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Good news

strongmind
Posts: 24
Joined: May 2012

I have posted on other topics too regarding IL-2. My husband , 32 years old, was diagnosed with RCC stage IV to brain and lungs in march 2012. He had laproscopic surgery for kidney in April, then 2 sessions of cyber knife brain radiation and then 1st cycle of IL-2 in July. Yesterday he had 10 week scan after 1st round of IL-2 and all spots from lungs are gone except 4 tiny ones. We hope them to go away with next cyle which is starting from oct 9th. He still have swelling in brain on one spot from radiation but doctor says that should go away with time.
It was such a relieving news. I keep visit this forum very often and take all the notes. It gives me positive hope always. I will keep on praying for whoever is battling this disease.
Hope for the best..

Thank you.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I think you must both have strong minds. Thanks for sharing your great (not just good) news. Stage 4 with mets to brain and lungs is unusual and tough to take at only 32. With youth and you on his side he'll continue to do well. keep coming back here to help keep your spirits up and to cheer us all up all the more with your good news.

alice124's picture
alice124
Posts: 881
Joined: Mar 2012

That is wonderful news and after just one cycle of IL-2! With several people on this Board undergoing IL-2 and even more contemplating it, we love to hear good news like this. Keep on sharing. Wishing you and your husband more future success.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Alice, I keep reading about long-term benefits of IL2. I'm a bit weary just now so can't remember who it was I was just reading about but it was someone who, per the trial protocol, was dropped from IL2 but continued to be stable for 2 years afterwards. I still believe John may be buoyed up by unrecognised benefits from his tryout on IL2 even though it was judged to be a failure. It often seems that people do unexpectedly well on subsequent treatments after HDIL2 has "failed" them.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

The member you referred to with 2 yrs of stability is Max Power.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

ooʇ noʎ oʇ ɹǝʍodxɐɯ puɐ ʎɹɐƃ sʞuɐɥʇ

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Typing at night again I see...

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

True enough - I was still asleep.
T. Keaton-West

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Do the dash be silent?

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

No it don't be. Remember

ɯɐpɐ puɐ lǝɐɥɔıɯ ?

alice124's picture
alice124
Posts: 881
Joined: Mar 2012

Tex - You're right I believe. There appears to be increasing evidence that a failed or mixed* (*more bad than good) HDIL2 response increases the likelihood of a positive anti-pd1 response. And actually John's response to HDIL2 wasn't classified as "failed;" it was labeled "mixed." He had growth in several lung nodules but a reduction in one nodule. Two months later when he started BMS-936558 trial, his scan showed significant growth in most of his tumors. So while his doctor never suggested discontinuing HDIL2 might provide latent benefits overall, he does surmise it may provide a more hospitable environment for the anti-pd1 drug (and possibly other drugs).

Strongmind--just to bring you up to speed--my husband, John, went through two cycles of HDIL2 in early 2012 but after two cycles (24 doses)the HDIL2 was discontinued. Guess it helps explain my excitement at your husband's success; I know how devastating it is to get the other envelope. Again, congratulations.

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