CSN Login
Members Online: 6

Deported

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Well, it's official everyone: I've been "deported"! Do I have to put this on my resume and/or job applications?! :)! Everything went well and it only took about 30 minutes. I can honestly say that I'm not going to miss my plastic little friend. It did however, save me from a lot of arm sticks.
Have a good evening and I hope that everyone is well,
Paul

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

My onco told me a few weeks ago when I asked about de-porting, she wants me to keep it another year..while I don't mind it and it doesn't bother me, it's just the dang fact I have to remember to go every 6 weeks to have it flushed.

Congrats on the de-portation.

Linda

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

Both of you....

JG

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

congrats on the freedom!

CivilMatt's picture
CivilMatt
Posts: 3093
Joined: May 2012

Hi Paul,

Nice job, now somebody that needs it can use it.

Best,

Matt

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

you can only relate to taht if you have kids or great kids in school that age ..:):):)

Better yet, slip it in when nobody is looking....boo hahahhahaha.

Tim

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Tim,
That's just so wrong on so many different levels! EWWWWWWWWWWWWWW! :)!

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

Matt,

I have mine up on EBay..... just incase you want to buy one;

PORT

JG

CivilMatt's picture
CivilMatt
Posts: 3093
Joined: May 2012

John,

Maybe my mask too?

Matt

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

John,
Maybe if enough people sell them, I can get a bunch of them and make some bizarre sculpture out of them.

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Matt,
Do they really use "rebuilt" ports?

yensid683
Posts: 242
Joined: Apr 2012

I too have been freed from the port, though not for the best of reasons.

Just after rads finished I noticed that the right side of my neck was very swollen and the large muscle that runs on the side of the neck was very sore. My rad onc did not seem concerned and said that it bore watching. Fast forward 5 weeks with no improvement so my wife said "isn't there something we can do?"

RO ordered an ultrasound and they discovered that the catheter from the port had caused a serious blood clot in my right jugular!

Panic seemed to set in amongst the health care staff. I was told that this was life threatening (what a rush) and put on an injected anti coagulant. I have never had a problem with shots, blood draws, IV's etc, but it is decidedly creepy to stick yourself with a needle.

They did an emergency removal of the port the following Monday and with the anti coagulants it took a while for the bruising to go down, but subside it did.

So, the good news, no port, and the clot is shrinking, the bad news, check your port and central venous catheters, any odd swelling or pain may be a clot. It is allegedly rare as a complication, but if you have it, insist on getting an answer!

Still, it is nice to have one less bump on my chest, now if I can just convince them to take out the PEG I'll finally be able to sleep on my stomach again!

Peter

yensid683
Posts: 242
Joined: Apr 2012

I too have been freed from the port, though not for the best of reasons.

Just after rads finished I noticed that the right side of my neck was very swollen and the large muscle that runs on the side of the neck was very sore. My rad onc did not seem concerned and said that it bore watching. Fast forward 5 weeks with no improvement so my wife said "isn't there something we can do?"

RO ordered an ultrasound and they discovered that the catheter from the port had caused a serious blood clot in my right jugular!

Panic seemed to set in amongst the health care staff. I was told that this was life threatening (what a rush) and put on an injected anti coagulant. I have never had a problem with shots, blood draws, IV's etc, but it is decidedly creepy to stick yourself with a needle.

They did an emergency removal of the port the following Monday and with the anti coagulants it took a while for the bruising to go down, but subside it did.

So, the good news, no port, and the clot is shrinking, the bad news, check your port and central venous catheters, any odd swelling or pain may be a clot. It is allegedly rare as a complication, but if you have it, insist on getting an answer!

Still, it is nice to have one less bump on my chest, now if I can just convince them to take out the PEG I'll finally be able to sleep on my stomach again!

Peter

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Peter,
Yeah, the surgeon who took mine out said that she likes to take them out as soon as possible for that very reason (to avoid possible serious complications such as those you experienced, etc.). Sorry that you had to go through all of that. You o.k. now?
Take care,
Paul

yensid683
Posts: 242
Joined: Apr 2012

I thought so until my last visit with the oncologist that had it put in. I was surprised to hear her say that this was still a life threatening issue, even after several weeks of anti coagulant therapy and improvement in the symptoms.

Swelling is down, less pain, and feeling the side of the neck, there is only a small bump. It was equally depressing to hear that this might be a life long thing too.

I was amazed to find that NO WHERE was there any mention of a clot risk in any of the literature that came with my port, nor was there any mention on the manufacturer's web site.

I was able to find several studies about port clot risk and it averages about 4 to 5 percent of all patients studied. More surprising was the analysis of intra jugular thrombosis. Of all causes, central venous catheterization accounts for over 40 percent of all clots, the largest single causitive agent. Seems to me that with all the cautions and side effect announcements for medications, that this should have had at least some mention of the risk.

So, yes, I'm okay, I have to take my med and be careful not to do something to break off a piece of the existing clot and cause a pulmonary embolism, but so far, so good.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network