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PEG TUBE IS BEING PULLED TOMORROW!!

boardwalkgirl
Posts: 263
Joined: Jun 2012

I am so thrilled that the peg tube will be gone after tomorrow but have to admit I am a little anxious about what to expect. Don't know how much pain to expect during and after. They tell me I must have a high pain tolerance but I have never thought that. I kind of liked to be knocked out for all procedures,ha ha.

ditto1
Posts: 630
Joined: Mar 2012

Peg tube, but just wanted to say congrats that you are getting it removed, its just one more piece of the cancer journey you can put behind you. Hope for little to no pain. Now I will get out of the way so the folks with the answer to your question can do so.

CivilMatt's picture
CivilMatt
Posts: 2961
Joined: May 2012

Boardwalkgirl,

For me it was a firm tug, pop and swoosh of belly juice and it was over. They put a bandage on it and the hole closes up immediately.

If you want to see what they pull through go to the bottom of my expressions page (there is a picture inside my stomach).

I love to be able to roll around in bed without the tube.

Best,

Matt

BarefootBob's picture
BarefootBob
Posts: 72
Joined: May 2012

This great news, I can not wait together this irritating thing out and begin to eat again. My thoughts will be with you tomorrow as the procedure goes well and the pain is not bad when it was put in (for me)

Much Love,
Bob

nick770's picture
nick770
Posts: 195
Joined: May 2012

Best of luck to you, i. Cannot comment yet mine is still in. Do you have any anti axiexty meds you can talk with some pain killers?

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

It gets taken care of fast- before you know it- tube is out. And, congrats on getting another milestone done.

kcass

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Everyone can share in your success.

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

I am so glad you are have the PEG removed.

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

It was quick like Matt said. Mine was a little tender for a few days much like when it was placed but I must say, I immediately started to feel more human after it was out. No more wondering how to hide it or re taping it and laying on my belly was awesome!!
You'll be just fine.
Bilie

amy_h414's picture
amy_h414
Posts: 98
Joined: May 2012

Jason said his hurt for a second when the doc pulled it out, but it was quick and then done. Tender for a day or two after and that was it. He was so glad to get that thing out. Good luck!

hwt's picture
hwt
Posts: 1935
Joined: Jun 2012

A step closer to the old normal for you. Happy for you!

boardwalkgirl
Posts: 263
Joined: Jun 2012

I am one step closer to my new normal. Peg Tube is gone. He numbed it first, which hurt worse than the pulling out, but still wasn't bad at all. I am so glad it is gone. Thanks everyone for the encouraging words.

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Hey BG,
Congratulations on the removal (not the UPCOMING removal) of your feeding tube. I'm very happy for you, and glad that it went well.
Now go on and live your life, girlfriend, you've certainly fought for it!
Take care,
Paul

phrannie51's picture
phrannie51
Posts: 3728
Joined: Mar 2012

Oh girl, I can relate to your excitement!!! (the anxiety too, cuz mine was no easy peasy when it went it)....but to get this thing out is going to be so freeing. Congrats on this...another "graduation" from treatment.

I'm wholy planning on pushing your Dr's agenda onto my Oncologist...two weeks of maintaining weight with no tube feedings means it's time for the thing to go....I haven't used my tube since the 14th...so by the end of the first week in October, I'm hoping to get it pulled.

p

boardwalkgirl
Posts: 263
Joined: Jun 2012

I will be hoping you can get it out soon. It does give you a sense of freedom that I hadn't felt for a while. Keep eating and you will be there before you know it.

Pumakitty's picture
Pumakitty
Posts: 653
Joined: Mar 2010

I hope the procedure is simple and painless. Congrats on the next step to recovery.

Kathy

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

BG,
That's very good news, and I'm sure that you're elated. I'm SINCERELY happy for you. The docs thought that I would need the feeding tube, but I ended up going without it. I'll have to read your posts and see what you were dealing with. It's one hell of a trip, isn't it? I'm actually having my port removed Monday!
Take care and have a good weekend,
Paul

boardwalkgirl
Posts: 263
Joined: Jun 2012

Paul, just read your story and our's were almost identical other than mine was on the right side and they never found a primary sight. My pet scan pre treatment was clear, will have another one on October 23rd. Praying for another clear one. Good luck with the port removal.

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

BG,
Thanks. What do you mean "they never found a primary site"? I'm confused.What, then, were they actually treating? I'll have to go back and read your posts again. Nope, even better:I'm going to read your history. I'm glad everything is going well with you (the negative PET, etc.). I had my first post-treatmet PET in April and I'm cancer-free (for now...sorry, had to add that). Glad that you had that thing removed: congrats!
Paul

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

BG,
Just read your history. Man, you're right! It WAS like reading mine! As I wrote in the history, they found the primary at the right side of the base of my tongue (again, like yours, squamous cell carcinoma). It was HPV+ which was a blessing in disguise, because apparently that particular cancer responds well to treatment (which mine did). If that "cyst" (actually just like yours, an enlarged lymph node) had not shown up, I would NEVER have known about the tiny tumor on my tongue.
Again, congratulations, and good luck with everything,
Paul

boardwalkgirl
Posts: 263
Joined: Jun 2012

Paul, I guess I should have said unknown primary. also mine was HPV + too.

davkel's picture
davkel
Posts: 20
Joined: Apr 2012

Congratulations!!! I've had my peg since Nov 2011 and still have it. My swallowing is coming back slowly but not enough yet.
My throat is at 10 mm. Had a dilation yesterday to 12mm but the Doc says it keeps shrinking back to 10. Having 1 more
try next week to keep it enlarged. Here's hoping. Did you have any problems like that? Did you have to have any
throat dilations to open up your esphagus? If so, how long did it take till you got your swallowing back?

boardwalkgirl
Posts: 263
Joined: Jun 2012

No I didn't have any problems like that. I ate and swallowed thru out the entire treatment, at times not a lot, but I always kept swallowing something every day. I can not eat everything I would like yet but enough to keep me going. My biggest problem is I just don't get hungry and since nothing really tastes good, I have to force myself to eat. I fill up really quick.I will pray that things get better for you.

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