear! Thank you for sharing the joy.

Aloha,
Kathleen

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

thank you so very much for well wishes....

a note for Chelsea....yes I am in Ontario and my surgeries were done in London at the University Hospital by Dr. Douglas Quan.

To answer your question about life style no I do not take anything other than a multi vitamin. I go the local YMCA and exercise moderately but I also eat, drink and do pretty much anything i like. I do not smoke ....that's about it....I cannot think there is anything in my lifestyle that particularly contributes to my NEDness

good luck to your husband...

mags

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

Now I have scanxiety. Saw the doc today . I have to have x-rays of my chest and a ctpa scan of my heart and lungs. trying to find why I wakein panic at night unable to get enough oxygen. I breath ok just don't absorb enough oxy. Ron.

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

well dang it Ronnie.....what the heck is that about.??? whatever it is you must be scared in the night without enough oxy

sorry you have another blip added to your plate Ron.....we are here...and for sure I have your little old colonial hand in mine. Any idea of scan dates????

hugs....mags

Lovekitties's picture
Lovekitties
Posts: 2970
Joined: Jan 2010

Have you had a sleep apnea test? If not perhaps they can do one.

It can definately cause the panic of not enough oxy while sleeping, and sounds like a reasonable explanation if you are not having the problem while awake. My son has sleep apnea and does much better now that he has the c-pap machine for night time.

Praying for best results on the tests.

Hugs,

Marie who loves kitties

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

I had an apnea test a few years back. I had the leads on all night. The apnea doc said that I did not stop breating but I did stop absorbing enough oxygen. She did not even suggest trying a machine just looked at me from head to toe and said you are a big bloke just lose some weight and you will be fine. Same reaction I got from a gp when I asked for a colonoscopy years ago. When I asked If I could still have a scope. She said 'what don't you understand about too fat' The rest is history.
Unfortunately I do get the problem when I am awake. It is not asthma but it is asthma like. It's like when you have been under water and you break through the surface and take a deep breath. Trouble is the big breath doesn't help. I use a ventolin puffer and after ten minutes it seems to help. It seems like some sort of inflamation in my lungs. The ct scan I think is to rule out cancer ,small blood clots or other mould infections. after that we go to other nastier possibilities . My neuropathy is so bad I can hardly walk and my hands are getting bad,it has affected my voice and swallowing. He hinted that my symptoms can also be caused by neurological problems like ms or mnd. I will get the scans done next week and take it from there

maglets's picture
maglets
Posts: 2422
Joined: Jun 2006

oh Ron...this sounds so hard for you..is there any chance of mould because of all the floods you have been through?

don't jump too far ahead...

gosh you have had such a hard row ....okay...scans next week...no panic till then...here any time you want to talk....

thinking about you dear boy

mags

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

Urgent ,had them done today. What an amatuer hour . The technician tried three times to hit a vein ,once in my right arm and twice in my left. He was in a foul temper and he called a doctor in to do it. He put it in the back or my left hand. The plug blew out of the canula and I sprayed everything with blood including the surly tech.Now I get to wait over the weekend. I have been wondering about fungal infections. They are not good,hard to get rid of. I'll worry about that on monday,I have to work most of the weekend. Hugs Ron.

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

Urgent ,had them done today. What an amatuer hour . The technician tried three times to hit a vein ,once in my right arm and twice in my left. He was in a foul temper and he called a doctor in to do it. He put it in the back or my left hand. The plug blew out of the canula and I sprayed everything with blood including the surly tech.Now I get to wait over the weekend. I have been wondering about fungal infections. They are not good,hard to get rid of. I'll worry about that on monday,I have to work most of the weekend. Hugs Ron.

wolfen's picture
wolfen
Posts: 1196
Joined: Apr 2009

Have they checked you for congestive heart failure? Even though hubby has pacemaker and is on many heart meds, he has been hospitalized several times because his heart just can't pump hard enough to remove the fluids from his body. He gets fluid in his lungs and then feels like he is suffocating. They give him IV lasix and he pees out about 10 gallons. LOL

Seriously, though, I wonder if this could be the problem. Hope you have an answer on Monday.

Luv,

Wolfen

ron50's picture
ron50
Posts: 1301
Joined: Nov 2001

When I first started suffering from edema they sent me to a heart specialist. He did a stress test and a heart ultra-sound. He said my heart was excellent. I had further tests that showed my idneys are not so good. My current protein loss is 2.7 grams a day which isn't good .I take micardis plus to lower bp and it also contains a diuretic.Best of luck to your hubby it is not a nice feeling taking a deep breath for nothing,Ron.

Brenda Bricco's picture
Brenda Bricco
Posts: 558
Joined: Aug 2011

Hi Mags, I really need to hear the success stories so thank you, thank you for posting your good news. I hope no one ever has hard feelings because someone is posting good news; that is one of the ways we are able to keep hoping. Congradulations and keep up the NED!
Brenda

relaxoutdoors08
Posts: 521
Joined: May 2011

We are so grateful for all of you who have been there fighting through this journey. But most of all we are glad to have you hear sharing that there is always hope.

Enjoy that Fall weather at your beautiful cabin and feel that wonderful joy in appreciating life.

Thank you so much
Prayers for continued good health.
NB

tko683
Posts: 257
Joined: Aug 2011

So happy to hear your wonderful news. It is wonderful and very inspiring to hear NED news for Stage 4. I tell my husband about every single one because I think sometimes it is easy to get very discouraged but seeing you and others gives hope to others so thank you so much for sharing and congrats on NED. Praying for many more years of NED for you. Hugs, Teri

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Champagne! Lots of champagne!

RickMurtagh's picture
RickMurtagh
Posts: 534
Joined: Feb 2010

Great news! BTW in the years now that I have read your posts, you have been nothing but encouraging. Anyone who would think you were showing off would have to be self-obsessed and know nothing of you.

Rick

PatchAdams
Posts: 272
Joined: Nov 2011

That's awesome news.

Annabelle41415's picture
Annabelle41415
Posts: 4314
Joined: Feb 2009

What a relief for you. Bet you are sleeping much better now. It's always good hearing good news. Glad you shared that with us.

Kim

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