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From bad to worse (Brain tumor now)

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Sorry I havent been posting up much or in a while but my plate has been full and not getting much computer time.
Anyway as some may recall I have been fighting lung mets and have been going to MD Anderson to have them surgically removed (so they said) left lung was done fine and after a 6weeks wait I returned back to have rest of nodules in right lung removed.
After a ct scan and surgery awoke and Dr said removed all nodules but 1 as it was distant didnt want to remove it to risk losing to much lung capacity.

But since it was small (dime size) best option would be to have it removed via radiation. Fine I say, lets do it. Part of it would require having a fresh PET scan done so I returned this last monday to have abdomen/chest/& neck, head/ PET scan.

We live 4hrs away so as were driving home Tuesday eve I get a phone call from MDA "Can you came back thursday for a Brain MRI" HMMMMMMM wtf I say nobody told me anything about this need to talk to Dr and I'll get back to you. Finally get ahold of nurse Prac in his office ans she explained they saw something on head pet scan and just want a closer look.

Mind you have been having bad headaches to last month by the way. Well my worst nightmare came true. MRI confirmed not one but 2 tumors on brain!!! So now lung met radiation is minor compared to this and put on the back-burner (as it grows while brain work is being done) Anyway I dont know for sure yet but so far I believe tumors are operable. Am being admitted tomorrow and surgery soon. Ill be outta pocket a week or 2 but will have laptop with me so if possible will try to post up a update.

This sucks so bad, I was doing well and not on chemo since jul. Thinking I was fixing to turn the damm corner now this! Really cryed some alot today and this **** is so damm sneaky. Pissed ome off bad! Keep the reports coming folks, just wanted to bleed heart a lil here.

Kenny H.

tootsie1's picture
tootsie1
Posts: 5016
Joined: Feb 2008

I'm so sorry to hear this news, Kenny. I'll be praying for you.

*hugs*
Gail

So Worried
Posts: 111
Joined: Aug 2012

I am so sorry about the recent finding. Grrrrrr!!! I just want to let you know that I will be praying for you. Please update us when you can and good luck with this.

So Worried
Posts: 111
Joined: Aug 2012

sorry dbl post

Semira's picture
Semira
Posts: 303
Joined: Mar 2012

... what a rollercoaster ride :-(

Thinking of you and hope surgery will an option and be successful.

A big hug from Germany
Petra

ron50's picture
ron50
Posts: 1322
Joined: Nov 2001

Sorry to hear the latest news mate. Not good but we will just have to see how quickly and effectively they can treat them. You have my best wishes for a speedy resolution... Ron.

janie1
Posts: 753
Joined: Apr 2011

You're at a good hospital, Kenny. They move fast there which is good. Hopefully they can do surgery. They'll take care of you.
I know it sux big-time but hope this is treatable a couple of different ways.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 474
Joined: May 2012

So sorry, but it sounds like a good plan in place and you're at the best place. I have not been there but if reaccurrance happens that is where I will go. Good luck with surgery and at least it will be happening fast.
Sandy :)

Lovekitties's picture
Lovekitties
Posts: 2995
Joined: Jan 2010

I am so very sorry to hear this news.

Sending you my best vibes and prayers that surgery is possible and your recovery is easy.

Hugs,

Marie who loves kitties

Jaylo969
Posts: 826
Joined: Jan 2010

Hugs Kenny.Keep us posted if you can and know that you will be in our thoughts and prayers.

-Pat

PhillieG's picture
PhillieG
Posts: 4683
Joined: May 2005

Sorry to hear this Kenny. Seems like there's always something we need to be careful of...

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Will be praying for you and for a fast healing ,want to see you fishing soon!
God bless you!

smokeyjoe
Posts: 1428
Joined: Feb 2011

I'm speechless, cannot imagine what your feeling. Seems your doctors want to move quickly on this, so that's a good thing. Keep us posted.

Sundanceh's picture
Sundanceh
Posts: 4342
Joined: Jun 2009

No doubt:(

I'm glad you got some of that out of your system, Kenny...some tears here and there can be just enough sometimes to round off some of the sharp edges...it's good to hear you talk about it too...

I always worry when I hear the word brain mentioned...I'm gonna' say nothing, because I'm not not even sure which way I'd go...sounds like the plan is already under way...and I'll be standing by anxiously awaiting to hear the word of how it all went down.

I'm sorry you have to experience this...I've watched 4 cases...and you make 5...I remain hopeful for you...whenever you feel well enough to let us know, we'll be here...

The very, very best, Kenny...the very best to you!

-Craig

Phil64's picture
Phil64
Posts: 519
Joined: Apr 2012

Kenny,

So sorry to hear your news. The longer I'm dealing with this stuff the more I'm convinced that all any of us can do is take it one day at a time and trust in God. And hopefully we can handle today's challenges, maybe with a little help from our family and friends.

God Bless,
Phil

Annabelle41415's picture
Annabelle41415
Posts: 4408
Joined: Feb 2009

Sorry for this news and wishing and hoping the best out come. You are in my prayers.

Kim

YoVita's picture
YoVita
Posts: 566
Joined: Mar 2010

... we'll keep listening. Sorry about the bad news. You've been through enough. Hopefully tumors are operable. Do keep us updated.

annalexandria's picture
annalexandria
Posts: 2322
Joined: Oct 2011

What a shock for you, and what a terrible way to learn about it. The doctor really should have contacted you personally, not just put in the referral. Cancer is such a hope stealer, but try to still have some hope and take things one step at a time...get the damn cancer out of your brain, and then get the radiation done on the lung. It's a longer, bumpier road than expected, but you can do it...and we'll be here to support you every step of the way. Many hugs~Ann Alexandria

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

Kenny, what a terrible shock. You have every right to cry and be angry.
I join the rest of the "family" in wishing you the very best outcome. Prayers for you and your family,
Judy

janderson1964's picture
janderson1964
Posts: 1830
Joined: Oct 2011

Damn Kenny. I would have cried a lot too facing all of that. I almost cried reading your post. You are right this is such a sneaky disease. Sometimes i think the cancer has a mind of its own and hides for long periods of time so we will let our guards down. And them BAM it rears its ugly face and attacks again.

Keep fighting brother and cry until cant cry anymore. Then vet real angry and take back what is yours from the beast.

marbleotis's picture
marbleotis
Posts: 526
Joined: Mar 2012

Your post made me cry too. But do not let cancer take anymore from you. Continue to fight and please let us all know how you are doing. We all really understand.

LivinginNH's picture
LivinginNH
Posts: 1343
Joined: Apr 2010

Oh Kenny, I'm so sorry that you got this news. :( You're in the best place their is, so we'll just pray for a successful surgery.

All my best,

Cyn

fatbob2010's picture
fatbob2010
Posts: 461
Joined: May 2012

Kenny,

I do not know how I would handle the news you received. MD Anderson is said to be very good and I'm very hopeful they will respond quickly.

Hugs and prayers of healing.

Art

Cathleen Mary
Posts: 645
Joined: May 2011

I am so sorry that you have to go thru this. Know that a lot of people are pulling for you. Be assured of my prayers and hope for a good outcome.

Hugs,
Cathleen Mary

Aud's picture
Aud
Posts: 477
Joined: Oct 2009

I am so sorry you are going through this. You are in my thoughts and prayers. Holding you in the Light for successful surgery and healing.
~Aud

Kathleen808's picture
Kathleen808
Posts: 2319
Joined: Jan 2009

Kenny,
I am so sorry to hear about the brain mets. Really, I am hugging you from across the land and sea. You have a great team. You will stay in my prayers.

Sending love, prayers and aloha.

Aloha,
Kathleen

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

Kenny,

I am so sorry to hear this news. I know you're in the hospital now - I hope things are going well there and a definite plan is in place. You're in my thoughts and prayers.

Sandy

taraHK
Posts: 1961
Joined: Aug 2003

I am so very sorry to hear this. Just what you don't need! Good to know you are in excellent hands.

As you may recall, I had brain tumors (3) diagnosed last December. Scared the hell out of me. But, they were treated (in my case, by whole brain radiation -- to get rid of any invisible nasties -- followed by stereotactic radiation to the three lesions. I've had follow up brain MRIs and have had no further problems. Functionally, I am 100% -- still working, still walking, still playing.

Obviously, it's not what anyone wants to hear....

I will be thinking of you. Please keep us posted as you are able.

Tara

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

know what to say Kenny,i too am in shock.those are words we all fear.sounds like you have a good team of docs and a plan.keep us updated if you can...Godbless...johnnybegood

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

I am so sorry to hear this. Hopefully thay can knock this out and give you another break.

Alex

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Yes this really sucks big time. I hate cancer and everything it does to us. You are one heck of a fighter so I know you will do what it takes. I will be praying and thinking of you big time. Jeff

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

this just sucks. you hang in there & i will pray for you.
hugs
judy

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

i agree. cry all you want!

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

That sucks so much, hopefully they can get to them easily and get those nasty little buggers out!!!
Winter Marie

thingy45's picture
thingy45
Posts: 588
Joined: Apr 2011

O Kenny, this really sucks !! But you are in a good hospital and in good hands. Positive thinking will help and we are all behind you.
In my prayers and sending healing thoughts,
hugs, Marian

clarice16
Posts: 7
Joined: Oct 2012

hi i am new here but read your post and just want to wish you all the best and let you know that i will be praying for you and your recovery

GOD BLESS

mukamom's picture
mukamom
Posts: 389
Joined: Oct 2010

how sad it made me feel to read this....

Kick cancer's @ss, Kenny

Praying for you

Angela

plh4gail's picture
plh4gail
Posts: 1232
Joined: Oct 2010

Thinking of you and hoping for a great outcome and smooth recovery!

danker
Posts: 772
Joined: Apr 2012

I too would cry my eyes out. Best of luck to you!!!

Brenda Bricco's picture
Brenda Bricco
Posts: 561
Joined: Aug 2011

I am so sorry to hear this Kenny, let's get to getting that stuff taken care of and go back to the lung issue. I know when I get too much info/stress at one time I can't really talk until I have cried. You cry as much as you need to and I will be praying for you.
May GOD bless you.
Brenda

relaxoutdoors08
Posts: 521
Joined: May 2011

Dear Kenny,
So so sorry to hear the news. Glad you will be at a great medical facility getting the most urgent care. My thoughts and prayers are with you.
NB

RickMurtagh's picture
RickMurtagh
Posts: 540
Joined: Feb 2010

I find myself saying that a lot lately - wow. Sorry to hear such bad news. Here is to hoping for the tumors being operable and everything getting better and not worse.

peace and best wishes

Rick

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