CSN Login
Members Online: 13

Just wanted to say hi......

Posts: 95
Joined: Sep 2011

I know its been quite awhile since I posted but I do read the discussions from time to time. I have found another site which is for 'ostimates' & the discussions really help.
So to update its been 5 months since my ostomy surgery & while its been a roller coaster for the most part not too bad. Doc says takes 6-8 months to adjust....& boy is there lots to adjust to! On the plus side: no more arse pain like I had from radiation, no having to always look for a bathrm when out & about (if I can even go out!). On the negative side: praying my pouch don't leak, watching what I eat more closely & drinking plenty, getting use to how 'Miss Thing' (yes I named her!! haha) looks-acts-sounds. I'm slowly getting a routine when to change the 'appliance'. The worse so far is when Miss Thing has a fit & spits all over (probably from something I ate she didn't like!). Yes I'm crazy but I've spent many days in the beginning being depressed over this major life change. Well I should say I still have my down days but I'm learning to laugh more & enjoy life again.
So far my doc feels I'm cancer-free. I'll go in Aug. for my 6 mo. check up, ct scans, blood work....you know all that fun stuff. (but sorry no more colonoscopy for me!! heehee) I feel very blessed with my awesome caring supportive medical team.
My hubby has been an amazing support & care-giver. He helped care for my 'wounds' when I got home from the hospital. He can change my appliance for me no problem. He's seen Miss Thing spit up & didn't flinch (but I cried!). This whole journey has turned our lives upsidedown but we're closer then ever except our sex life is still non-existant! arrgg! But hubby's very patient & believes that'll get better in time too. And I know that inspite of it all I'm very blessed.

nonichol's picture
Posts: 114
Joined: Jul 2010

I like the fact the fact you named her, You are lucky to have a great hubby and to be cancer free. I know I need to look to the positive aspects , which are sometimeshard to see.

Best wishes,

mp327's picture
Posts: 3392
Joined: Jan 2010

God bless you for handling your situation so very well! While you have had lots of adjustments to make and probably are still working on a few more, it sounds like you are doing well. I'm very proud of you!! I'm glad you have your husband's full support--he sounds like a great guy. I wish you all the best on your upcoming scans and tests. May everything come back showing you are cancer-free! Please let us know when you get the results.

AZANNIE's picture
Posts: 396
Joined: Mar 2011

Glad you checked in. Have wondered how you were doing. I hope your check up goes well and you continue to be cancer free!!!!


sandysp's picture
Posts: 859
Joined: May 2011

Thanks for posting. I know your journey has had its ups and downs but it's good to know you are now cancer free. I am scheduled for the "let's find some cancer" tests (we are at the one year date August 15 last tx). I feel better than I have in years,but have some issues, as we all do. Most are posted here and it's nice to know I'm not alone.
Good luck. I am so glad you have your husband. Mine is here still too and our relationship is more "real" than it was, for better or for worse. I would love to feel sexual but I'm just not there. It's going to take a while.
Thanks again for checking in. I know from your post even if they do find something in the great search, it's not the end of the world.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network