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Hopefully last treatment for a while

carolp99
Posts: 70
Joined: Aug 2012

Oncologist said that my last 6th treatment w/RCHOP, rituxan and the shot will be my last until he does another PET scan, CT scan and heart monitor on Oct. 26th. Praying that it will be fine. This last treatment has put me down for the count. Dr. told me to expect this since my treatments have really been harsh. Don't know how people can go through these treatments time after time. Please keep me in your prayers. As you can see it is quite late, but the steroids really mess me up. Still have to have blood work done every week. I have a wonderful support group with family and friends and I honestly think that this has helped me tremendously. I am 65 and I think that my body is just too tired to have any more treatments, but I guess you have to do what is best for you. Wondering if anyone else has gone into remission and the longest time for it. I now I am rambling, but blame it on fatigue and chemo brain. Again please keep me in your thoughts and prayers. Carol

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Hi Carol, glad to hear you are done with the treatments, It's been almost two years that I have been clean!!! Awesome that you have a wonderful support group, it does make a difference..... Vinny

onlytoday's picture
onlytoday
Posts: 596
Joined: Jun 2010

hi Carol,

Congratulations! Praying that your scans and tests all show the big R!

I get my sixth chemo on October 2 & 3rd. I'm getting Bendamustine/Ofatumumab. Will have my testing at the end of October as well. My doc already knows I'll have maintenance for 2 years. Ofatumumab every other month.

It is so exciting to finally get to the end of the treatments! They do take a toll on us that's for sure. I'm looking forward to getting back to some kind of normal (new normal) after. One of the first things I want to do is visit my brother in Florida. I'm 60, he's 74 and we plan to go to Disney to celebrate! He beat head and neck 4 years ago and lung cancer this year!!

Hope you are feeling better and resting. Keep us posted with your scans, etc.

Hugs,
Donna

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Hi Carol,
So glad to hear from you, and I'm super glad your last treatment is behind you! :) R-CHOP is a harsh chemo and from what others have said, it DOES beat you down. My chemo(CVP-R) was much milder in comparison, but it also knocked me down. It just takes time for us to get our strength and energy back, so be peaceful with yourself and give it time. I have a wonderful support group also and a very busy little granddaughter to keep my mind occupied. I'll keep you in my prayers for clean scan results next month. Keep in touch...Much love to you...Sue
(FNHL-2-3a-6/10)

carolp99
Posts: 70
Joined: Aug 2012

Thanks Donna and Sue for the words of encouragement. It has been a week since my 6th treatment and I am still so fatigued and my bones and muscles hurt so bad that I am taking the pain meds that my dr. prescribed. Is this normal or am I just being paranoid? Trying so hard to be positive, but when you feel this bad it's really hard. Again thank you!

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Hi Carol,
Sounds like a pretty normal feeling after just finishing 6 rounds of harsh chemo. My onc told me it can take up-wards to a year before you start feeling normal again, and then it's a "new normal". I'm almost 2 years out from doing first line chemo and I still don't have 100% of my energy back. Have some aches and pains also, but we really can't expect to be pumped with harsh chemicals and come out totally unscathed. lease be patient with yourself and know it will slowly but surely get better. Much love...Sue
(FNHL-2-3a-6/10)

onlytoday's picture
onlytoday
Posts: 596
Joined: Jun 2010

Carol,
The rituxan part of your chemo is cumulative so to still feel sick a week later seems normal to me. I would give it a few more days and hopefully it will ease up. But if not for some reason, a call to your doctor would be good. I think each treatment gets a little bit harder= I know mine do. Mine makes me tired and I hurt all over. But the worst pain I get is in my jaw! My entire lower jaw feels like I was punched or something for about 2 weeks! Crazy.

Praying for you every day.

Hugs,
Donna

carolp99
Posts: 70
Joined: Aug 2012

Well, it looks like everyone was right. Crawled out of bed this am, but within a few hours was feeling so much better. Still have some pain and fatigue, but it is doable. Even fixed a big pot of vegetable beef soup. I think I see a light at the end of the tunnel. Now to get through my tests and I'll be so happy. We also planned a trip to Las Vegas in November with my Drs. blessings. Hope all is well with everyone.

xoxo,
Carol

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

So glad you've started to feel better. My chemo Bendamustine/Rituxan was much milder than R-Chop--but the fatigue after # 6 treatment was major!!! Fortunately, I regained my strength, feeling good etc.--gradually over time. But the first day energy returned was wonderful!!

Keep on with the positive thoughts and hope, pray that all reports will be great for you!!!

I haven't been on regularly for quite a while--miss the group and take such encouragement from everyone's support for one another---

Susan

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