I know its been quite awhile since I posted but I do read the discussions from time to time. I have found another site which is for 'ostimates' & the discussions really help.
So to update its been 5 months since my ostomy surgery & while its been a roller coaster for the most part not too bad. Doc says takes 6-8 months to adjust....& boy is there lots to adjust to! On the plus side: no more arse pain like I had from radiation, no having to always look for a bathrm when out & about (if I can even go out!). On the negative side: praying my pouch don't leak, watching what I eat more closely & drinking plenty, getting use to how 'Miss Thing' (yes I named her!! haha) looks-acts-sounds. I'm slowly getting a routine when to change the 'appliance'. The worse so far is when Miss Thing has a fit & spits all over (probably from something I ate she didn't like!). Yes I'm crazy but I've spent many days in the beginning being depressed over this major life change. Well I should say I still have my down days but I'm learning to laugh more & enjoy life again.
So far my doc feels I'm cancer-free. I'll go in Aug. for my 6 mo. check up, ct scans, blood work....you know all that fun stuff. (but sorry no more colonoscopy for me!! heehee) I feel very blessed with my awesome caring supportive medical team.
My hubby has been an amazing support & care-giver. He helped care for my 'wounds' when I got home from the hospital. He can change my appliance for me no problem. He's seen Miss Thing spit up & didn't flinch (but I cried!). This whole journey has turned our lives upsidedown but we're closer then ever except our sex life is still non-existant! arrgg! But hubby's very patient & believes that'll get better in time too. And I know that inspite of it all I'm very blessed.