CSN Login
Members Online: 13

Treatment plan and surgery in place

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Sooo, I will be back on Xeloda (he prefers that to 5FU with the pump for me, thinks it works better, since it's taken over 2 weeks verses a couple of days of chemo fluids)and Avastin again, (I had asked my heart doctor to be taken off of the blood thinners for the heart due to my upcoming colonoscopy last month so can go back on Avastin). He wrote the surgeon while I was in the office to see if he would remove the large tumor from my liver after a bit of chemo, I believe he would like to have my ovaries and other woman parts removed as there appears to be another one hanging around there again, and he said the tumor cells do like to hang around there in women with colon cancer. Heck I went through menopause in my 40's before cancer, didn't have much of a use for them anyway.
So, things will remain pretty much the same for me health wise as that chemo (xeloda) and Avastin did well for me before without side effects, then hopefully surgery on liver and colon and ovary parts. The lung he wasn't worried about too much as he said it is still small and the last time I did chemo, they calcified and he thinks it will do so again to this one (the calcification).
And that's my doctor visit, should be back on the chemo by the end of this week.
Winter Marie

Sundanceh's picture
Sundanceh
Posts: 4283
Joined: Jun 2009

Got any room for me to ride along with you?

-Craig

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

You're always with me, my friend.
Winter Marie

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Wow Winter Marie... You have a lot going on...but your plan sounds good. I hope your new chemo works well for you...no side effects sounds wonderful! When is your surgery. I am of the same mindset with the female organs...if there is any chance of it comming showing up there...then take them out. I'll keep you in my thoughts and prayers.

Alex

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

They had talked about taking them out on my last surgery, but because they were cutting and taking pieces out of three other organs, I think they decided it would have to wait.
Thank you.
Winter Marie

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

double post

RickMurtagh's picture
RickMurtagh
Posts: 530
Joined: Feb 2010

plans give us hope don't they? They sure did me. Here is to hoping your plan brings you happiness. You deserve it.

peace and best wishes

Rick

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Miss seeing you, yes, it seems the hope springs up and gives a good feeling when they give you the plan, it lets you know they figure you're still got good chances.
Peace back at you Rick,
Winter Marie

Lovekitties's picture
Lovekitties
Posts: 2934
Joined: Jan 2010

I am glad that you now have a plan in place and pray that the chemo does well for you with little or no side effects.

When I had my tumor surgery they took all the woman parts. I was told that it was precautionary.

Very glad they moved up your consult and they can get you started soonest on beating this once again!

Hugs,

Marie who loves kitties

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Yes, I wish they had taken them out the first time, but I understand after a 10 hour surgery why they didn't want to.
So glad the consult was moved up too!!!! I don't think I could of stood the wait!!
Winter Marie

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Winter Marie,
Glad you have a plan! For me, plans give me direction, like swimming for the shoreline instead of treading water in the middle of the ocean with sharks circling! Thanks for sharing and I'm sending good vibes and prayers your way.
SharonVegas

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Definitely staying in the life raft!!! Thanks for the vibes and prayers.
Winter Marie

PhillieG's picture
PhillieG
Posts: 4667
Joined: May 2005

Sorry to hear you're back on the chemo-wagon but I'm glad you have a plan...
-phil

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Plans are good, means future, eh??
Thank you Phil for being there.
Winter Marie

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

Dear Winter Marie, I am glad you have a plan in place and I will be praying for a good outcome.
I hope your next plan is to go a resort area.
Hugs,
Judy

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Judy, Judy, Judy...may the resort area plan come up soon!!! Actually trying to plan a trip to Europe for next summer, just too many places I want to go, that I'm trying to narrow it down, I've been there before so I still want to visit the old haunts as well as NEW ones (England's on the list this time, but then there's Austria and Holland0 and well, you know it just goes on and on and on and I can't do them all. I'll plan this as my celebration trip of getting rid of these pesky tumors again!!!
Winter Marie

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 446
Joined: May 2012

Love the idea of Europe next summer. I'm planning to go too. My grandfather came over with his family from Germany and I want to go see where we came from. My husband and I hope I get some clean scans so we can plan this trip and many more. We have been through most of US and about 10-12 cruises including Alaska and Hawaii. Now for the more expensive flights. Hope we both get our summer trip! Good luck with your treatment.
Sandy :)

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

so did that one already, and was married in Hawaii and then went back home (Alaska) and did the cruise and got to see places I never saw before up there, it was fantastic to be a tourist in my homeland and see things I've never seen before.
I'm sure you'll be making that trip overseas, my family on my dad's side also came from Germany, and one of my niece's is a German citizen with family there. Here's to both of us on a summer trip!!!!
Winter Marie

ron50's picture
ron50
Posts: 1281
Joined: Nov 2001

Just put a zipper in,bit like a colostomy bag,then when they decide everything is fine they can remove the zip and do the final closure. When I see how much crap so many on this board have to wade thru i just find it hard to believe that I got away with just the original cancer and no mets. I am so sorry you have to go thru this. I can only wish you well and hope for your sake that they clean up everything and it leaves you alone from now on.Hugs Ron.

smokeyjoe
Posts: 1428
Joined: Feb 2011

My mets were to my "female parts" and my spleen, how weird is that??? Glad you have a plan, especially one that doesn't involve walking about with a bottle hooked up to you!!! (interestingly my oncologist has the opposite opinion, he thinks 5FU infusion is more effective)....but....who knows....I'm giving xeloda a try....P.S. I like Rons idea of putting in a zipper....

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I guess each onc, has his favorite!!! LOL. I like Ron's idea too!!
Winter Marie

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Wouldn't that make it simple, just pull the zipper down, reach in, take the parts and zip her back up again. Thanks Ron and hugs back!!
Winter Marie

ketziah35
Posts: 1148
Joined: Jun 2010

I am so sorry. I am working on finding that hot male nurse for ya. How does channing tatum sound? He was in the movie magic mike about male "dancers". He was a "male dancer" in real life to.

Seriously, we all love you and are sending you prayers.

Ketz

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

the last time on that male nurse, I'm sure you'll come through this time!!! LOL.
Thanks Ketz!
Winter Marie

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

Hi Winter, I can't really say anything that hasn't already been said. I want you to know that I hate that you have to go back on chemo but I am grateful that you have that option.
Hang in here with us while we pray you to a better spot.
GOD's blessings to you.
Brenda

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Why thank you kindly for helping me get to the better spot.
Winter Marie

Varmint5's picture
Varmint5
Posts: 371
Joined: Feb 2012

Winter Marie,

So happy to hear that you have a plan in place. You have been on my mind. I have no doubt you can kick this down again. I'm glad your treatment never stopped working for you.

Sandy

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I know, I expected to also get Oxyplatinin again, but he thinks the Xeloda and Avastin will do the trick. I've been lucky to be sure that I never had to stop any due to the treatment not working, so far!!!
Winter marie

maglets's picture
maglets
Posts: 2404
Joined: Jun 2006

I would like to support Ron's zipper idea....hahah good stuff.

I wish you only the very best with your new plan Winter Marie....it sounds like a good one and you seem very confident that you can do it.....I know you can .....

sending warm northern hugs....

mags

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I do so love seeing your picture,you look so serene and comfortable. Thanks for the northern hugs.
Winter Marie

PhillieG's picture
PhillieG
Posts: 4667
Joined: May 2005

VELCRO™. It doesn't rust!
Good luck with the plan...
-p

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

STAINLESS STEEL zipper, I'd hate the sound of velcro ripping apart on my body!!! LMAO
Winter Marie

steved
Posts: 836
Joined: Apr 2004

I am glad yo ufound a way forward and have a plan that you feel confident in- that is half the battle. As was described by, I think, Ann about Pete's recent PET scan it isn't too bad- you just need to whip out that bit of the liver, get rid of the ovaries that you have no use for take a bit of chemo and hey, presto your back on track.

In all seriousness it is nice to hear you remain postive about the plan. I too didn't find avastin and xeloda a bad combination to live on and it seemed to hold my cancer pretty stable (been off 3 months now and symptoms moving pretty quickly makes me realise it really was doing quite a good job). You have some pretty serious stuff to face but nothing that you and many here haven't had to face before so we know its doable. Keep positive and we can win this battle yet,

steve

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Got you in my mind this weekend, and staying positive for you in this upcoming week and your surgery. Will be sending the best of vibes and greatest thoughts for a wonderfully uneventful surgery and PAINLESS recovery!!!
Winter Marie

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Agree with everyone here that a plan also spells h-o-p-e.
You're going to do great, and many people are pulling for you.
~Tommycat
PS: Love the zipper idea!

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I'm thinking the zipper idea wins!!!!

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Winter, I'll be saying prayers for the success of your treatment plan and doing Snoopy's "Happy Dance" for you all the way!

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I appreciate them!!! Love doing a happy dance even more, so looking forward to that day!!
Winter Marie

janderson1964's picture
janderson1964
Posts: 1578
Joined: Oct 2011

That is great that they are thinking about surgery. Survery is the one treatment that i have a lot of confidence in.

I am praying for good results.

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I agree, cutting it out as my onc told me once, is the sure way of getting it (the tumor)out.
Thank you for the prayers.
Winter Marie

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I hope all goes well with your plan and you can get back on the road to NED'ville soon.

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I do so like that word, I think it is indeed my most favorite word ever..."NED'ville", a beautiful word indeed, I thank you for that word, it is now my word of the day, the month and the year...NED'ville.
Thank you for sharing that wonderful word with me and wishing it, may we both, nay, may we ALL see NED'ville permanently.
Thank you Kathryn, thank you, thank you,
Winter Marie

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Thinking of you and hoping the new plan is in action already, and that you're not having any bad side effects. JBG was also on Avastin and Xeloda until mid July, and her side effects were not too bad. As soon as she smacks those silly platelets back up where they belong, she'll probably get back on it.

Any estimation of when your surgery will be?

Luv,

Wolfen

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

I'm thinking of February. And get JBG smacking on those silly platelets back up, if they still refuse to go up, we'll both have to head over and help her smack them!!!
Luv,
Winter Marie

relaxoutdoors08
Posts: 519
Joined: May 2011

Winter Marie, thinking of you and so glad you have a plan but most of all glad you are a surgical candidate. You have courage and a strong spirit. I am sending positive thoughts and prayers for a successful surgery and a good response to treatment.
NB

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Thank you I accept all good vibes and prayers or anything else positive sent my way, I do so appreciate it, it all helps.
Winter Marie

Annabelle41415's picture
Annabelle41415
Posts: 4244
Joined: Feb 2009

So glad you have a plan in place. Actually with all you have been going through, college, kids, living life to the fullest, wasn't aware that you were on something to keep you stable all this time. Just thought that you were NED and this was something new that cropped up. You are so strong and determined. You go girl, you've got the will, the way, and the desire and that is all you need to succeed. Hope all goes well with your new plan and your college classes too.

Kim

herdizziness's picture
herdizziness
Posts: 3398
Joined: Apr 2010

Yes, I was only off the Avastin due to upcoming root canal,, colonoscopy(which didn't happen due to heart problems)and then because of medication from heart stent (blood thinners) that I ended up it off longer then expected, and look what happened? Oh well, onc said I might be an Avastin person for life from the beginning, looks like that may be true, but at least surgery is still an option. Can you believe I'm trying to figure out due to college schedule when I can fit the surgery in?? I'm thinking February, which gives the tumors time to shrink but is a bit longer period then the doctor wanted, it's just I have the chance to graduate this spring if I go to the winter class for another math I need (I would be done if I had the maths done this semester actually, but I'm TERRIBLE at math)and then another math class in spring and I'll be done, it's something I really, really, really want to do is at least graduate from one college, my mom and dad would have been proud and I've been looking forward to graduating and feeling them both there with me spiritually with big grins on their faces!! Can you believe that next year both my children will be graduating from their 4 year universities?? My daughter actually said she wouldn't be "walking", I told her, she had another think a coming!!
Winter Marie

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

wishing you the best with your plan. you are in my thoughts & prayers! hang in there!!!
hugs
judy

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I am so sorry about you having to return to chemo land. I know its kind of disheartening but hopefully it will be only for a short time. Surgery will remove the criminals and give you a great headstart on a renewed health. Love to you and yours and it also sounds like a great bucketlist as well......
buzz

Cathleen Mary
Posts: 563
Joined: May 2011

Winter,

The one thing we all seem to agree on is..we like plans! So glad you have one. You are incredibly resilient...soon you will be saying hello to NED again.
Prayers and good wishes.

Cathleen Mary

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network