Aug 14, 2012 - 9:46 pm
I am soooooooooooo happy for all those who recently posted their NED (clean scan or No Evidence of Disease). Can't get enough of those!
Unfortunately my scan in July showed an 8mm mass on my left lung. Treatment Background: I've had radiation last summer, 2 chemos and three surgeries (including removing 30% of my right lung in Dec. 2011). Now it's moved on to my left lung. Only 8mm but still a problem.
Going to try the Cyber Knife radiation in St. Paul, MN (4 hours away). It sounds great, with low side effects and 3-5 treatments every other day for 1-1.5 weeks. The staff has been very caring in setting up my consult (8/22). Don't ask me about my damn biopsy doc - he never returned my call and I had to dig to get the results. A**hole.
I'm glad I don't have to have surgery or chemo again and that Cyber Knife will be the way to go. Doc says if that doesn't work Erbitux will be my last hope. Tough to hear.
Just turned 40 with a husband, 11 year old boy and 2.5 year old girl. I was pretty bummed about this finding, but glad they found it and that maybe this new treatment will kill it for good.
Do you have any experience with Cyber Knife?
Best to You and keep those NED's coming!