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steved
Posts: 836
Joined: Apr 2004

Well it is day 11postop and finally strong enough to type a lucid message on the iPad. Things have progressed as well as could be expected. They say the surgery went smoothly and was completed in one long day built they did have to take some sacrum which was less on the planner. Tumour was tethering tissue from the seminal vesicles and bladder at the front to rectum and side wall pelvic muscles. They feel hopeful they got it but microscopy is due early next week to tell about margins.
Postop felt rough. Really struggled when took steps back eg needing ng back down, but now feel more confident have made some progress though continues to fluctuate. Urostomy and colostomy working and starting to participate in changes. Adjusting to one leg feels like bigger one but not horrified by what I can see. Been able to get to sitting and standing a couple of times with loads of help but feel positive about physio. Is going to be a very long haul over months in the first instance so just focusing on short term goal eg bit more food, at present.
Family been great and due in to visit today. Kids quite comfortable here (ESP as have a wii in the room for physio) and no major reactions from them at home.
Well that's me exhausted and in need of sleep. Nice to be back and will update myself now -thanks to mags for linking things together till now.

Steve

herdizziness's picture
herdizziness
Posts: 3387
Joined: Apr 2010

Steve, it's so wonderful to see you posting!! We are all so glad to see you on the road to recovery.
Kids are resilient bunch aren't they? They tend to be a lot more accepting of changes then we adults are sometimes.
Your lovely wife through Mags has been keeping us informed and please let her know how much we have appreciated it, while we were sitting here on the sidelines cheering for you it was great to get a progress report.
Now go get some more sleep and keep on healing.
Hugs to you,
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

just rest mate,
i hope you continue to gain strength.

hugs,
Pete

MrsJP
Posts: 156
Joined: Jan 2011

Hi Steve!

So happy things are going well for you.

Best Wishes
jp

Momof2plusteentwins
Posts: 433
Joined: May 2012

So glad you are doing good. Now it's just healing time. Rest and get better. We have all been thinking about you!
Sandy :)

maglets's picture
maglets
Posts: 2396
Joined: Jun 2006

oh wow how wonderful to open the computer and see your name steved.

Well done you....I believe your plan to think in small bits is a good one. One day of healing, resting at a time.

all best love

mags

janderson1964
Posts: 1496
Joined: Oct 2011

Welcome back Steve. You are such an inspiration and now a hero of mine. You are always in my thoughts and prayers. Thanks for posting.

Jaylo969
Posts: 826
Joined: Jan 2010

Steve, it was so good to see your post when I logged on this morning.Thank you for the update and know tht we are all pulling for you and hoping your recovery goes smoothly.

-Pat

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

its so great that you are so positive.keep up the good work and just know i have been thinking of you and praying for a good outcome....Godbless...johnnybegood

Lovekitties's picture
Lovekitties
Posts: 2878
Joined: Jan 2010

Dear Steve,

It is wonderful to see you posting again, and not just because of your boyish charm and good looks...lol.

Those 'big elephants' are best eaten one small bite at a time...so setting daily goals is good.

Prayers that all goes smoothly for you with your recovery.

Many thanks for arranging to keep us updated.

Hugs to you and the family,

Marie who loves kitties

Cathleen Mary
Posts: 512
Joined: May 2011

Steve,

Seeing your post this morning made my day! Welcome back. We all held our collective breath for you. Be gentle with yourself...You have been through a lot. The kids are great reminders of why you put yourself through this and I bet they bring a smile to your face. Prayers for strength for every new hurdle you face.
Kelly and Mags were great...thanks for arranging for us to get updates. Keep your eyes on health.

Hugs,
Cathleen Mary

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

So glad to hear from you directly! Blessings and prayers to you and your family. You're an inspiration Steved. Wishing you strength for your recovery process. Thank you for updating us.

jen2012
Posts: 1184
Joined: Aug 2012

Sounds like you are making a strong and fast recovery! Enjoy those kiddos and focus on getting stronger each day.

thingy45's picture
thingy45
Posts: 565
Joined: Apr 2011

Welcome Back Steve, One day at a time has been MY Mantra since I had a life treatening illness when I was 12. It still serves me well.
Everyday a little stronger Steve. I am still in awe of you. The road might be long, but don't forget to smell the roses along the way.
Hugs, Marjan

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

We were all very glad to have the frequent updates via Mags, but there's nothing quite like the real Steve. You inspire so many of us here on the board. Seattle hugs coming your way~Ann Alexandria

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Welcome back, Steve! Rest well and get back up to speed.

PhillieG's picture
PhillieG
Posts: 4659
Joined: May 2005

Glad to hear you're over the hump and on the road to recovery.

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

I am thrilled to see you posting. You really are amazing.
God Bless,
Judy

danker
Posts: 722
Joined: Apr 2012

I am very happy for you. May you regain your strength soon. Hugs TOO!!!

tanstaafl's picture
tanstaafl
Posts: 936
Joined: Oct 2010

Welcome back, Steve. What an achievement. Best wishes.

marbleotis's picture
marbleotis
Posts: 472
Joined: Mar 2012

We have all been following your updates. I am so glad to read this and I am convinced there is nothing that you cannot overcome.

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

I know that you and your family must be tremendously relieved that your surgery is over and now you can begin your healing process. Here's to the beginning of your long life you have ahead of you.

Sincerely,

Cynthia

Annabelle41415's picture
Annabelle41415
Posts: 4184
Joined: Feb 2009

Glad to see that you are back posting and it seems that you are making some good progress and starting your recovery. You have been through quit a deal these last couple of weeks so I'm sure that you are glad that part of it is over with. So glad that your kids can come visit you and you all can play Wii together. Once again, it's good to see you posting and wishing you the best in your recovery.

Kim

lauragb
Posts: 368
Joined: Aug 2011

Wow! So happy to see your name! Sounds like you're ready and patient as you forge ahead to get to where you want to be, one step at a time. Sending light to you and your lovely family.
Laura

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Remember next Summer my friend !

Brenda Bricco's picture
Brenda Bricco
Posts: 549
Joined: Aug 2011

I am so glad to hear from you! There have been a LOT of thoughts and prayers coming your way. I know how difficult it is to accept the amputation, I still mourn my missing body part but it does become the new normal. I hope you keep up the good healing and get home to that family soon. GOD bless you!
Brenda

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

You are so special...with every thing you have gone through you sound amazing! !! Pray your recovery continues to progress at a rapid speed. Jeff

Patteee's picture
Patteee
Posts: 946
Joined: Jul 2009

wow and yeah
so glad you are on the mend
know it will take awhile and pray those margins were wide, wide, wide!

Patteee's picture
Patteee
Posts: 946
Joined: Jul 2009

wow and yeah
so glad you are on the mend
know it will take awhile and pray those margins were wide, wide, wide!

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

i was so happy to read your post. you are an inspiration to all of us! what strength & courage you have! just take one day at a time & be sure you do not over do it. prayers for you & your family.
hugs
judy

thxmiker's picture
thxmiker
Posts: 1198
Joined: Oct 2010

We glad that you are back and OK! Get rest and know that many are sending you good thoughts and prayers.

Best Always, mike

relaxoutdoors08
Posts: 512
Joined: May 2011

Wow, you are a wonderful inspiration for all of us. So happy you are doing well and your family is there with you as you heal.
Prayers
NB

Minnesotagirl
Posts: 141
Joined: Sep 2011

Steve,

Wonderful news that you survived! I have been praying for you daily in Minnesota for your survival and good long term prognosis. I am sure this journey has been extremely rough and personal but wonderful to see you are posting again. Best of luck to you and I admire your courage and fight...here is to better days ahead for you and your family.

"Minnesotagirl"

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

I'm from Kansas (grew up in Dodge City, actually) and we talk like that on occasion ;-). Just wanted to chime in and say howdy and welcome you back. Simply put, Steve, you're a good man. Good luck and Godspeed with recovery and rehab. Dan

hippiechicks
Posts: 302
Joined: Sep 2012

Many prayers for you as you travel this new journey. I have also been following your story and simply amazed at your strength! You are a true inspiration...it is wonderful to see you posting! Stay positive and strong!

hippiechicks
Posts: 302
Joined: Sep 2012

Many prayers for you as you travel this new journey. I have also been following your story and simply amazed at your strength! You are a true inspiration...it is wonderful to see you posting! Stay positive and strong!

hippiechicks
Posts: 302
Joined: Sep 2012

Many prayers for you as you travel this new journey. I have also been following your story and simply amazed at your strength! You are a true inspiration...it is wonderful to see you posting! Stay positive and strong!

hippiechicks
Posts: 302
Joined: Sep 2012

Many prayers for you as you travel this new journey. I have also been following your story and simply amazed at your strength! You are a true inspiration...it is wonderful to see you posting! Stay positive and strong!

hippiechicks
Posts: 302
Joined: Sep 2012

Many prayers for you as you travel this new journey. I have also been following your story and simply amazed at your strength! You are a true inspiration...it is wonderful to see you posting! Stay positive and strong!

smokeyjoe
Posts: 1428
Joined: Feb 2011

How wonderful to see you posting again, be well, get strong, take it easy on yourself.

Luckygirl2
Posts: 307
Joined: Mar 2012

So glad to see you back on the board. Rest and know we are all thinking of you.

abackhou
Posts: 77
Joined: Jan 2012

Hi Steve,

I have been following your progress with this disease and I just wanted to say a all the very best to you and your family. I hope you have s speedy recovery and to come out of this the best way possible. I live in Australia and you are in the homeland where I was born in Yorkshire 1955. I too have Stage 4 mCRC and am in the final stages (Hospice care) of my good life, enjoying every moment with my wife Trish and my 6 other loved ones. Watch out for the aussies in the twenty20 LOL
Take care Steve.

Andrew Backhouse (or Andy)

YoVita's picture
YoVita
Posts: 539
Joined: Mar 2010

... to see you posting again. Best wishes to you and your family. Hope for a steady recovery.

Aud's picture
Aud
Posts: 476
Joined: Oct 2009

so good to see you posting so soon. holding you in the Light for strength and rest for your recovery and rehabilitation.

taraHK
Posts: 1961
Joined: Aug 2003

I have a huge grin on my face, seeing your post!

Glad the surgery went so smoothly. It sounds like you are making a fabulous recovery.

Take it easy, won't you. I, too, have great difficulty when I have to take one step back -- but that's part of it, isn't it.

Best wishes for a very smooth recovery - physically and emotionally. Glad the kids seem to be coping so well. Adaptable creatures, aren't they??

Tara

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Glad to read your post Steve. You have us all in awe of your strength through this whole process. Rest up and just focus on getting yourself better and home to your family.

Alex

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Glad to read your post Steve. You have us all in awe of your strength through this whole process. Rest up and just focus on getting yourself better and home to your family.

Alex

Kathleen808's picture
Kathleen808
Posts: 2269
Joined: Jan 2009

It is fabulous to hear from you. You have remained in my thoughts and prayers. So glad your family is so loving and supportive. You're an amazing man.

Aloha
Kathleen

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